Changes after Transplant

Posted by 2011panc @2011panc, Nov 22, 2016

I have learned that following a transplant there are many changes beyond your physical situation. What is your experience? Has your mood changed? Are you happier, calmer, more agitated, more anxious, more relaxed or something else? Do you feel you have changed emotionally, spiritually or mentally? Do you feel that your personality has changed? I am curious about more than physical. I appreciate your input on this issue.

@gaylea1

@contentandwell I was also on rifaxomin which complimented the lactulose pretransplant. Yes my HE episodes were debilitating. Total memory loss. I had no idea what month, what year or what day it was. I couldn't remember my address, my phone number or any important dates. It took me almost a full year to start remembering anything day to day. Post transplant my memory has dramatically changed but limited to only 4 months after surgery. I know that I spent Christmas 2018 on the transplant ward in hospital. and went home sometime in the new year. I then was re-admitted 2 weeks later to have surgery on an artery between my heart and liver and was reopened along my surgical scar and had all my staples administered for a 2nd time. Then I had a blocked bile duct that took 4 ERCPs to implant a stent. I contracted pancreatitis 3 times and if you look it up it is the most painful thing to endure. I was on morphine, tramadol, and other painkillers which I cant remember. It's been a trial to say the least. Today I had a cancerous skin lesion removed from my arm (which developed post transplant) by the plastic surgeon. Pathology results pending. Yes I'm grateful still. I'm alive and soon I will be close to recovery. My one year anniversary is Nov 28th.

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@gaylea1 I remember being in the hospital and they asked me what day it was, what month, who the president was. I knew nothing and asked how the heck did they expect me to know the date when there I was stuck in a hospital room with no outlet. When they asked me who the president was I said Bush, but it was Obama of course. The nurse thought maybe I had really liked Bush. One nurse complimented me on my complexion and asked what products I use. I didn't remember right away but by the time she came back to my room I had and told her, and then it became somewhat obvious she was just testing my memory. As soon as the HE episode ended though my memory was pretty normal.

You have had a very hard time. I hope the results of the biopsy are good, you deserve a big break.
JK

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@contentandwell

@gaylea1 I remember being in the hospital and they asked me what day it was, what month, who the president was. I knew nothing and asked how the heck did they expect me to know the date when there I was stuck in a hospital room with no outlet. When they asked me who the president was I said Bush, but it was Obama of course. The nurse thought maybe I had really liked Bush. One nurse complimented me on my complexion and asked what products I use. I didn't remember right away but by the time she came back to my room I had and told her, and then it became somewhat obvious she was just testing my memory. As soon as the HE episode ended though my memory was pretty normal.

You have had a very hard time. I hope the results of the biopsy are good, you deserve a big break.
JK

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@contentandwell isn't it strange how chemicals in our bodies can affect our brains so much. I'm sure it was as scary for you as it was for me. Even after they would tell me the month and date I would revert back to my original answer within a few hours. It was frustrating and I felt so foolish but I just couldn't get a string of thought together.

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@gaylea1

@contentandwell isn't it strange how chemicals in our bodies can affect our brains so much. I'm sure it was as scary for you as it was for me. Even after they would tell me the month and date I would revert back to my original answer within a few hours. It was frustrating and I felt so foolish but I just couldn't get a string of thought together.

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@gaylea1 You definitely had it worse than I did. As I've said, between episodes I was perfectly normal. I was driving myself to my sports club, shopping, everything was normal — until another episode happened. They are the worst. You and I can really rejoice in no longer having to deal with them. We are so fortunate to live in a time when we have been able to have successful transplants. Every day is a gift.
JK

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