Celiac Artery Aneurysm

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

@mfolan

Sure. Will you be getting a stent? Where do you live?

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I’m not sure. I go to a cardiologist on the 30th. I live in North Mississippi. It was found while doing a ct scan of my renal arteries. Luckily the renal arteries are fine.

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Has anyone else after having a stent in the celiac artery still has digestive issues? I still have bloating and certain foods irritate my digestion which leads to issues. UGH!

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I find that a probiotic daily similar to an over the counter "Saccharomyces Boulardii" works for me in mitigating gas and diarrhea…and that urgent necessity..

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@ken82

I find that a probiotic daily similar to an over the counter "Saccharomyces Boulardii" works for me in mitigating gas and diarrhea…and that urgent necessity..

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Yes! Bloating, gas, urgency to get to a bathroom. Horrible. Dr. Koufman's book Drop Acid (Amazon) has been a huge help. A tsp. of honey has surprisingly helped with bloating and gas. If I veer off the foods in this book, which was recommended by my doctor, I l'll pay with a big digestive upheaval that will take me a few days to stabilize. Good luck to you finding what works best for your personal health situation. Before my celiac aneurysm arrived, I never had any of these issues. 😳🙄

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@hopeful33250

@jurney01 Hi Jen: I just saw your post regarding your health problem. I’m so sorry to hear about that, but I’m glad that you were able to have a procedure to help. While I’ve never been diagnosed with this, I also have a rare disorder, Neuroendocrine tumors, and I know how important it is to connect to others who are also going through something similar. Hopefully, someone on Mayo Connect will be able to relate with you and share their experiences. I see that you just recently joined Mayo Connect so let me welcome you to this very supportive, encouraging community. We are here for each other and learn from each other!

I “googled” the disorder and I see that is very rare. If you would like to share your experience, please let us know how your doctor found this aneurysm and if you were having specific symptoms or if it was just found incidentally. Best wishes to you as you share your experience and find help and support from others! Teresa

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I too have a celiac artery compression
Not sure if it is a tangle of nerves compressing it or a ligament from my diaphragm )MALS). There is a 9 m mlm aneurysm beyond the compression
I have no pain at all . I do have factor Leiden V heterogenous, which means i have a propensity to form blood clots. I have two other arteries that leave the abdominal Ao
rta: renal and lower iliac which boyh have significant stenosis with thrombus. I just comleted surgery for clots in my femoral artery. Blood from the artery filled my abdominsl cavity. I was awake because m bp kept tanking and they could not give me anesthesia. I was in exteme pain my foot and leg started swelling and i lost all feeling in my foot. I was freezing cold and at one point mu haglobin was 4. Finally my bp went up enough and i was given something and my cardiologist inserted two stents. Ivwoke up with swelling going down and could wiggle my toes. My abdomen still hurt.i do not have any pail that MALS patients ha e and do not know why i don't. I wish you all well with your surgeries. I was 5 minutes away from a total leg amputatio.

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@nursecook1948

Where did you have your surgery? Dr.’s name?

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I know this is an old thread but my husband has this problem which was found/ noted in his x-ray report when he was having another bout with kidney stones in 2010. It was 1.4 cm then. I haven't checked the other times he has had this same problem – kidney stones in the last 10 years but the x-ray for the ones they found last month (Dec 2019) again showed the same celiac artery aneurysm only it is now 1.9 cm. After pointing this out to his urologist I was told it had to go back to his "main" doctor for referral. Went back to that doctor only to be referred to a gastroenterologist!. I'm trying to see what type of specialists/doctors anyone else was sent to. I have a gastroenterologist but I have mild celiac along with other issues that a gastro guy handles. Never heard of one of them handling this type of health problem. I thought the referral should be to a vascular specialist. Can you or anyone else give me the specialties your doctors were in?

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@mejustme

I know this is an old thread but my husband has this problem which was found/ noted in his x-ray report when he was having another bout with kidney stones in 2010. It was 1.4 cm then. I haven't checked the other times he has had this same problem – kidney stones in the last 10 years but the x-ray for the ones they found last month (Dec 2019) again showed the same celiac artery aneurysm only it is now 1.9 cm. After pointing this out to his urologist I was told it had to go back to his "main" doctor for referral. Went back to that doctor only to be referred to a gastroenterologist!. I'm trying to see what type of specialists/doctors anyone else was sent to. I have a gastroenterologist but I have mild celiac along with other issues that a gastro guy handles. Never heard of one of them handling this type of health problem. I thought the referral should be to a vascular specialist. Can you or anyone else give me the specialties your doctors were in?

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@mejustme, I believe you are correct. Your husband should be seen by a vascular surgeon, not a gastroenterologist. Demand that your husband's primary doctor send a referral to a vascular surgeon instead.

Liked by codonpatrick

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@mejustme

I know this is an old thread but my husband has this problem which was found/ noted in his x-ray report when he was having another bout with kidney stones in 2010. It was 1.4 cm then. I haven't checked the other times he has had this same problem – kidney stones in the last 10 years but the x-ray for the ones they found last month (Dec 2019) again showed the same celiac artery aneurysm only it is now 1.9 cm. After pointing this out to his urologist I was told it had to go back to his "main" doctor for referral. Went back to that doctor only to be referred to a gastroenterologist!. I'm trying to see what type of specialists/doctors anyone else was sent to. I have a gastroenterologist but I have mild celiac along with other issues that a gastro guy handles. Never heard of one of them handling this type of health problem. I thought the referral should be to a vascular specialist. Can you or anyone else give me the specialties your doctors were in?

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Yes. He must see a vascular surgeon. My doc was an interventional radiologist, and he was amazing. Truly saved my life. Both know what to do. This is not a gastroenterologist issue in any way. The celiac artery is the first large branch of the aorta and feeds several organs with blood. It’s not small and is not in any way related to the celiac issue you are dealing with. Don’t wait. Make the doctor look up what the celiac artery is. My PCP has never seen anyone with a celiac artery aneurysm. It is relatively rare. Let me know if you have more questions.

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@kanaazpereira

Hello @saschlief,

I’m sorry to hear about your dad’s diagnosis, but so glad that you came to Connect to seek some information from Jen, @jurney01.

As @hopeful33250 mentioned earlier, celiac artery aneurysm is indeed rare, but I would encourage you to read this article about some research done at Mayo Clinic which shows that endovascular repair could be effective in treating aneurysms involving branches of the celiac and superior mesenteric arteries: http://mayocl.in/1OS5tAf

saschlief, I’d also like to introduce you to a few members who have talked about living with abdominal aortic aneurysm. @janetpomponio, @kdh1, @playsdixie, @elsinann, @lynnkay1956, @ssams, @jessicalatessa, do you have any insight for @saschlief that would help her father?

@saschlief, could you give us a few more details? What symptoms did your dad have that led to this diagnosis? How is his doctor monitoring the aneurysm to make sure it does not get too enlarged?

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I have a celiac aneurysm Diagnosed in Dec. I wondered if there are any other health issues that make it a risk factor. I have hypertension, high sugar and colestral. Pelviv floor is lax. Lately BP has been way high and there are sounds in my lower belly after I eat.

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With all aneurysms keeping Blood pressure down is supposed to be good for not enlarging the problem area

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