Connect
Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
Like
Helpful
HugInterested in more discussions like this? Go to the Aortic Aneurysms Support Group.
Connect
That is a very good question. Do they know any more than other doctors at major medical centers? I get the sense that no one knows a lot about this disorder. My husband has suggested going to Mayo for a second opinion but I don't know if it would be worth it. I'll look forward to hearing if anyone has been to Mayo for this.
No... But I'm thinking about doing this. Problem is that I live all the way in Oregon.
Has anyone been to the Mayo Clinic for a second opinion for celiac artery aneurysm?
Thank you! That really helps me. I appreciate your reply.
I get it. I feel so frustrated also. I just heard about that liagment disease. I feel that I cannot get anyone to take my condition seriously which is ridiculous when it's so serious. Since it's rare and perhaps they don't take know much about it, then send me out of state so I get an accurate diagnosis.
Was your pain chronic, deep and feeling as though you are being squeezed? Mine is that way and also under my ribs on the right side and deep on the side of my right waist.
I hope you get some relief.
Have you thought of calling to get an appointment with Mayo or another big hospital/clinic?
Sometimes I think of doing this.
Best of wishes on your journey to health!
The vascular surgeon said there may be pain in the lower abdomen. My primary doctor says there should be no pain from the aneurysm. However, we can't a reason for the pain. Still kind of a mystery. They were looking for a hernia when they found the aneurysm. No hernia. Nothing seems to help with the pain. It is mostly a low grade pain that flares up on occasion, but nothing unbearable yet.
-
Like -
Helpful -
Hug
1 ReactionIn 2008 a ct showed what several radiologists though was an aneurism in my stomach. One doctor didn’t agree it was an aneurism so he did an angigram and then I was diagnosed with median accurate ligament disease. The doctors would not touch it because it was rare. Last years I had a blocked small intestine, and then was diagnosed with gastroparesis. It is one thing after another with such pain with eating. I am very frustrated that no one will offer to surgically release this artery. Maybe when the appendage attached to this artery bursts someone will do something unless I am gone. It is so frustrating because no one understands.
-
Like -
Helpful -
Hug
1 ReactionCorrection...not biannually, rather biennial
Very similar size to mine. I was diagnosed almost a year ago and also on watch and see. I have fairly consistent abdominal/rib pain. However, my doctor didn't think it was related and I don't understand that. Since I see you say it might or might not be related, I'm curious if that's what your doctor said?
It makes me not trust my vascular surgeon.
What do you do for your pain of I may ask? Nothing seems to help mine.
Not sure where to jump in here. I was diagnosed with a celiac artery aneurysm also. 09/04/018, Mine is 1.25CM. Will be checking it every six months. My MD says surgery would be considered at 1.5CM. Mine seems small compared to others on here. I have low grade lower abdomen pain that may be the aneurysm, not sure. I thought it was a hernia and that's how they found the aneurysm. I will follow. Thanks, Randy.
-
Like -
Helpful -
Hug
1 Reaction