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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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I find it interesting that gut/digestive issues seem to be common among some of us with celiac aneurysms. Yet it doesn’t seem to be recognized as associated. I hope it will help the medical team to investigate that. I am now waiting two years fir my next MRI. Mine is 1.3
How do we know if it is growing?
Sorry for the I phone typos
The UCLA vascular surgeon said every year or two. My CAA was discovered in 2014 and I had it checked again in 2016 and plan another CT scan in a couple of months. It was 1.4 cm in size both times. I wasn’t given any restrictions so it is life as usual. I do have some moderately severe GI issues about 6 months ago that lasted for a few mo this but much improved now. I was told that it was probably unrelated.
Hi @perkman66,
May I ask how often your doctor orders tests to monitor the aneurysm? Did you have any symptoms?
A familiar approach. Monitor and wait. The last conversation I had with my vascular surgeon concluded with “ have it scanned from time to time and it is unlikely that it will ever need repair”
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1 ReactionHello @andreas92103,
That must have been so scary! I’m so glad you reached out to Mayo Clinic Connect – you've found a very supportive community – welcome! Here’s some information about aortic aneurysms:
https://www.mayoclinic.org/diseases-conditions/aortic-aneurysm/symptoms-causes/syc-20369472
I’d like to invite @annac3 to join this conversation; she recently posted about "Growth rate & genetics - Aortic Aneurysm, Ectasia” https://connect.mayoclinic.org/discussion/growth-rate-genetics/
May I ask what your options are, with regard to treatment, @andreas92103? I can imagine you are worried - what concerns you most about CAA?
Hi @itsallaboutmyki,
How is your dad? Are you able to share any updates? I look forward to hearing back from you.
I too diagnosed at 1.5 cm. I have found general consensus just watch and wait until it reaches 2.0. Operate at 2.5cm. Many of these don't change at certain point and you may never have to do anything.
Best Wishes
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1 Reactionsorry to hear of your issues, but the good thing is they found it.. I have a 1.6cm CAA. What I have found in my research is that the decision to operate is all over the place.. some go in at 1.5, some dr.'s want to wait until is gets upwards of 2.5cm or more.. get some more opinions before doing anything.... at present I'm just living my life as I normally would... I also have no symptoms...
Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.
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