Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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Oh Jen, I am really sorry to hear about a new aneurysm. Think positively, if you can. 🙄 At least it's small. How did they discover it? I'm coming up for my first tests for measuring growth since my CA was found last August. Then, it was 1.2 cm. I'm in Florida, so I understand your concern about no hospital beds. Please keep us posted and know that our best thoughts are sent your way. COVID free so far, too! 🤞Mary
I wanted to thank everyone for their stories. i started this blog back when i was diagnosed with the CAA. I was so afraid there were no others with this. I appreciate people being able to open up and tell their stories. I wanted to follow-up on mine from 2016. I continued being monitored by surgeon after embolization with Cat Scan of abdomen yearly. A few days ago I became dizzy. I went to ER, hoping not to be exposed to COVID. Instead I was told I have another aneurysm on a blood vessel. Its located on back of neck right side. The size is .5 by .3 centimeter. Now I am freaking out. Am i a walking time bomb??? The hospital has no beds. So now Im waiting to be seen by neurologists. Keep you all updated. Oh yeah COVID
Free!!!
Hi @tjelderd and welcome to Mayo Clinic Connect. Have you been diagnosed with a Celiac Artery Aneurysm? Would you like to share your experience?
Do they say they would put a stint in?
Factor V Leiden increases your chances of developing blood clots. That is why.
My doctor told me that whenever I have surgery that I must always tell the doctors about the Factor 5 - don't know why it is important but I tell them.
No surgery. Was on meds for 6 months and follow up. Second visit showed a smaller dissection. No idea how that happened.
My doc is awesome. I switched health insurance, he was out of network. I was prepared to pay for my annual follow up visit out of pocket (he is good and expensive).
HE WAIVED HIS FEE!
Indeed, @susangourdlady. Would you mind repeating your experience with Factor V Leiden?
It might have been me.
@tvickey Welcome to Mayo Clinic Connect and thank you for telling your story of celiac artery aneurysm. That explanation by your doctor comparing the dissection to wallpaper is the best I have heard! Did you have surgery then?
I had MALS - median arcuate ligament syndrome- the celiac artery was compressed by a ligament. I’m sure the symptoms are similar. Do you still have your spleen?