Clostridium difficile (Cdiff) and worried about weight loss

Posted by 5chances @5chances, Nov 25, 2020

I have cdiff and just finished 10 days of vancomycin. I’m down to 99lbs. I’m feeling better but very worried about the weight. Suggestions? What about starting back on vitamins?

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@jengrantbate78

Thank you so much. I didn’t realise it would be a problem. I am eating healthily and taking probiotics etc etc, then when I weighed myself I was the same weight as I’d started four weeks ago. I was really emotionally upset so thank you for your encouragement. I really appreciate it. x x

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It will get better and you will put all this behind you. I developed a huge anxiety over cdiff and felt really down and depressed for more than a year. Things will regulate give it time and trust yourself. You will gain weight again but it will take time. Ask away if you have any others questions. We are all here to help each other’s.

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@mhi

It will get better and you will put all this behind you. I developed a huge anxiety over cdiff and felt really down and depressed for more than a year. Things will regulate give it time and trust yourself. You will gain weight again but it will take time. Ask away if you have any others questions. We are all here to help each other’s.

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Thank you so much for the encouragement. It means a lot.😘 x x

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Thank you again, I am still finding my weight an issue, although my doctor said the blood tests were encouraging, but the fact that I had pneumonia back in April and C Diff throughout May, and still have the bug according to my stool test a few weeks ago, he says he has not expected me to put on weight. I am eating as much as I can, but I also have IBS so have to eat little and often….it is discouraging that I cannot yet see my weight improving and am wondering how long it will take? Every day I hope to see an improvement but I seem to be stuck. I’m getting very depressed about it. I am 78, and my GP said older people find it harder to put on weight owing to muscle loss which may be true but doesn’t really help. Thank you again so much for your encouragement and wisdom. Jennifer x x

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@mhi

I too experienced weight loss with my infection and even post infection I still lost weight. Now my weight seems stabilizing but cannot out on any weight that I lost back on. I am struggling with weight gain and was told this will take time. I am taking vitamin D and B12. I still take S.Boulardii and probiotics after 3 months of stopping the antibiotic. I am still experiencing 2 to 3 BM’s per day mostly in the morning and not that formed and funny Colors cannot turn brown. Anybody experienced this loose stool even after CDiff?

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Thank you for this. How long did it take you before you were able to put back some weight.? I caught C Diff in May and had another accurance two weeks after finishing the antibiotic. It’s now July. I had a stool test recently and the C Diff is still in my gut. Does its presence stop weight gain? I’m anxious about it because I’m trying my best to eat well etc but not getting anywhere as my weight hasn’t improved at all.

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@jengrantbate78

Thank you again, I am still finding my weight an issue, although my doctor said the blood tests were encouraging, but the fact that I had pneumonia back in April and C Diff throughout May, and still have the bug according to my stool test a few weeks ago, he says he has not expected me to put on weight. I am eating as much as I can, but I also have IBS so have to eat little and often….it is discouraging that I cannot yet see my weight improving and am wondering how long it will take? Every day I hope to see an improvement but I seem to be stuck. I’m getting very depressed about it. I am 78, and my GP said older people find it harder to put on weight owing to muscle loss which may be true but doesn’t really help. Thank you again so much for your encouragement and wisdom. Jennifer x x

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It will take time it took me over a year and a half to start putting weight on hang in there it will get better. It will take time for your gut to normalize. Just make sure you are eating lots of fiber and I eat lots of sauerkraut.

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Sauerkraut. Do you make your own? I haven’t tried it yet. Maybe i will. Thank you again. 😄

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@jengrantbate78

Sauerkraut. Do you make your own? I haven’t tried it yet. Maybe i will. Thank you again. 😄

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I buy them

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@jengrantbate78

Sauerkraut. Do you make your own? I haven’t tried it yet. Maybe i will. Thank you again. 😄

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If you buy, make sure it is in the refrigerator section and has NO vinegar. Most of the good ones will say “probiotic”. Kefir is also great if you can tolerate it.

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@catherine1234

Hello,
I am replying from almost 10 months ago. I did get retested last fall and it was negative. However, my BMs have never been the same . They have never gone back to what they were before all of this. It is very concerning yet if I continue to worry my anxiety gets the better of me. It seems in the past, I was like most people and would put on weight pretty easily. Thankfully my weight has stabilized but I lose it much faster than I ever remember from before for no apparent reason except that my one BM a day is a lot, even after a year. And since my BMs are never normal I was diagnosed with IBD. It’s not the frequency at all, it is the volume and they are just not normal. The doctor knows all this but no one knows why…I assume my insides got messed up for life. I do not know what else to think. I use probiotics, eat better, drink teas, and attempt to not give in to the anxiety but it is a real struggle. I also clean with bleach a lot more than I ever did before and wash my hands too much probably. Lastly, I am very grateful I was negative after retesting. That is something to be so grateful for and I have to always remind myself to be positive. I hope all those that were kind enough to respond a while ago are doing okay!

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Hi @catherine1234 . Just want to jump in if that’s ok? Try dialing back on probiotic supplements if you’re comfortable with it. I cut them out completely at 3.5 months post vanco (with doctors advice) and for me, things started changing. Less bathroom trips, brain fog started getting better and stools began to improve. I did incorporate pro and prebiotics from foods, took benefiber and purchased some Banatrol. Recovery, healing, and probiotics are not a one size fits all. I’ve seen many in a couple other groups who had to discontinue probiotic use and it helped tremendously.
Hope things start to level out for you. I definitely agree with @mhi in that for some of us it takes quite some time.

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Thank you again @5chances. I’ll check the label. I’m taking loads of probiotics; Sach B , Lacto and a super one (pro bio), plus marine collagen (planet paleo), I’m hanging on in there and hoping that all the good nourishment will start to show on my scales soon…I don’t have a huge appetite so it’s pretty tough to be disciplined, but faced with weight loss we don’t have a choice, and it is depressing when the scales stay the same.. it’s encouraging that others here are experiencing the same struggles. I’m so grateful for your support, all of you. ❤️

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@5chances

Hi @catherine1234 . Just want to jump in if that’s ok? Try dialing back on probiotic supplements if you’re comfortable with it. I cut them out completely at 3.5 months post vanco (with doctors advice) and for me, things started changing. Less bathroom trips, brain fog started getting better and stools began to improve. I did incorporate pro and prebiotics from foods, took benefiber and purchased some Banatrol. Recovery, healing, and probiotics are not a one size fits all. I’ve seen many in a couple other groups who had to discontinue probiotic use and it helped tremendously.
Hope things start to level out for you. I definitely agree with @mhi in that for some of us it takes quite some time.

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Thank you for the comment. I appreciate it. It may be a factor.

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@jengrantbate78

Thank you again @5chances. I’ll check the label. I’m taking loads of probiotics; Sach B , Lacto and a super one (pro bio), plus marine collagen (planet paleo), I’m hanging on in there and hoping that all the good nourishment will start to show on my scales soon…I don’t have a huge appetite so it’s pretty tough to be disciplined, but faced with weight loss we don’t have a choice, and it is depressing when the scales stay the same.. it’s encouraging that others here are experiencing the same struggles. I’m so grateful for your support, all of you. ❤️

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The weight is definitely tough. I was down to 96lbs at 5’4”. Forced myself to eat and lots of high calorie shakes. Would do two shakes a day anywhere from 800-1100 calories per shake. Anything my gut could tolerate that went well with a shake and had nutrients in it I put it in. That’s what really helped to get about 9lbs added in the first 8-9 months post cdiff. I still have trouble holding on to weight this far out but very thankful for the healing.
Keep at it, you’ll get there.

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