Clostridium difficile (Cdiff) and worried about weight loss

Posted by 5chances @5chances, Nov 25, 2020

I have cdiff and just finished 10 days of vancomycin. I’m down to 99lbs. I’m feeling better but very worried about the weight. Suggestions? What about starting back on vitamins?

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Thanks for the reply. I’m glad to hear you are doing a little better after one year. I’m just concerned that I won’t stop losing weight. I’m eating yet when I go to the bathroom it’s so much. Even though it’s only once a day. Thank you for listening.

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@catherine1234

Thanks for the reply. I’m glad to hear you are doing a little better after one year. I’m just concerned that I won’t stop losing weight. I’m eating yet when I go to the bathroom it’s so much. Even though it’s only once a day. Thank you for listening.

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And the doctor does not seem concerned at all. Which makes me confused but at some point I don’t know what to do.

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@catherine1234

And the doctor does not seem concerned at all. Which makes me confused but at some point I don’t know what to do.

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Have you been tested again for c Diff to see if it is gone? It took me over 4 months to stop going a lot to the washroom and yes my bowel movements were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while. Hang in there it is a very difficult time it is hell and don’t wish it on anyone. Even to this day I still sometimes have extra trips to the washroom I am still very careful with my food and eat very very clean. Good luck to you wishing you a speedy recovery and please keep us posted.

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@catherine1234

And the doctor does not seem concerned at all. Which makes me confused but at some point I don’t know what to do.

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@catherine1234 I am coming up on 3 years since my cdiff started. After 7 months of agony and 3 relapses, I finally got the fmt. That seems to have worked so far. With regard to weight, I was only 100 lbs when I got sick and went down to 86 lbs. I have only gained back 3 lbs. I decided a while ago not to worry anymore about the weight cause I think my whole system changed. As long as I don't lose weight, I have accepted it. If you have any questions, please feel free.

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@mhi

Have you been tested again for c Diff to see if it is gone? It took me over 4 months to stop going a lot to the washroom and yes my bowel movements were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while. Hang in there it is a very difficult time it is hell and don’t wish it on anyone. Even to this day I still sometimes have extra trips to the washroom I am still very careful with my food and eat very very clean. Good luck to you wishing you a speedy recovery and please keep us posted.

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Thank you for the response. I appreciate it. You stated, “were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while.” – did you have a relapse or was this statement in reference to AFTER the infection? I have one big volume BM a day, so the doctor seems satisfied. However, the doctor has mention retesting but the doctor does not know if that would do more harm because of my terrible anxiety about all of this. I’m seeing a therapist because I’m constantly worried it may come back. Also, with one large volume, mushy BM ad day could that mean I still have it? I know I’m asking things I should ask the doctor, but I’m super afraid to get on a cycle of antibiotics that may or may not work. Thank you for “listening”. Glad you are doing a little better.

REPLY
@ngorman25

@catherine1234 I am coming up on 3 years since my cdiff started. After 7 months of agony and 3 relapses, I finally got the fmt. That seems to have worked so far. With regard to weight, I was only 100 lbs when I got sick and went down to 86 lbs. I have only gained back 3 lbs. I decided a while ago not to worry anymore about the weight cause I think my whole system changed. As long as I don't lose weight, I have accepted it. If you have any questions, please feel free.

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I’m sorry you had to go through all this- but happy to hear the FMT worked for you. I believe my whole system changed, and mentally it has been very upsetting to me. I don’t know what to think and I have to make some important decisions about getting retested if I keep losing weight. Thank you for listening. Take care.

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@catherine1234

Thank you for the response. I appreciate it. You stated, “were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while.” – did you have a relapse or was this statement in reference to AFTER the infection? I have one big volume BM a day, so the doctor seems satisfied. However, the doctor has mention retesting but the doctor does not know if that would do more harm because of my terrible anxiety about all of this. I’m seeing a therapist because I’m constantly worried it may come back. Also, with one large volume, mushy BM ad day could that mean I still have it? I know I’m asking things I should ask the doctor, but I’m super afraid to get on a cycle of antibiotics that may or may not work. Thank you for “listening”. Glad you are doing a little better.

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I had one relapse and was lucky didn’t get another one although had so many scares over the course of 8 months. I was referencing post c Diff I had big volume stools and multiple times per day. It took a year for my colon to settle and feel somewhat normal again. I wouldn’t say I am back to 100% but much better than when I was sick. I know what you mean the c Diff changed me as well and had to see a therapist for the anxiety I had all over. I lived in hell but hang in there it will pass. Go get tested if your doctor is suggesting it it will make you feel better! Get well and keep us posted!

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@catherine1234

I’m sorry you had to go through all this- but happy to hear the FMT worked for you. I believe my whole system changed, and mentally it has been very upsetting to me. I don’t know what to think and I have to make some important decisions about getting retested if I keep losing weight. Thank you for listening. Take care.

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@catherine1234 I think I would definitely get tested if I started losing weight again. The mental anxiety with cdiff is crazy! If you get tested, at least you can hopefully rule out cdiff. Take care.

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@mhi

I had one relapse and was lucky didn’t get another one although had so many scares over the course of 8 months. I was referencing post c Diff I had big volume stools and multiple times per day. It took a year for my colon to settle and feel somewhat normal again. I wouldn’t say I am back to 100% but much better than when I was sick. I know what you mean the c Diff changed me as well and had to see a therapist for the anxiety I had all over. I lived in hell but hang in there it will pass. Go get tested if your doctor is suggesting it it will make you feel better! Get well and keep us posted!

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Thank you for the reply! I appreciate it. Take care.

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@ngorman25

@catherine1234 I think I would definitely get tested if I started losing weight again. The mental anxiety with cdiff is crazy! If you get tested, at least you can hopefully rule out cdiff. Take care.

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Thank you for the reply. Take care.

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