Clostridium difficile (Cdiff) and worried about weight loss

Posted by 5chances @5chances, Nov 25, 2020

I have cdiff and just finished 10 days of vancomycin. I’m down to 99lbs. I’m feeling better but very worried about the weight. Suggestions? What about starting back on vitamins?

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@mhi

Have you been tested again for c Diff to see if it is gone? It took me over 4 months to stop going a lot to the washroom and yes my bowel movements were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while. Hang in there it is a very difficult time it is hell and don’t wish it on anyone. Even to this day I still sometimes have extra trips to the washroom I am still very careful with my food and eat very very clean. Good luck to you wishing you a speedy recovery and please keep us posted.

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Thank you for the response. I appreciate it. You stated, “were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while.” – did you have a relapse or was this statement in reference to AFTER the infection? I have one big volume BM a day, so the doctor seems satisfied. However, the doctor has mention retesting but the doctor does not know if that would do more harm because of my terrible anxiety about all of this. I’m seeing a therapist because I’m constantly worried it may come back. Also, with one large volume, mushy BM ad day could that mean I still have it? I know I’m asking things I should ask the doctor, but I’m super afraid to get on a cycle of antibiotics that may or may not work. Thank you for “listening”. Glad you are doing a little better.

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@ngorman25

@catherine1234 I am coming up on 3 years since my cdiff started. After 7 months of agony and 3 relapses, I finally got the fmt. That seems to have worked so far. With regard to weight, I was only 100 lbs when I got sick and went down to 86 lbs. I have only gained back 3 lbs. I decided a while ago not to worry anymore about the weight cause I think my whole system changed. As long as I don't lose weight, I have accepted it. If you have any questions, please feel free.

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I’m sorry you had to go through all this- but happy to hear the FMT worked for you. I believe my whole system changed, and mentally it has been very upsetting to me. I don’t know what to think and I have to make some important decisions about getting retested if I keep losing weight. Thank you for listening. Take care.

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@catherine1234

Thank you for the response. I appreciate it. You stated, “were a big volume and that’s why I couldn’t gain weight and was loosing a bit my body wasn’t absorbing all the nutrients and the colon is irritated so it takes a while.” – did you have a relapse or was this statement in reference to AFTER the infection? I have one big volume BM a day, so the doctor seems satisfied. However, the doctor has mention retesting but the doctor does not know if that would do more harm because of my terrible anxiety about all of this. I’m seeing a therapist because I’m constantly worried it may come back. Also, with one large volume, mushy BM ad day could that mean I still have it? I know I’m asking things I should ask the doctor, but I’m super afraid to get on a cycle of antibiotics that may or may not work. Thank you for “listening”. Glad you are doing a little better.

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I had one relapse and was lucky didn’t get another one although had so many scares over the course of 8 months. I was referencing post c Diff I had big volume stools and multiple times per day. It took a year for my colon to settle and feel somewhat normal again. I wouldn’t say I am back to 100% but much better than when I was sick. I know what you mean the c Diff changed me as well and had to see a therapist for the anxiety I had all over. I lived in hell but hang in there it will pass. Go get tested if your doctor is suggesting it it will make you feel better! Get well and keep us posted!

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@catherine1234

I’m sorry you had to go through all this- but happy to hear the FMT worked for you. I believe my whole system changed, and mentally it has been very upsetting to me. I don’t know what to think and I have to make some important decisions about getting retested if I keep losing weight. Thank you for listening. Take care.

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@catherine1234 I think I would definitely get tested if I started losing weight again. The mental anxiety with cdiff is crazy! If you get tested, at least you can hopefully rule out cdiff. Take care.

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@mhi

I had one relapse and was lucky didn’t get another one although had so many scares over the course of 8 months. I was referencing post c Diff I had big volume stools and multiple times per day. It took a year for my colon to settle and feel somewhat normal again. I wouldn’t say I am back to 100% but much better than when I was sick. I know what you mean the c Diff changed me as well and had to see a therapist for the anxiety I had all over. I lived in hell but hang in there it will pass. Go get tested if your doctor is suggesting it it will make you feel better! Get well and keep us posted!

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Thank you for the reply! I appreciate it. Take care.

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@ngorman25

@catherine1234 I think I would definitely get tested if I started losing weight again. The mental anxiety with cdiff is crazy! If you get tested, at least you can hopefully rule out cdiff. Take care.

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Thank you for the reply. Take care.

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@mhi

I too experienced weight loss with my infection and even post infection I still lost weight. Now my weight seems stabilizing but cannot out on any weight that I lost back on. I am struggling with weight gain and was told this will take time. I am taking vitamin D and B12. I still take S.Boulardii and probiotics after 3 months of stopping the antibiotic. I am still experiencing 2 to 3 BM’s per day mostly in the morning and not that formed and funny Colors cannot turn brown. Anybody experienced this loose stool even after CDiff?

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I had C Diff in May and a second a few weeks later. I’m having real difficulties putting on weight although I’m eating very healthily and taking probiotics. Please help!

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I had C Diff mid May then a recurrence a few weeks later. I’m feeling better now but although I’m eating well and sensibly I can’t seem to put on the weight I lost. I’d so appreciate some advice. Thank you.

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@jengrantbate78

I had C Diff mid May then a recurrence a few weeks later. I’m feeling better now but although I’m eating well and sensibly I can’t seem to put on the weight I lost. I’d so appreciate some advice. Thank you.

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Hello I too developed cdiff back in 2020 and had a recurrence. It will take time to put the weight back on it took me over a year and a half and now I gained and trying to loose it back. Hang in there it will get easier and you will put this behind you. Good luck!

REPLY

Hello,
I am replying from almost 10 months ago. I did get retested last fall and it was negative. However, my BMs have never been the same . They have never gone back to what they were before all of this. It is very concerning yet if I continue to worry my anxiety gets the better of me. It seems in the past, I was like most people and would put on weight pretty easily. Thankfully my weight has stabilized but I lose it much faster than I ever remember from before for no apparent reason except that my one BM a day is a lot, even after a year. And since my BMs are never normal I was diagnosed with IBD. It’s not the frequency at all, it is the volume and they are just not normal. The doctor knows all this but no one knows why…I assume my insides got messed up for life. I do not know what else to think. I use probiotics, eat better, drink teas, and attempt to not give in to the anxiety but it is a real struggle. I also clean with bleach a lot more than I ever did before and wash my hands too much probably. Lastly, I am very grateful I was negative after retesting. That is something to be so grateful for and I have to always remind myself to be positive. I hope all those that were kind enough to respond a while ago are doing okay!

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@catherine1234

Hello,
I am replying from almost 10 months ago. I did get retested last fall and it was negative. However, my BMs have never been the same . They have never gone back to what they were before all of this. It is very concerning yet if I continue to worry my anxiety gets the better of me. It seems in the past, I was like most people and would put on weight pretty easily. Thankfully my weight has stabilized but I lose it much faster than I ever remember from before for no apparent reason except that my one BM a day is a lot, even after a year. And since my BMs are never normal I was diagnosed with IBD. It’s not the frequency at all, it is the volume and they are just not normal. The doctor knows all this but no one knows why…I assume my insides got messed up for life. I do not know what else to think. I use probiotics, eat better, drink teas, and attempt to not give in to the anxiety but it is a real struggle. I also clean with bleach a lot more than I ever did before and wash my hands too much probably. Lastly, I am very grateful I was negative after retesting. That is something to be so grateful for and I have to always remind myself to be positive. I hope all those that were kind enough to respond a while ago are doing okay!

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Hang in there it will get better. My BM took over a year to regulate. Keep taking the probiotic and try maybe S. Boulardii for few month it will help and eat fiber. One of the doctor I saw asked me to try Metamucil seems it helps. Drink lots of water and stay away from refined sugar at all costs. I am still gluten free amd dairy free now slowly introducing multigrain bread seems ok so far. Your BM will regulate but it will take time. Good luck!

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@mhi

Hello I too developed cdiff back in 2020 and had a recurrence. It will take time to put the weight back on it took me over a year and a half and now I gained and trying to loose it back. Hang in there it will get easier and you will put this behind you. Good luck!

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Thank you so much. I didn’t realise it would be a problem. I am eating healthily and taking probiotics etc etc, then when I weighed myself I was the same weight as I’d started four weeks ago. I was really emotionally upset so thank you for your encouragement. I really appreciate it. x x

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