Cataract surgery and map dot dystrophy

Posted by bobr1040 @bobr1040, Sep 4 10:22am

I have map-dot dystrophy in both eyes. Last September I had to have my right eye debrided and the epithelial cells removed after a laser procedure. It was one of the most painful experiences I have ever had. I now need cataract surgery in my left eye and asked my ophthalmologist about having a corneal specialist do the surgery because of the potential problems with my dystrophy. He said that he would irrigate the eye more and make sure it stayed moist during the procedure and that a "general" ophthalmologist with a lot of experience doing cataract surgery would have a better chance of not having a negative outcome with the dystrophy than a corneal specialist. He said corneal specialists were good with corneal transplants but they really did not to as many cataract surgeries as an ophthalmologist with a large cataract practice. My Dr. is no longer doing surgeries but his partners are. Does anyone have comments on his advice or experience with this issue. I realize that I might have problems with the dystrophy when I have the surgery but I just want to hedge my bets with the best choice of surgeons.

Hi @bobr1040, I just had cataract surgery on my right eye and have the surgery scheduled for my left eye in a few weeks. I have no medical background or training but I think I would feel the same way as you about wanting a specialist. There is another discussion that talks about Fuchs Dystrophy and members have discussed cataract surgery — Anyone here have Fuch's Dystrophy?: https://connect.mayoclinic.org/discussion/anyone-here-have-fuchs-dystrophy/

@rwinney may have some thoughts on cataract surgery and map dot dystrophy. I'm not sure if you have seen the information on the Genetic and Rare Diseases Information Center site. It might be helpful as it lists links for finding a specialist and other resources. Map-dot-fingerprint dystrophy of cornea is listed under other names for the disease below.

Epithelial basement membrane corneal dystrophy: https://rarediseases.info.nih.gov/diseases/9732/epithelial-basement-membrane-corneal-dystrophy

Are you thinking about getting a second opinion before having the cataract surgery?

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Hi @bobr1040. As @johnbishop mentioned, I may have some thoughts…I have had both cataract surgeries and corneal transplants on both of my eyes. My Cornea Specialist performed my cataract surgery prior to my transplants. He is a highly regarded specialist and without a doubt was qualified for cataract surgery. I'd keep investigating if I were you. Verify your ophthalmologists credentials. How many years have they been performing cataract surgeries? Look for a good cornea specialist in your area and seek a 2nd opinion. Good luck to you!
Rachel

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Thanks #rwinney. I plan to check with a corneal specialist and ask how many cataract surgeries they have done. My opthomologists and his group are very experienced
With cataract surgery

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I have corneal dystrophy in both eyes and cataracts as well. Four years ago I was told I needed to have the dystrophy taken care of before cataract surgery. He kindly told me how painful a process it was so I declined. Well my vision has gotten worse from the cataracts so I went back to him this year. To my surprise, he told me the dystrophy had improved and I don't need the surgery! Tomorrow I am having cataract surgery on my worst eye and am looking forward to being able to read normal size print. My surgeon does both surgeries . He also told me if the dystrophy gets worse after the cataract surgery he can still take care of it. Is it possible for you to find a surgeon who does both?

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@barbbie

I have corneal dystrophy in both eyes and cataracts as well. Four years ago I was told I needed to have the dystrophy taken care of before cataract surgery. He kindly told me how painful a process it was so I declined. Well my vision has gotten worse from the cataracts so I went back to him this year. To my surprise, he told me the dystrophy had improved and I don't need the surgery! Tomorrow I am having cataract surgery on my worst eye and am looking forward to being able to read normal size print. My surgeon does both surgeries . He also told me if the dystrophy gets worse after the cataract surgery he can still take care of it. Is it possible for you to find a surgeon who does both?

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@barbbie Congratulations on having improvement and not needing your cornea dystrophy fixed at this time! That is a great break. I'm really excited for you to have cataract surgery and a whole new world of vision. There's the cherry on top! 😃 Best of luck to you.
Rachel

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@barbbie

I have corneal dystrophy in both eyes and cataracts as well. Four years ago I was told I needed to have the dystrophy taken care of before cataract surgery. He kindly told me how painful a process it was so I declined. Well my vision has gotten worse from the cataracts so I went back to him this year. To my surprise, he told me the dystrophy had improved and I don't need the surgery! Tomorrow I am having cataract surgery on my worst eye and am looking forward to being able to read normal size print. My surgeon does both surgeries . He also told me if the dystrophy gets worse after the cataract surgery he can still take care of it. Is it possible for you to find a surgeon who does both?

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Glad your dystrophy improved. My dystrophy manifested itself on my right eye after I had an ocular lens put on my cornea for a laser ablation procedure a year ago. My surgeon removed the epithelial cells, and as your surgeon said it was very painful. He did my first cataract on the same yet. He no longer does cataract surgery but his partners do, so yes they can do both surgeries. I just finished an annual checkup and the dystrophy in my right eye has healed and is no longer a problem. The left eye still has some dystrophy and I am choosing to wait as you did. I will get a second opinion from a corneal specialist before I have any future surgery.

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@rwinney

Hi @bobr1040. As @johnbishop mentioned, I may have some thoughts…I have had both cataract surgeries and corneal transplants on both of my eyes. My Cornea Specialist performed my cataract surgery prior to my transplants. He is a highly regarded specialist and without a doubt was qualified for cataract surgery. I'd keep investigating if I were you. Verify your ophthalmologists credentials. How many years have they been performing cataract surgeries? Look for a good cornea specialist in your area and seek a 2nd opinion. Good luck to you!
Rachel

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Thanks for the information. My current ophthalmologist and his partners have excellent credentials. They have been doing cataract surgeries for over 30 years. I will be getting a second opinion from a corneal specialist before having cataract surgery on my left eye. That seems to be the recommendation from everyone that has similar medical issues.

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