Caring for yourself after myocarditis/pericarditis diagnosis
Hi all, my husband (36 year-old marathoner) has had two occurrences of myocarditis/pericarditis in the last year. They were almost exactly a year apart.
We’re not exactly sure if it was myocarditis or pericarditis because various doctors and medical professionals told us conflicting things.
The first time he went in his troponin was something over 10,000. This time he recognized the symptoms and went in immediately instead of after a few days. The troponin was about 100. He has been treated with colchicine and ibuprofen both times. At his follow-up last time they didn’t say anything about scarring. I hope they would if there was scarring? I feel like you never know these days whether you’ll be told that kind of information.
Anyways, obviously we’re more concerned now that it has reoccurred. We need to try to take measures to prevent reoccurrence. Are there any suggestions you have going forward? Things we need to be aware of? Dietary changes that should happen? He already drinks a lot of ginger tea which is anti inflammatory. Are there doctors that specialize in myocarditis that we should see?
Forgot to mention that, while we don’t know what caused his problems the first time, the second time he was diagnosed with a campylobacter infection (food poisoning) which he likely got eating out for a work meeting as no one else in our family got sick. Both times he had terrible diarrhea for 4 and 2 days respectively before he had heart symptoms. He was just showing improvement from the infections when his heart symptoms started. The first time he had no other symptoms, the second time he had a mild fever, severe fatigue, sweating, and joint/muscle pain. He has not had the Covid vaccine.
Interested in more discussions like this? Go to the Heart & Blood Health Support Group.
Connect

I would be suspicious about his electrolyte balance. Either that or dehydration, perhaps a combination of the two. Might be worth doing a test to see if he's low/high on electrolytes, especially after days of diarrhea. That, alone, can put a heart into arrhythmia.
@gloaming
When he was actively sick he was definitely low on a few electrolytes. I think calcium was specifically low. I want to say that potassium was in range but at the low end and I think magnesium and sodium were both fine. He’s currently taking electrolytes now that he’s about 3 weeks out from the incident.
His heart function never looked abnormal just for the record. I think his EKG and all the other tests were normal except troponin.
@hobbit Great! Let's hope this is a one-off and that it stays in his history.