C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@sandyabbey

I would like to know what colonized means too.

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@sandyabbey. I believe "colonized" means that a person has spores in them even though they do not necessarily have active C.Diff. I believe the CDC website talks about this. I have had a back to back dose of vancomycin, and now test positive. That may be the lag in spores exiting or I may be colonized. Again (I believe) lots of people in U.S. have some spores in them but I should think "colonized" means more. I know i read somewhere that some people are colonized but never get C.Diff.

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What do you all think and do about issue of contagion? I have little grandkids. From what I read it feels like some people say — don't worry about contagion unless you are really actively having diarrhea because only those who are on antibiotics or immune suppressed would get C. Diff. But other things I have read seem to suggest I could pass spores and it is not so easy as don't worry. My friend who is a nurse practitioner with experience of C.diff says that after I no longer have active diarrhea —-as long as I wash my hands with soap and water after every trip to the bathroom and before i touch any food; and not share my plate or utensils with people then i will not pass spores even if have them in me. EPA publishes a list of household products that are effective against c.diff. Google EPA list K and you will see it.

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I was reading in this article, https://cdifffoundation.org/tag/c-difficile-colonization/ that its possible to get from animals and or the use of organic fertilizer. Although I don't use organic fertilizer, I did use a full pickup load of cow shit from a nearby farm in my garden this past year..I'm going to be paranoid of everything now, I bleach everything and wash my hands as much as possible, even if not using the bathroom. Just really stinks for all of us – in every way!

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It means it is in your body and can come back. Google cdiff and colonized for a better understanding

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I just did an informational board for the hospital where I work. Every you stated is true. You must was hand with soap at least 20 seconds and hand sanitizer doesn’t work. Clorox wipes do not work either. I have small grandchildren as well and I am extra cautious with them. We don’t share food or drinks. I don’t believe you can pass by touch unless you didn’t wash hands. I do no let them sleep in my bed. I wash everything with bleach in my bathroom as well as tub. I also change towels at the end of day and keep mine separate in my bathroom from ones used by others if company comes. I may be a little over cautious but I would rather be safe than sorry.

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Sorry to hear this. I thought the dificid worked for most people. The fat is a big step hope it works. Please keep me up to date. God bless

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@losthope

I just did an informational board for the hospital where I work. Every you stated is true. You must was hand with soap at least 20 seconds and hand sanitizer doesn’t work. Clorox wipes do not work either. I have small grandchildren as well and I am extra cautious with them. We don’t share food or drinks. I don’t believe you can pass by touch unless you didn’t wash hands. I do no let them sleep in my bed. I wash everything with bleach in my bathroom as well as tub. I also change towels at the end of day and keep mine separate in my bathroom from ones used by others if company comes. I may be a little over cautious but I would rather be safe than sorry.

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I read and been told by my nurse practitioner friend that it is very important to clean all flat surfaces, counters, floors in kitchen and bathroom, light switches, door handles, cupboard handles. And to use from the EPA list K products as standard disinfectants don't necessarily work. I bought Bleach-Rite through Amazon. It says it kills C. Diff spores in 4 minutes so i spray it on and let it sit a bit. But I am still anxious about having my little grandkids over.

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C. Diff. or diarrhea, Crohns. FLORASTOR. Saccharomyces boulardii is a tropical species of yeast first isolated from lychee and mangosteen fruit in 1923 by French scientist Henri Boulard. Although early reports described distinct taxonomic, metabolic, and genetic properties, S. boulardii is a strain of S. cerevisiae, sharing >99% genomic

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@pibacher

C. Diff. or diarrhea, Crohns. FLORASTOR. Saccharomyces boulardii is a tropical species of yeast first isolated from lychee and mangosteen fruit in 1923 by French scientist Henri Boulard. Although early reports described distinct taxonomic, metabolic, and genetic properties, S. boulardii is a strain of S. cerevisiae, sharing >99% genomic

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It was a life saver for me when the doctor's didn't believe my chronic diarrhea was caused by a series of antibiotics that I had to take.

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C. Diff. or diarrhea, Crohns. TRY FLORASTOR. Saccharomyces boulardii is a tropical species of yeast first isolated from lychee and mangosteen fruit in 1923 by French scientist Henri Boulard.

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@pibacher

C. Diff. or diarrhea, Crohns. TRY FLORASTOR. Saccharomyces boulardii is a tropical species of yeast first isolated from lychee and mangosteen fruit in 1923 by French scientist Henri Boulard.

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You might want to try in addition papaya and pineapple enzymes (bundled together in 1 pill or chewable) .this was recommended by a dietician I saw. I have decided after 6 weeks they are helping with bloating.

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