C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@pines

@losthope @serenityva With my first bout, I had a lot of "gel like" stools. When reading everything I could about C.diff, I also found articles with photos of exactly what my BM's were like. The "gel like" is actually puss and sloughing of the colon lining and would float in the water. I never in my like thought I would be talking to people about BM's. How things change after 4 bouts of C.diff for me. And yes, they were very narrow, almost pencil like in size.

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I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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@serenityva

@pines This has all been so helpful to me! I also had the gel like puss but didn't know about this website at the time and was really alarmed…My bowels are now starting to look a bit more normal (sigmoid colon removed on Nov 27, with first C-Diff bout in late October and second after the surgery). I started out with Vancomycin and this time I am on the tapered down Vancomycin, which will carry me through the first week in Thailand. I am hoping upon hope that I will get through last week there without a third bout. I am not sure right now about how vigilant I need to be about changing bedsheets, etc., I usually do once a week but am doing every other day now, along with using the medical grade Clorox to wipe things down. So afraid I am going to miss something and re-infect myself. After reading so many posts on this site, I am counting my blessings…grateful that so many of us can find suggestions/answers/ideas on this site. Thanks for sharing your experience, strength,and hope!

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@serenityva If I may ask, why did they remove part of your colon?

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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@guthealth…….. most everyone say they got cdiff from antibiotics but that wasn't the case with me. Have no idea where or how I got it but I did. I might of gotten it the second time from the antibiotics I got on for the first round. Had three rounds of it one after another and then I was done and this has been three or four years ago…….. Good luck to you all……..

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have just posted VERY LOW FRUCTOSE, LOW FODMAPS, AND GLUTEN FREE RECIPES AND DIET in the Fructose Malabsorption discussion section. This might be a help to the C-Diff group. I had a very severe case of viral food poisoning that left me with fructose malabsorption, etc. Take a look – you might find it helpful.

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@ngarriso

I have been through this for 2 years. Praying for it to be over soon

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Finally found a specialist and I am excited to see what he will do. First step is the lab work to verify if it’s CDiff again. Then we’ll go from there. I am feeling good about this doctor

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@ngarriso

Finally found a specialist and I am excited to see what he will do. First step is the lab work to verify if it’s CDiff again. Then we’ll go from there. I am feeling good about this doctor

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@ngarriso Yes, the key is getting a good diagnosis. You have to know what you're fighting. And C.diff spores are the most difficult to kill. They last for months on the surface of things. It's key to use Clorox or some type of bleach on everything around your bathroom. I even wiped down the spray cans and light switches. And hand washing for at least 20 seconds. The nurse practitioner at my GI office told me to sing "happy birthday" every time I was my hands. 🙂 I continue to take Florastor every day as suggested by my gastroenterologist. Please keep us updated how you're doing.

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@pines

@ngarriso Yes, the key is getting a good diagnosis. You have to know what you're fighting. And C.diff spores are the most difficult to kill. They last for months on the surface of things. It's key to use Clorox or some type of bleach on everything around your bathroom. I even wiped down the spray cans and light switches. And hand washing for at least 20 seconds. The nurse practitioner at my GI office told me to sing "happy birthday" every time I was my hands. 🙂 I continue to take Florastor every day as suggested by my gastroenterologist. Please keep us updated how you're doing.

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Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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@ngarriso

Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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It is one big battle but we can win. I pray everyday🙏🏻

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@ngarriso

Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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Does anyone else have a good day where they eat and the next day go to the bathroom all day. Not diarrhea just bowel movements which irritation for hour after. I am thinking it’s something other than the cdiff. Diverticulitis or colitis or irritable bowel. Any thoughts

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

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@losthope

Does anyone else have a good day where they eat and the next day go to the bathroom all day. Not diarrhea just bowel movements which irritation for hour after. I am thinking it’s something other than the cdiff. Diverticulitis or colitis or irritable bowel. Any thoughts

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Yes. Same for me. And a discharge 😢

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@guthealth

Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

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Just don’t know what to eat anymore and weight or lack of is becoming an issue. I too have a discharge and always feel like leaking rectally. Can never wipe enoughand them become irritated. So weird talking about this. Taking probiotics during danactiv kiefer and eating well but just not stoping. Very discouraged

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