C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@losthope

No green stool just small and narrow. I find I just can’t wipe myself enough gel like leaking. Going to talk to GI. The smell has gone but still a lot of bowel movements

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@losthope @serenityva With my first bout, I had a lot of "gel like" stools. When reading everything I could about C.diff, I also found articles with photos of exactly what my BM's were like. The "gel like" is actually puss and sloughing of the colon lining and would float in the water. I never in my like thought I would be talking to people about BM's. How things change after 4 bouts of C.diff for me. And yes, they were very narrow, almost pencil like in size.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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@pines This has all been so helpful to me! I also had the gel like puss but didn't know about this website at the time and was really alarmed…My bowels are now starting to look a bit more normal (sigmoid colon removed on Nov 27, with first C-Diff bout in late October and second after the surgery). I started out with Vancomycin and this time I am on the tapered down Vancomycin, which will carry me through the first week in Thailand. I am hoping upon hope that I will get through last week there without a third bout. I am not sure right now about how vigilant I need to be about changing bedsheets, etc., I usually do once a week but am doing every other day now, along with using the medical grade Clorox to wipe things down. So afraid I am going to miss something and re-infect myself. After reading so many posts on this site, I am counting my blessings…grateful that so many of us can find suggestions/answers/ideas on this site. Thanks for sharing your experience, strength,and hope!

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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It is horrible. I lose hope everyone I feel better I get another bout of stomach issues.

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@pines

@losthope @serenityva With my first bout, I had a lot of "gel like" stools. When reading everything I could about C.diff, I also found articles with photos of exactly what my BM's were like. The "gel like" is actually puss and sloughing of the colon lining and would float in the water. I never in my like thought I would be talking to people about BM's. How things change after 4 bouts of C.diff for me. And yes, they were very narrow, almost pencil like in size.

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I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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@serenityva

@pines This has all been so helpful to me! I also had the gel like puss but didn't know about this website at the time and was really alarmed…My bowels are now starting to look a bit more normal (sigmoid colon removed on Nov 27, with first C-Diff bout in late October and second after the surgery). I started out with Vancomycin and this time I am on the tapered down Vancomycin, which will carry me through the first week in Thailand. I am hoping upon hope that I will get through last week there without a third bout. I am not sure right now about how vigilant I need to be about changing bedsheets, etc., I usually do once a week but am doing every other day now, along with using the medical grade Clorox to wipe things down. So afraid I am going to miss something and re-infect myself. After reading so many posts on this site, I am counting my blessings…grateful that so many of us can find suggestions/answers/ideas on this site. Thanks for sharing your experience, strength,and hope!

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@serenityva If I may ask, why did they remove part of your colon?

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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@serenityva

I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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@serenityva Oh my, Diverticulitis on top of dealing with C.diff. Wishing you safe travels to Thailand. Our niece spent two weeks there this past March. Loved seeing all her beautiful photos. Will you be doing Vanco every other day on your last week of Vanco taper?

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@serenityva

I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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How many years did you have 3 or r bouts a year I had 4 this year but removable was only mentioned if it had gone thru my colon which it hadn’t.

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@losthope

I feel your pain. I to was put on clindamycin and contracted cdiff. I lost 22 pounds in 2 months was hospitalized over thanksgiving. I am on danactiv and havie been on vancomycin for a long time. I had in twice in two months. I too can not tell what to eat. Sometimes ok but meat seems to make it flare up. I was told about fecal transplant and I did research and have decided if not improving by January that is what I will do. Good luck to you.

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@lilosthope

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In reply to @sandyabbey "@lilosthope" + (show)
@sandyabbey

@lilosthope

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I’m in the same situation. I’ve had 4 flare ups. Last weekend I was taken to The hospital by ambulance. I was very dehydrated from going to the bathroom over 20 times. I was passing out. I’m now on Dificid. I have 3 more days on it & I’m nervous because each time I’ve finished a med it comes back in about a week. First flagyl 3 times. Then Vancomycin. Now this Dificid. If I fall this, I’ll have to have the FMT.

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@losthope

I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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I do too. That’s what gave this to me

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@sandyabbey

I do too. That’s what gave this to me

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I too am scared I am finishing Vanco again and today my stomach is crazy. I find that if I eat until I am full the next day my colon is crazy. I do not have diarrhea but formed stool but in piles. This is so upsetting. My next step dificid and if no results FMT I am not optimistic so I am preparing myself for FMT. Good luck to you I hope the med works for you and know that you are not alone in this battle ❤️

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@pines

@serenityva Oh my, Diverticulitis on top of dealing with C.diff. Wishing you safe travels to Thailand. Our niece spent two weeks there this past March. Loved seeing all her beautiful photos. Will you be doing Vanco every other day on your last week of Vanco taper?

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Yes, vancomycin every other day starting while I am there. I am going back to Thailand with a Thai friend, my sister, and 2 other gals…my sister and I are leaving our husbands home this trip…I am hoping no need for any medical care while I am there😘

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@sakota

How many years did you have 3 or r bouts a year I had 4 this year but removable was only mentioned if it had gone thru my colon which it hadn’t.

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I had 3+ bouts a year for about 3 years. Each time my primary care doc wanted me to have surgery, by the time I was ready, a surgeon said wasn’t bad enough…but my Gastroentologist sent me to an excellent one who convinced me it was medically necessary, I was playing w fire…I hope you are getting the help you need, digestive issues are just so tough!

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@serenityva

I had 3+ bouts a year for about 3 years. Each time my primary care doc wanted me to have surgery, by the time I was ready, a surgeon said wasn’t bad enough…but my Gastroentologist sent me to an excellent one who convinced me it was medically necessary, I was playing w fire…I hope you are getting the help you need, digestive issues are just so tough!

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From having cdiff. Did you have surgery. What type😞

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