C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?
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Everyone is different. What works for one may not work for another. Lemon water did absolutely nothing for me.
Went in hospital with diverticulitis and they put me in quarantine because I had tested c diff. Never heard of it before then. I am taking Dr Gundry prebiotic and that has dried up my runny stools
Me too
Yes and I'm miserable.
I'm going through the same thing.
@sandyabbey So, long story short, my insurance company denied me doing the cologuard. When I called my doctor, I asked what do we do now? The girl said, "Dr. said it's either a colonoscopy screening or nothing!" I said then it's nothing and please tell doctor that he had the chance for a colonoscopy screening back in March when I had the colonoscopy fmt! So, I am now looking for a new gastro doctor! Unbelievable!
@ngorman25 How are you doing after your FMT? I still haven't gone in to have the colonoscopy? I need to just buck up and make the appointment. I hate the thought of the clean out. But maybe I can get some answers as to why I have so much gas & stomach pains at night and early morning when I first wake up.
Okay everyone….this C-Diff is a spore that lives in our gut in very small amounts. It is an opportunistic bug that takes over your gut if your lose your natural flora. This is a germ that takes advantage of our small and large bowel that is not functioning correctly. Example: When we take too many antibiotics – the microbe (the good bacteria that line our walls of the gut) are destroyed and eliminated. It takes many months to put back that flora (microbe) depending on how long and how many different antibiotics and other drugs destroyed or altered this flora. Your symptoms are a results of the lack of good microbe.
But to know what truly is taking place in your gut – a gastroenterologist needs to see what is taking place on both ends. I always have the endoscopy (top scope) and the colonscopy (bottom) scope done in the day. This provides the physician with a perfect opportunity to check for any cancer, diseases, twisting or turning of the bowel, pockets and abnormalities in the GI Track. They do biopies, they see and test what they suspect is anything that might be causing you problems including diverticulosis and cancer. IT IS worth the preparation and time to have this done regardless of how inconvenient it may be. It cleans you out. It provides the best view of what is going on inside you. This is the center of how you function and helps to define what direction you need to take. I had my last complete testing including a 24 hour pH probe last year and know that I will always be a carrier for the CDiff spore. But I know how to live with it. It didn't kill me years ago like it does each year to many people. There is no cure for it. We live and learn to work around it. https://www.cdc.gov/media/releases/2015/p0225-clostridium-difficile.html Check this out for the statistics.
I follow a diet that is focused on diverticulosis/diabetes directed and carb counting. I also continue to drink my celery juice in the mornings. Eloise
@pines So far, so good. Fmt was March 22. Have had a couple scares with mucus and nausea and bloating but if that's all I get, I am good! As I wrote earlier, I am done with my gastro doctor. So, that's about it. Haven't posted in a while cause my tablet wasn't working and it was a pain to go on my computer. Can't gain any weight though and I worry about that if I should get sick. 89 pounds is not a whole lot to support any illness. How are you doing?
@ngorman25 , @nurseheadakes I've been doing good. The last and 4th cdiff episode was last October. I wish I would have taken Dificid earlier since that was the antibiotic that worked for me. I've been fortunate that I didn't get any more sinus infections and no need for antibiotics the entire winter. I'm sorry to hear that you're still only 89 pounds. You've really had a difficult time. As for the colonoscopy, yes I will make the appointment. During my last one, the doctor was not able to complete it as we found out I have a tortuous colon. He couldn't make the last turn. So I ended up going through the process again and having it done at the hospital a week later where they could put the contrast inside me and do it that way while I was awake. Since 4 bouts of cdiff, I feel like I've read so many studies, watched so many videos and truly educated myself on this dreadful bacteria/spore.
So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?
I always take my probiotics. My GI tells me to keep taking and it's been 4 years.