C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@annapocono

@pines Interesting that we are on the same program. Reassuring! I will switch to a cheaper cranberry pill when i have more confidence that i am not about to get another UTI. The estrogen cream was Premarin — a large tube. It was expensive but not as expensive as yours. I have a supplemental insurance that must have picked up more of the cost. Why isn't medicare paying for this more completely I wonder. I also do probiotics every single day: kefir, sauerkraut, pickles, miso, tempeh etc and want to drink kombucha for he S. Boulardi but so far makes my stomach too gassy. Hoping that won't be true when i have C. Diff further in the rear view mirror. The infectious disease specialist did not want me to take probiotic pills. Because my immunity is , they say, somewhat compromised by mild RA and MGUS, she worried that the live bacteria in the powerful pills might make me sick. The amount in foods she said is more manageable. It's good to hear your story and that of everyone else. Feels good standing together. anna

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@annapocono I was just curious how you drink your kefir…I'm struggling trying to get it down. I also ordered miso – but to be honest, I don't even know what to do with it! About two weeks after I finished Dificid, I have become gassy, I know longer have D, and I got a negative test result, but I have the gas now that I didn't have before!

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@femalegolfer

@annapocono I was just curious how you drink your kefir…I'm struggling trying to get it down. I also ordered miso – but to be honest, I don't even know what to do with it! About two weeks after I finished Dificid, I have become gassy, I know longer have D, and I got a negative test result, but I have the gas now that I didn't have before!

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@femalegolfer I think the gas must be the results from having Cdiff. I have never had so much gas in my life. And it's worse at night or when I get up in the morning. But I also wonder if the S. Boulardii and probiotics aren't part of the reason. But I'm not going to stop them if they're helping my colon and establishing more good bacteria. I happy the Dificid worked for you. It did for me also when Flagyl and Vancomycin did not. I'm happy we have this site to share all our woes. And as Anna said, "feels good standing together." Sherry

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@pines

@femalegolfer I think the gas must be the results from having Cdiff. I have never had so much gas in my life. And it's worse at night or when I get up in the morning. But I also wonder if the S. Boulardii and probiotics aren't part of the reason. But I'm not going to stop them if they're helping my colon and establishing more good bacteria. I happy the Dificid worked for you. It did for me also when Flagyl and Vancomycin did not. I'm happy we have this site to share all our woes. And as Anna said, "feels good standing together." Sherry

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Try simethicone. It may help some with the gas

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@annapocono

@lorirenee1 I know what you mean about green tea. I read that peppermint tea is good for settling the stomach — and after c. diff my stomach was really queasy and full of gas. So I tried peppermint tea and it has helped lots. I don't love it. I miss coffee a lot but , you know how it is. Priority #1 is getting GI health back. Anna

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I cannot give up my coffee. That is my weakness. Love the stuff. Not much of a tea drinker, I am lucky because I seem to do really well if I just stick to my bone broth. If I skip it, I am sure to have the runs….this life of ours is not easy……. Lori

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@lorirenee1

I cannot give up my coffee. That is my weakness. Love the stuff. Not much of a tea drinker, I am lucky because I seem to do really well if I just stick to my bone broth. If I skip it, I am sure to have the runs….this life of ours is not easy……. Lori

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Try drinking half caf coffee. That didn't bother me

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@femalegolfer

@annapocono I was just curious how you drink your kefir…I'm struggling trying to get it down. I also ordered miso – but to be honest, I don't even know what to do with it! About two weeks after I finished Dificid, I have become gassy, I know longer have D, and I got a negative test result, but I have the gas now that I didn't have before!

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@femalegolfer I drink the kefir for breakfast as a smoothie. Here is the recipe: . One cup kefir, about 1 cup steamed fresh spinach (cooled as I think the heat my kill some of the bacteria in the kefir?), i banana, and about a tablespoon of ground ginger. you could substitute some fresh or frozen berries , or whatever, for the spinach. Just play around with things you might like in a smoothie. Hope it works cuz i gather kefir is really good for us. anna

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@femalegolfer

@annapocono I was just curious how you drink your kefir…I'm struggling trying to get it down. I also ordered miso – but to be honest, I don't even know what to do with it! About two weeks after I finished Dificid, I have become gassy, I know longer have D, and I got a negative test result, but I have the gas now that I didn't have before!

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@femalegolfer I forgot to mention the miso. Make it into a soup. I get the miso paste in a jar. I spoon out a heaping tablespoon and put it in about 1-2 cups boiling water. Then I can add whatever: some sliced mushrooms, or carrots, green onions, dried seaweed, garlic, leeks, whatever. I usually make a kind of asian mixture. Really easy and quick to do.

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@annapocono

@femalegolfer I forgot to mention the miso. Make it into a soup. I get the miso paste in a jar. I spoon out a heaping tablespoon and put it in about 1-2 cups boiling water. Then I can add whatever: some sliced mushrooms, or carrots, green onions, dried seaweed, garlic, leeks, whatever. I usually make a kind of asian mixture. Really easy and quick to do.

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I’ve noticed that many of you are over 70. I’m 46. Any “youngins” out there? Just curious. I think I have read that older people are more susceptible. (Not that any of you are “old.”) 😉

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@nettecook

I’ve noticed that many of you are over 70. I’m 46. Any “youngins” out there? Just curious. I think I have read that older people are more susceptible. (Not that any of you are “old.”) 😉

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@nettecook I have a good friend and her daughter who is a senior in high school got Cdiff last summer. She had a UTI that turned in to a bladder infection. She was on antibiotics for both those and then ended up with Cdiff. I have another friend in her 40's and she got Cdiff three years ago after taking Clindamycin that her dentist gave her. She had two bouts of it. She's the one who told me about taking Dificid which worked for her with her second bout. That's what I took during my 4th bout last October and it worked for me. And I'm knocking on wood as I type this. 🙂

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@pines

@nettecook I have a good friend and her daughter who is a senior in high school got Cdiff last summer. She had a UTI that turned in to a bladder infection. She was on antibiotics for both those and then ended up with Cdiff. I have another friend in her 40's and she got Cdiff three years ago after taking Clindamycin that her dentist gave her. She had two bouts of it. She's the one who told me about taking Dificid which worked for her with her second bout. That's what I took during my 4th bout last October and it worked for me. And I'm knocking on wood as I type this. 🙂

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@pines I just remembered my great niece had it when she was 4. It just strikes anyone.

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@pines

@nettecook I have a good friend and her daughter who is a senior in high school got Cdiff last summer. She had a UTI that turned in to a bladder infection. She was on antibiotics for both those and then ended up with Cdiff. I have another friend in her 40's and she got Cdiff three years ago after taking Clindamycin that her dentist gave her. She had two bouts of it. She's the one who told me about taking Dificid which worked for her with her second bout. That's what I took during my 4th bout last October and it worked for me. And I'm knocking on wood as I type this. 🙂

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My question is have your guts gone back to normal?

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@nettecook

I’ve noticed that many of you are over 70. I’m 46. Any “youngins” out there? Just curious. I think I have read that older people are more susceptible. (Not that any of you are “old.”) 😉

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@nettecook. I just turned 47, good health, the occasional UTI, and strep throat.

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