1. < Infectious Diseases

C-DiFF Recovery.

Posted by mabbs24 @mabbs24, Jan 29 4:57am

It's been almost five months since I got C-Diff from an antibiotic and still having a hard time. I've developed an itchy rash on my scalp that's now spreading to my stomach and lower back. My dermatologist wanted to give me steroids but I can't take them with my Glaucoma. I've tried several drug store products for for the itchiness and rash but nothing seems to help.
I also have waves of just feeling sick and weak during the day. I'm just not myself anymore. Am I not giving it enough time to heal? I'm just looking for some hope!

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karel | @karel | Jan 30 8:25am

WHAT ABOUT A STEROID SHAMPOO LIKE CLOBETASOL, NEED A SCRIPT.

ALSO FOR ITCHING GOOD OLD FASHIONED BENADRYL.

JUST A THOUGHT, FEEL BETTER. I ALSO AM GOING ON 3 MONTHS SINCE I GOT CDIFF, HAD A BOUT 20 YEARS AGO. SUPPOSEDLY IF THIS IS YOUR FIRST BOUT, THE ANTIBIOTIC MIGHT TAKE IT AWAY, HOWEVER FOR ME. I CAUGHT A BOUT OF IT 20 YEARS AGO. NOW DOCTORS TELL ME THAT SINCE THIS IS MY SECOND BOUT, THE TOXIN WILL ALWAYS COME BACK IF I NEED AN ANTIBIOTIC LETS SAY FOR PNEUMONIA. THEY TOLD ME SO EACH TIME, I NEED AN ANTIBIOTIC FOR SOMETHING ELSE. I MUST ALSO TAKE VANCOMYCIN BUT IN A LOWER DOSE WITH THE ANTIBIOTIC AND FOR 5 DAYS AFTER YOU FINISH THE OTHER ANTIBIOTIC TO HELP PREVENT THIS FROM ACTING UP.MANY SAY IT TAKES A LONG TIME , MORE SO IF YOU HAVE OTHER HEALTH ISSUES, GOT TO JUST DO ONE THING A DAY, AND THEN REST, FOR ME THE PAINS IN UPPER AND LOWER STOMACH, ARE HORRENDOUS. AND THE NAUSEA, BUT ZOFRAN HELPS THAT. THEY ALSO HAVE BENTYL FOR STOMACH CRAMPS, AND PROBIOTIC FLORASTER THERE ARE MANY MEDICAL REPORTS, THAT SAY IT HELPS TO TAKE EVERY DAY. HOWEVER ITS LIKE $40 A BOTTLE OF 100, AND YOU TAKE 2 A DAY, I JUST STARTED IT A WEEK AGO, BUT IT IS THE ONLY PROBIOTIC THAT HAS MEDICAL DOCUMENTATION ON IT HELPING CDIFF.

IM A RESPIRATORY THERAPIST, BUT THANK GOD I WORK REMOTELY. MY TOILET IS CLOSE. ITS A TERRIBLE BACTERIA TO HAVE. FEEL BETTER, KAREL

REPLY
1 reply
mabbs24 | @mabbs24 | Jan 31 8:02am
In reply to @karel "WHAT ABOUT A STEROID SHAMPOO LIKE CLOBETASOL, NEED A SCRIPT. ALSO FOR ITCHING GOOD OLD FASHIONED..." + (show)
@karel

WHAT ABOUT A STEROID SHAMPOO LIKE CLOBETASOL, NEED A SCRIPT.

ALSO FOR ITCHING GOOD OLD FASHIONED BENADRYL.

JUST A THOUGHT, FEEL BETTER. I ALSO AM GOING ON 3 MONTHS SINCE I GOT CDIFF, HAD A BOUT 20 YEARS AGO. SUPPOSEDLY IF THIS IS YOUR FIRST BOUT, THE ANTIBIOTIC MIGHT TAKE IT AWAY, HOWEVER FOR ME. I CAUGHT A BOUT OF IT 20 YEARS AGO. NOW DOCTORS TELL ME THAT SINCE THIS IS MY SECOND BOUT, THE TOXIN WILL ALWAYS COME BACK IF I NEED AN ANTIBIOTIC LETS SAY FOR PNEUMONIA. THEY TOLD ME SO EACH TIME, I NEED AN ANTIBIOTIC FOR SOMETHING ELSE. I MUST ALSO TAKE VANCOMYCIN BUT IN A LOWER DOSE WITH THE ANTIBIOTIC AND FOR 5 DAYS AFTER YOU FINISH THE OTHER ANTIBIOTIC TO HELP PREVENT THIS FROM ACTING UP.MANY SAY IT TAKES A LONG TIME , MORE SO IF YOU HAVE OTHER HEALTH ISSUES, GOT TO JUST DO ONE THING A DAY, AND THEN REST, FOR ME THE PAINS IN UPPER AND LOWER STOMACH, ARE HORRENDOUS. AND THE NAUSEA, BUT ZOFRAN HELPS THAT. THEY ALSO HAVE BENTYL FOR STOMACH CRAMPS, AND PROBIOTIC FLORASTER THERE ARE MANY MEDICAL REPORTS, THAT SAY IT HELPS TO TAKE EVERY DAY. HOWEVER ITS LIKE $40 A BOTTLE OF 100, AND YOU TAKE 2 A DAY, I JUST STARTED IT A WEEK AGO, BUT IT IS THE ONLY PROBIOTIC THAT HAS MEDICAL DOCUMENTATION ON IT HELPING CDIFF.

IM A RESPIRATORY THERAPIST, BUT THANK GOD I WORK REMOTELY. MY TOILET IS CLOSE. ITS A TERRIBLE BACTERIA TO HAVE. FEEL BETTER, KAREL

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Thank you for your response Karel. I got C-Diff from an antibiotic that I didn't think I needed but I trusted my doctor. I never knew you could get it from an antibiotic. I took a course of Vancomycin and then had a recurrence and was put on a taper. It hasn't come back and I pray that it never will! I hope in time I will improve. One day at a time. I pray for healing for you, Karel. Feel Better, Mary

REPLY
miriaml | @miriaml | Feb 8 11:22pm

You probably have a fungal infection.
Are you on antibiotics for cdiff such as vancomycin?
I had the same condition but it was sores on my head, face, chest and back. The vancomycin was the cause, I was allergic and I itched like crazy.
I use dial soap, the yellow bar that’s antibacterial.
I was also prescribed metronidazole gel and tacrolimus ointment.
Cdiff makes you tired and nauseous besides, diarrhea and other symptoms.
I’m on a third round of antibiotics called difficid. My infectious disease doctor prescribed ondansetron for nausea.
If you are having these bad side effects please contact your infectious disease doctor or make an appointment with one.
I hope you feel better!

REPLY
miriaml | @miriaml | Feb 8 11:28pm

You can also use a nizoral shampoo or CLN shampoo or sulfur 8 shampoo for your scalp.

REPLY
miriaml | @miriaml | Feb 8 11:33pm

My apologies! Also, a good probiotic like florastor is imperative for your gut.
All of my good flora is wiped out.
I got an antibiotic resistant infection during one of my spinal surgeries.
I was on IV antibiotics for a year.
I developed Cdiff from the strong IV antibiotics.
I also take oil of oregano gel tablets, manuka honey, zinc and garlic gel tablets.
Good luck!

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