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C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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@pixie1960 I didn't get physically sick from the prep, but it is a terrible ordeal! I know I lost a lot of the fmt, because I just couldn't hold onto it! But, I guess I retained enough cause I went home the same day and saw an immediate difference! I haven't looked back since.
@ngorman25 That sure is encouraging, and it's helpful to be able to talk with someone who has actually been through the actual procedure. I'm so glad you have done well and saw an immediate difference! It would be such a blessing to be completely rid of the c-diff for good!
Do you take any sort of Probiotic now?
Thank you for your time, you have been extremely helpful!
@pixie1960 I alternate 2 different probiotics. One is visbiome, a medical probiotic, a bit expensive. The second one is saccharomyces boulardii. After I had the fmt, my gastro told me I didn't need to keep taking probiotics. But I wasn't convinced and asked my primary doctor and she said to continue. So I have!
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1 Reaction@ngorman25 I see. I don't blame you for not stopping your Probiotics! Stick with what works! I wish you continued good, improving health! And I thank you so much for sharing you FMT Colonoscopy experience with me. Very helpful. I may think of another question or two later if you don't mind. Thanks again!
@pixie1960 Ask me anything at all! Let me know when you are scheduled. Keep me posted! I wish you all the best! You know, when I first got cdiff, I and my family had never heard of it. I felt very fortunate to find this group. I think it saved my sanity! I got valuable information here and spoke with a lot of people going through the same thing. Very helpful. I hope you do ok. Take care..
@ngorman25 I certainly will let you know when I'm scheduled and keep you posted. I understand what you mean. My Family has the best of intentions but have no clue what C-diff is. I thank you so much for showing interest in my health issue. I feel encouraged that I really CAN get better and hopefully live a normal life again. This disease gets really debilitating. Thank you for your time and understanding!!
My GI doctor is sending me to get a C scan tomorrow because so far no one has diagnosed what I have. I have many of the same problems a lot of you have mentioned.
I spent 6 days in the hospital back in April with no help.
I feel terrible all the time. I have lost over 40 pounds. I wish someone could help.
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1 ReactionI certainly pray for you to be healed and get an answer that would be helpful to you. These symptoms/problems get to be about more than a person can deal with. Let us know what you find out. God bless and heal you.
ngorman25 So the countdown begins! I am Scheduled for my FMT Colonoscopy on 1-30-23. I have a while to think it over, but right now my thinking is I'm ready to put this Nightmare behind me and hopefully live a normal life again. Thank you for the encouragement and helpful info, and being willing to answer questions ! Take care.
@pixie1960 That is great news! I wish you the very best outcome. I will be eagerly waiting to hear from you. Will this be your first colonoscopy? Cause if it is, the prep is miserable.