C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4 10:42am

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

@dpete19743 I also had cdiff from September, 2018 thru March, 2019 in which I relapsed 4 times and took vancomycin each time. Then I got the fmt. I have been ok since that time. I am 72 years old but I did not notice any difference with regard to my memory or any confusion before or after cdiff.

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@pines

@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

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I had cdiff undetected or should I say not diagnosed for 4 months. I was hospitalized after losing 28pounds and failing vancomycin. I took it after going home for 3 months and two relapses. My hi would not give me dificid. I have begun gaining weight back but always have leaking like I can’t wipe myself enough and always empty out at least four to five times a day causing rectal bleeding when I wipe. Has anyone else had these issues. I have been like this for a year and get no answers or suggestions on how to get better. I sometimes get anxiety because I am so sick of this and want to health back. I too have taken florastor

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I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

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I have had a few memory problems lately, but I’m not sure if it was the Cdiff. It did so many things to me that I’ll never be over. I got mine from taking clindamycin for a sinus infection. I had 4 relapses in 3 months. During my 3rd relapse I was so sick that I had to go to the hospital by ambulance. Diarrhea probably 30 times in one night. It was constantly & I vomited at least 5 times. I passed out from weakness. My GI decided to try Deficid since I had failed vancomycin 2 times. I thought I had it made. I went 32 days then another relapse. I was down to 85 pounds. I then had an FMT. It helped me immensely. I still hurt at times & still have tummy issues. I’m limited to what I can eat without suffering. I’m try to make the best if it. My GI calls it remission because we will never be free of the spores & are more susceptible to settling off those horrible spores. I do seem to have trouble with things like spelling & I was the best at that. I seem to forget names of songs & movies as soon as I hear them. Just things like that. It’s a horrible monster to deal with. I stay anxious all the time that’s it will come back. It’s been almost a year since my FMT & I’m relieved just to be alive.

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@judik

I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

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@judik I had an fmt almost a year ago, and my gastroenterologist at the time told me I no longer needed to take probiotics. When I mentioned this to my primary doctor, she looked at me like why wouldn't you? So, I have continued to take florastor and visbiome, (formerly vsl#3. I don't see the harm in continuing them.

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I'm having memory issues, but everyone tells me it's due to my age, stress, and not getting enough sleep or eating well. It's becoming very scary because I can remember some things, and I want to forget what happened in 2012 but that is very vivid like it happened yesterday. I can't remember what happened these last two years, and the doctors tell me everything is fine, and it's all in my head.

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@david33

I'm having memory issues, but everyone tells me it's due to my age, stress, and not getting enough sleep or eating well. It's becoming very scary because I can remember some things, and I want to forget what happened in 2012 but that is very vivid like it happened yesterday. I can't remember what happened these last two years, and the doctors tell me everything is fine, and it's all in my head.

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I had cdiff five times til they did a transplant and I never recovered, can't remember simple words, for instance, the other day I fixed pancakes and as I sat to eat I couldn't remember the word pancake. I sat there scared and my husband looked at me not knowing what to say. This is everyday and to make matters worse I have a brain tumor but they say that isn't causing this. Right in the middle of a conversation I can't remember what I was talking about, total black out. I have had heart attacks, cancer, fibro, CFS and now this brain tumor facing surgery and Cdiff is stuck in my head forever. I have told every doc and the neurologists say it is vestibular migraines. I don't trust any of them

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