C Difficile: Do you have memory issues, disoriention, confusion?

I have not had C. Diff but I had chronic autoimmune inflammation of the gastrointestinal system. However, after being treated with immunosuppressive medication for several months I found myself with memory and cognitive issues- very scary for me. I assume it was secondary to the chronic stress of being ill plus the treatment. I had several infections then too. I started doing crossword puzzles etc. Now, 3-4 years later I feel my cognitive function restored, have some problem remembering names, words etc. and my brain gets tired.

I had c.diff for a year, only physical symptoms.

I have pain what seems like all the time if I eat, or don't eat. I'm sick of c diff

@dpete19743 I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Drug Companies and Doctors Battle Over the Future of Fecal Transplants (NY Times) https://www.nytimes.com/2019/03/03/health/fecal-transplants-fda-microbiome.html

Thank you so much

@dpete19743 I also had cdiff from September, 2018 thru March, 2019 in which I relapsed 4 times and took vancomycin each time. Then I got the fmt. I have been ok since that time. I am 72 years old but I did not notice any difference with regard to my memory or any confusion before or after cdiff.

I had cdiff undetected or should I say not diagnosed for 4 months. I was hospitalized after losing 28pounds and failing vancomycin. I took it after going home for 3 months and two relapses. My hi would not give me dificid. I have begun gaining weight back but always have leaking like I can’t wipe myself enough and always empty out at least four to five times a day causing rectal bleeding when I wipe. Has anyone else had these issues. I have been like this for a year and get no answers or suggestions on how to get better. I sometimes get anxiety because I am so sick of this and want to health back. I too have taken florastor

I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

I have had a few memory problems lately, but I’m not sure if it was the Cdiff. It did so many things to me that I’ll never be over. I got mine from taking clindamycin for a sinus infection. I had 4 relapses in 3 months. During my 3rd relapse I was so sick that I had to go to the hospital by ambulance. Diarrhea probably 30 times in one night. It was constantly & I vomited at least 5 times. I passed out from weakness. My GI decided to try Deficid since I had failed vancomycin 2 times. I thought I had it made. I went 32 days then another relapse. I was down to 85 pounds. I then had an FMT. It helped me immensely. I still hurt at times & still have tummy issues. I’m limited to what I can eat without suffering. I’m try to make the best if it. My GI calls it remission because we will never be free of the spores & are more susceptible to settling off those horrible spores. I do seem to have trouble with things like spelling & I was the best at that. I seem to forget names of songs & movies as soon as I hear them. Just things like that. It’s a horrible monster to deal with. I stay anxious all the time that’s it will come back. It’s been almost a year since my FMT & I’m relieved just to be alive.

@judik I had an fmt almost a year ago, and my gastroenterologist at the time told me I no longer needed to take probiotics. When I mentioned this to my primary doctor, she looked at me like why wouldn't you? So, I have continued to take florastor and visbiome, (formerly vsl#3. I don't see the harm in continuing them.