C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4, 2020

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

I have pain what seems like all the time if I eat, or don't eat. I'm sick of c diff

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@dpete19743

Mayo clinic never told me it was suspended. The FDA has never approved of FMT I believe the donor stools from the deaths that occurred have been suspended and can't be used in future transplants. I tried to post the link to the article but this sight won't allow it

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@dpete19743 I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Drug Companies and Doctors Battle Over the Future of Fecal Transplants (NY Times) https://www.nytimes.com/2019/03/03/health/fecal-transplants-fda-microbiome.html

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Thank you so much

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@dpete19743 I also had cdiff from September, 2018 thru March, 2019 in which I relapsed 4 times and took vancomycin each time. Then I got the fmt. I have been ok since that time. I am 72 years old but I did not notice any difference with regard to my memory or any confusion before or after cdiff.

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@pines

@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

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I had cdiff undetected or should I say not diagnosed for 4 months. I was hospitalized after losing 28pounds and failing vancomycin. I took it after going home for 3 months and two relapses. My hi would not give me dificid. I have begun gaining weight back but always have leaking like I can’t wipe myself enough and always empty out at least four to five times a day causing rectal bleeding when I wipe. Has anyone else had these issues. I have been like this for a year and get no answers or suggestions on how to get better. I sometimes get anxiety because I am so sick of this and want to health back. I too have taken florastor

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I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

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I have had a few memory problems lately, but I’m not sure if it was the Cdiff. It did so many things to me that I’ll never be over. I got mine from taking clindamycin for a sinus infection. I had 4 relapses in 3 months. During my 3rd relapse I was so sick that I had to go to the hospital by ambulance. Diarrhea probably 30 times in one night. It was constantly & I vomited at least 5 times. I passed out from weakness. My GI decided to try Deficid since I had failed vancomycin 2 times. I thought I had it made. I went 32 days then another relapse. I was down to 85 pounds. I then had an FMT. It helped me immensely. I still hurt at times & still have tummy issues. I’m limited to what I can eat without suffering. I’m try to make the best if it. My GI calls it remission because we will never be free of the spores & are more susceptible to settling off those horrible spores. I do seem to have trouble with things like spelling & I was the best at that. I seem to forget names of songs & movies as soon as I hear them. Just things like that. It’s a horrible monster to deal with. I stay anxious all the time that’s it will come back. It’s been almost a year since my FMT & I’m relieved just to be alive.

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@judik

I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

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@judik I had an fmt almost a year ago, and my gastroenterologist at the time told me I no longer needed to take probiotics. When I mentioned this to my primary doctor, she looked at me like why wouldn't you? So, I have continued to take florastor and visbiome, (formerly vsl#3. I don't see the harm in continuing them.

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I'm having memory issues, but everyone tells me it's due to my age, stress, and not getting enough sleep or eating well. It's becoming very scary because I can remember some things, and I want to forget what happened in 2012 but that is very vivid like it happened yesterday. I can't remember what happened these last two years, and the doctors tell me everything is fine, and it's all in my head.

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@david33

I'm having memory issues, but everyone tells me it's due to my age, stress, and not getting enough sleep or eating well. It's becoming very scary because I can remember some things, and I want to forget what happened in 2012 but that is very vivid like it happened yesterday. I can't remember what happened these last two years, and the doctors tell me everything is fine, and it's all in my head.

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I had cdiff five times til they did a transplant and I never recovered, can't remember simple words, for instance, the other day I fixed pancakes and as I sat to eat I couldn't remember the word pancake. I sat there scared and my husband looked at me not knowing what to say. This is everyday and to make matters worse I have a brain tumor but they say that isn't causing this. Right in the middle of a conversation I can't remember what I was talking about, total black out. I have had heart attacks, cancer, fibro, CFS and now this brain tumor facing surgery and Cdiff is stuck in my head forever. I have told every doc and the neurologists say it is vestibular migraines. I don't trust any of them

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I didn’t have memory loss but when ever my stomach acts up I get massive anxiety and feel very strange and have to cry to relieve. I have anxiety a lot since cdiff but it happens sometimes for no reason and it is so bad that I just don’t know what to do or very it is happening. Cdiff has changed my life but not for the better😓

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@losthope

I didn’t have memory loss but when ever my stomach acts up I get massive anxiety and feel very strange and have to cry to relieve. I have anxiety a lot since cdiff but it happens sometimes for no reason and it is so bad that I just don’t know what to do or very it is happening. Cdiff has changed my life but not for the better😓

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I too still feel anxious and have bad anxiety since I have had cdiff it changed me. And I think I have IBS eveytime my stomach act up I feel cdiff is coming back which is now 5 months after stopping antibiotic don’t think it will come back after that long but it is stuck in my head 🙁 I cannot even gain my weight back it changes your body forever and still dealing with frequent bowel movements.

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