C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4, 2020

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

I didn't have any issues other than the weight loss and belly pain. I was on antibiotics for roughly 29 days for a UTI that was misdiagnosed. I developed C-diff as a result of this and lost 20 pounds in less than 2 weeks. I was placed on vancomycin for approximately 60 days and that took care of the problem. I was also taking Bio-K plus probiotics for approximately 3 months and now take Florastor daily and have had no further issues. I hope this helps. I know how miserable C-diff is.

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Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

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@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

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If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.

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@pines

@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

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I also have severe cognitive issues since my last and worst episode in 2017 when I was septic. Can you expand on yours because I feel like I’m slipping away. Honestly.

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@colleenyoung

Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

Jump to this post

I finally had the FMT after not being able to cure c-diff, I searched for a doc that would do it, very expensive and insurance wouldn't cover a donor but a gastro doc right where I live did it for me calling it a colonoscopy, he provided the donor. I don't think I ever recovered then recently I had to go on antibiotics again and nearly fell apart from worry, I have taken florastor for five years but after this last five different antibiotics I took another probiotic, visbiome, I think it was called, very expensive but I didn't care, still worried.

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@colleenyoung

Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

Jump to this post

I didn't notice my memory issues it was pointed out to me by friends, family, my attorney and now one of my clients. According to all of them I have been showing memory issues just in the past year. I can't remember some conversations, dates, times and places. Hope this helps if you need more detail I can share more.

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@adaugherty06

If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.

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Mayo clinic never told me it was suspended. The FDA has never approved of FMT I believe the donor stools from the deaths that occurred have been suspended and can't be used in future transplants. I tried to post the link to the article but this sight won't allow it

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@adaugherty06

I also have severe cognitive issues since my last and worst episode in 2017 when I was septic. Can you expand on yours because I feel like I’m slipping away. Honestly.

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I know the feeling Im not remembering dates, times, conversations that take place, apparently I repeat questions I ask people not even realizing it. Apparently my memory has become bad enough people around me are noticing. Hope that helps and my prayers are with you

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@sarasally2

I finally had the FMT after not being able to cure c-diff, I searched for a doc that would do it, very expensive and insurance wouldn't cover a donor but a gastro doc right where I live did it for me calling it a colonoscopy, he provided the donor. I don't think I ever recovered then recently I had to go on antibiotics again and nearly fell apart from worry, I have taken florastor for five years but after this last five different antibiotics I took another probiotic, visbiome, I think it was called, very expensive but I didn't care, still worried.

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I'm so sorry to hear all that at least we can go through this together and get ideas and advice from others

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I have not had C. Diff but I had chronic autoimmune inflammation of the gastrointestinal system. However, after being treated with immunosuppressive medication for several months I found myself with memory and cognitive issues- very scary for me. I assume it was secondary to the chronic stress of being ill plus the treatment. I had several infections then too. I started doing crossword puzzles etc. Now, 3-4 years later I feel my cognitive function restored, have some problem remembering names, words etc. and my brain gets tired.

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I had c.diff for a year, only physical symptoms.

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