C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4 10:42am

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

I didn't have any issues other than the weight loss and belly pain. I was on antibiotics for roughly 29 days for a UTI that was misdiagnosed. I developed C-diff as a result of this and lost 20 pounds in less than 2 weeks. I was placed on vancomycin for approximately 60 days and that took care of the problem. I was also taking Bio-K plus probiotics for approximately 3 months and now take Florastor daily and have had no further issues. I hope this helps. I know how miserable C-diff is.

Liked by dpete19743

REPLY

Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

Liked by dpete19743

REPLY

@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

Liked by dpete19743

REPLY

If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.

Liked by dpete19743

REPLY
@pines

@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.

Jump to this post

I also have severe cognitive issues since my last and worst episode in 2017 when I was septic. Can you expand on yours because I feel like I’m slipping away. Honestly.

Liked by dpete19743

REPLY
@colleenyoung

Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

Jump to this post

I finally had the FMT after not being able to cure c-diff, I searched for a doc that would do it, very expensive and insurance wouldn't cover a donor but a gastro doc right where I live did it for me calling it a colonoscopy, he provided the donor. I don't think I ever recovered then recently I had to go on antibiotics again and nearly fell apart from worry, I have taken florastor for five years but after this last five different antibiotics I took another probiotic, visbiome, I think it was called, very expensive but I didn't care, still worried.

Liked by dpete19743

REPLY
@colleenyoung

Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.

Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?

Jump to this post

I didn't notice my memory issues it was pointed out to me by friends, family, my attorney and now one of my clients. According to all of them I have been showing memory issues just in the past year. I can't remember some conversations, dates, times and places. Hope this helps if you need more detail I can share more.

REPLY
@adaugherty06

If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.

Jump to this post

Mayo clinic never told me it was suspended. The FDA has never approved of FMT I believe the donor stools from the deaths that occurred have been suspended and can't be used in future transplants. I tried to post the link to the article but this sight won't allow it

REPLY
@adaugherty06

I also have severe cognitive issues since my last and worst episode in 2017 when I was septic. Can you expand on yours because I feel like I’m slipping away. Honestly.

Jump to this post

I know the feeling Im not remembering dates, times, conversations that take place, apparently I repeat questions I ask people not even realizing it. Apparently my memory has become bad enough people around me are noticing. Hope that helps and my prayers are with you

REPLY
@sarasally2

I finally had the FMT after not being able to cure c-diff, I searched for a doc that would do it, very expensive and insurance wouldn't cover a donor but a gastro doc right where I live did it for me calling it a colonoscopy, he provided the donor. I don't think I ever recovered then recently I had to go on antibiotics again and nearly fell apart from worry, I have taken florastor for five years but after this last five different antibiotics I took another probiotic, visbiome, I think it was called, very expensive but I didn't care, still worried.

Jump to this post

I'm so sorry to hear all that at least we can go through this together and get ideas and advice from others

REPLY

I have not had C. Diff but I had chronic autoimmune inflammation of the gastrointestinal system. However, after being treated with immunosuppressive medication for several months I found myself with memory and cognitive issues- very scary for me. I assume it was secondary to the chronic stress of being ill plus the treatment. I had several infections then too. I started doing crossword puzzles etc. Now, 3-4 years later I feel my cognitive function restored, have some problem remembering names, words etc. and my brain gets tired.

Liked by dpete19743

REPLY

I had c.diff for a year, only physical symptoms.

Liked by dpete19743

REPLY

I have pain what seems like all the time if I eat, or don't eat. I'm sick of c diff

Liked by dpete19743

REPLY
@dpete19743

Mayo clinic never told me it was suspended. The FDA has never approved of FMT I believe the donor stools from the deaths that occurred have been suspended and can't be used in future transplants. I tried to post the link to the article but this sight won't allow it

Jump to this post

@dpete19743 I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Drug Companies and Doctors Battle Over the Future of Fecal Transplants (NY Times) https://www.nytimes.com/2019/03/03/health/fecal-transplants-fda-microbiome.html

REPLY

Thank you so much

REPLY
Please login or register to post a reply.