C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4, 2020

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

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I'm sorry to hear you are having so much trouble and the Meds didnt help.
I am afraid I could be getting Cdiff again. Having the symptoms. I told my Daughter yesterday I think I am heading for a Colostomy. Probably the best solution as I cant seem to ever fully get over this. I certainly wish you well on the 21st and beyond, and pray this solves your issues! I am 63.

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Hi I’m 24 and for about a month and a half I have been dealing with Cdiff. I had a spinal injury back in 2015 when I was 18 and because of that I have to use a catheter and do my own bowel program to use the restroom. I battle with UTI’s because of that and that’s what caused what the doctors to believe is Cdiff. (Originally they said Colitis) I’m now coming up to the end of my Vancomycin and I still haven’t had a solid stool yet. It’s not diarrhea but is very soft and barely keeps shape. Due to me not being able to use the restroom or being able to feel the need to go to the restroom this has been a big problem. I do not have the ability to pass stool or prevent stool from passing on my own before the Cdiff. So now it’s a constant cycle of me changing clothes and taking a shower to clean myself. It makes extremely difficult to work my 24 hour shifts at the fire department. When I’m not at work, I’m in my room terrified to stand up. So I guess I’m asking if it’s normal to have this type of very soft stool while ending Vancomycin. I have read almost every post and comment on this thread and honestly it has made me worry more. Any thoughts is appreciated.

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I’m so sorry to hear, about your troubles. It is such a difficult sickness to go through, physically and mentally. I went through several trials of vanco at first but couldn’t kick the cdiff. It kept recurring. Try eating a low fodmap diet for a few weeks after the vanco and see if that helps making poop more solid. Definitely stay on top of this and get tested again after a few weeks. Cdiff sheds for a while and makes the stools loose. I lived on rice cakes, rice and peanut butter for a long while.

Also, ask your GI about Dificid. That medication saved my life and got rid of the cdiff. I was at toxic levels over and over again for a year and a half with Vancomyacin until I took Dificid. I have read that first line treatment should be Dificid now. I am not sure why vanco is still being prescribed for so many people suffering with cdiff. I think it is insurance and money based. Dificid can be expensive but it works.

Now I have occasional flare ups and the GI calls it post IBS infection. But thankfully the cdiff is gone. Even after taking Dificid my poop wasn’t solid for a month. I still suffer from loose stools, 6 months out, and when that happens I immediately switch to a low fodmap diet for a while to stop the flare. It is so scary to go through i am glad you found this support group. Good luck and I hope you have a speedy recovery ❤️‍🩹

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@brigettehatescdiff

I’m so sorry to hear, about your troubles. It is such a difficult sickness to go through, physically and mentally. I went through several trials of vanco at first but couldn’t kick the cdiff. It kept recurring. Try eating a low fodmap diet for a few weeks after the vanco and see if that helps making poop more solid. Definitely stay on top of this and get tested again after a few weeks. Cdiff sheds for a while and makes the stools loose. I lived on rice cakes, rice and peanut butter for a long while.

Also, ask your GI about Dificid. That medication saved my life and got rid of the cdiff. I was at toxic levels over and over again for a year and a half with Vancomyacin until I took Dificid. I have read that first line treatment should be Dificid now. I am not sure why vanco is still being prescribed for so many people suffering with cdiff. I think it is insurance and money based. Dificid can be expensive but it works.

Now I have occasional flare ups and the GI calls it post IBS infection. But thankfully the cdiff is gone. Even after taking Dificid my poop wasn’t solid for a month. I still suffer from loose stools, 6 months out, and when that happens I immediately switch to a low fodmap diet for a while to stop the flare. It is so scary to go through i am glad you found this support group. Good luck and I hope you have a speedy recovery ❤️‍🩹

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Thank you! Looks like I’m gonna be having rice! I’m really just wanting this to be over.

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@dpete19743

I'm so sorry to hear all that at least we can go through this together and get ideas and advice from others

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I have had my 2nd relapse of C-Diff and live in constant apprehension now. It's terrible to live this way. I'm so grateful to have come upon all of you this morning. It's pretty lonely out here. I completely empathize.

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