C Difficile: Do you have memory issues, disoriention, confusion?

Posted by dpete19743 @dpete19743, Jan 4, 2020

I have c diff and have had it for almost 2 years I am finally getting an FMT however here is my question.

Do c diff patients have memory issues, disoriention, confusion?? Details and any info will be helpful

@mhi

I too still feel anxious and have bad anxiety since I have had cdiff it changed me. And I think I have IBS eveytime my stomach act up I feel cdiff is coming back which is now 5 months after stopping antibiotic don’t think it will come back after that long but it is stuck in my head 🙁 I cannot even gain my weight back it changes your body forever and still dealing with frequent bowel movements.

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I did gain wait back plus more. I can’t eat red meat or certain fruit. It is horrible. I too have fear of it coming back especially if I go o an antibiotic. I have reflux bad and can’t take anything because it also can trigger the cdiff. I work in healthcare and studied cdiff and there is so many factors also unknown.

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How long did it take you to gain the weight back? How long it took for your bowel movements to regulate? And how long you took probiotic for? Do you still take them? Yes I have the fear of going on antibiotic. I don’t think it can come back after few months if you don’t take antibiotics no?

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@judik

I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.

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Hi,
I am a Research Coordinator for a C-diff study in Lancaster, PA.

“ Probiotics & diet: No studies have shown that taking probiotics after FMT improves the chance of successful treatment. If you do want to take a probiotic, be sure to ask your doctor for recommendations. Generally, diets high in fiber seem to support healthier bacteria.”
https://www.emoryhealthcare.org/ui/pdfs/ejch-physician-forms/post-fmt-patient-guide.pdf

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@sswonger and @losthope, how interesting that you both have been or are involved in research about C. difficile. Great to have you in this discussion.

@sswonger, the info you provided is in reference to probiotics after fecal microbiota transplantation (FMT) and helps answer @judik's question about taking probiotics after FMT or not.

@losthope, did you take probiotics while on antibiotics? How long?

@mhi, if I understand correctly, you're asking about the effectiveness of taking probiotics after treatment with antibiotics. In this video, Mayo Clinic gastroenterologist Dr. Joseph Murray, discusses the benefits of probiotics on Mayo Clinic Radio, namely:
– Probiotic dietary supplements
– Difference between prebiotics and probiotics
– Fecal microbiota transplant
– Mayo Clinic's ongoing initiative in the area of microbiome research

Skip to 15:00 to hear Dr. Murray talk about C difficile.

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@colleenyoung

@sswonger and @losthope, how interesting that you both have been or are involved in research about C. difficile. Great to have you in this discussion.

@sswonger, the info you provided is in reference to probiotics after fecal microbiota transplantation (FMT) and helps answer @judik's question about taking probiotics after FMT or not.

@losthope, did you take probiotics while on antibiotics? How long?

@mhi, if I understand correctly, you're asking about the effectiveness of taking probiotics after treatment with antibiotics. In this video, Mayo Clinic gastroenterologist Dr. Joseph Murray, discusses the benefits of probiotics on Mayo Clinic Radio, namely:
– Probiotic dietary supplements
– Difference between prebiotics and probiotics
– Fecal microbiota transplant
– Mayo Clinic's ongoing initiative in the area of microbiome research

Skip to 15:00 to hear Dr. Murray talk about C difficile.

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Thank you for sharing this appreciate it!

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@colleenyoung

@dpete19743 I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Drug Companies and Doctors Battle Over the Future of Fecal Transplants (NY Times) https://www.nytimes.com/2019/03/03/health/fecal-transplants-fda-microbiome.html

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Excellent article. Finch is the company our office is doing the clinical trial with. Hoping to hear from FDA soon. I have a waiting list of Pt’s waiting….

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