Burning after total knee replacement

Posted by jetter @jetter, Feb 12, 2019

why does it burn after total replacement?

@nellieo

I am 8 1/2 mos post tkr and I am having a lot of burning and stinging.

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Hi @nellieo – Welcome to Connect! I think you will find a lot of kindred souls here. I had a TKR in 2017 and another one in January 2019. Thankfully, I didn't have that burning and stinging sensation but I've read of many people who did. I'm so sorry that you are still having it after nearly 9 months. That must be really frustrating. Here is a thread that might interest you:
https://connect.mayoclinic.org/discussion/unable-to-sleep-after-tkr/
Can you share more about how often you have the burning and what triggers it? Also, have you found anything that helps alleviate the sensation?
Wishing you the best!

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I am 8 1/2 mos post tkr and I am having a lot of burning and stinging.

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@nellieo

I am 8 1/2 mos post tkr and I am having a lot of burning and stinging.

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Hello @nellieo, I'd like to add my welcome to @debbraw's. You may notice I moved your discussion and combined it with discussion already titled "burning after total knee replacement." I did this so you could meet some of the other members already discussing the topic you are asking about. If you are replying by email, you can find the new location of your discussion and other posts on this topic by clicking on VIEW & REPLY.

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@nellieo

I am 8 1/2 mos post tkr and I am having a lot of burning and stinging.

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I had a tkr one year ago May 2018. Around month 6 I started developing stinging, achy, burning feeling on knee area. I had been referred to PT where therapist attempted to deal with pain to no avail. Surgeon referred me to a Physiatrist. Saw Physiatrist and diagnosed with CRPS (Complex regional pain syndrome) a nerve condition. Had two treatments where they inject the knee with numbing agent. It has definitely made a difference as I don’t feel the degree of pain I had prior to shots. Knee not 100% but pretty close as I still have a small amount of discomfort. Seek another opinion other then surgeon as his work is done with knee replacement. Hope this helps

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I had my first knee replacement November 2016; Rehab was a trip to hell. It didn't help that I live alone. The other knee was done 10 months later (October 2017 and had a much easier rehab. However, both knees have a burning sensation from 2-3 inches below the knee to just above the knee. It's not in the knee cap area but more to the sides. It wasn't bad until this past fall, so almost 2 years after 2nd replacement. I can walk better than I can stand in one place, so if I'm standing in one place or barely moving around, I have to sit down every 10-15 minutes at best. I fear neuropathy, but don't understand why it wold start that long after surgery. I still have pinching pain especially in the latest knee…certain positions make it feel like a vice grip is around the knee cap. Anyone have any answer to this?

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I had similar symptoms after tkr and was diagnosed with CRPS by Physiatrist. CRPS is a nerve condition. Maybe seek second opinion.

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I have had burning in my knee now for 9 years, been to 11 doctors, they all scratch their heads and say there is nothing they can do. I average 2-3 hours of sleep a night due to the constant pain. Just for kicks and giggles I placed electrodes on my knee, one on the inside and one on the outside and using my volt meter, it showed 2.85 volts. I thought that couldn't be right, so I placed them on the good knee, .05 volts. I now have to research the idea of chemical reactions with the metal components of the knee, I will start with salt and go from there. I have found only antibiotics to relieve the pain, but my doctor said that he could not prescribe antibiotics for no reason, I guess he is a smart man, but that is quite questionable. I hope you can find relief, I am still searching.

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Hi @calahulabuddy – Welcome to Connect! That must be terribly frustrating to have pain like that for years and years. I've had two knee replacements and thankfully have not had anything like that kind of pain. Here is a link that may be of interest to you:
https://connect.mayoclinic.org/discussion/has-anyone-had-a-tight-band-feeling-after-total-knee-replacement/
Meantime, I'm wondering: did you have a TKR 9 years ago? If so, have any of the doctors talked about doing a revision?

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@calahulabuddy

I have had burning in my knee now for 9 years, been to 11 doctors, they all scratch their heads and say there is nothing they can do. I average 2-3 hours of sleep a night due to the constant pain. Just for kicks and giggles I placed electrodes on my knee, one on the inside and one on the outside and using my volt meter, it showed 2.85 volts. I thought that couldn't be right, so I placed them on the good knee, .05 volts. I now have to research the idea of chemical reactions with the metal components of the knee, I will start with salt and go from there. I have found only antibiotics to relieve the pain, but my doctor said that he could not prescribe antibiotics for no reason, I guess he is a smart man, but that is quite questionable. I hope you can find relief, I am still searching.

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WOW…that's an interesting find-using the volt meter. I've wondered about doing acupuncture or reflexology to relieve the burning. Wondering if anyone has tried that with any success. My left knee is 3 1/2 years post op and my right knee is 2 years 8 months. Both burn …I feel it all the time except when in a recliner or laying down (I always have a small pillow between my knees because they don't like each other at night). Standing still or just moving around the kitchen is the worst. They are better if I walk distances but I feel every step. I also have tightness/a band feeling if I sit any length of time and start walking. I have an appointment with a neurologist in a 3 1/2 weeks.

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Hi @grammygolfs – I have had two TKRs and I did acupuncture with both. It was very helpful will pain relief and getting off the strong meds. Full disclosure: I did not have the burning pain or the IT band tightness. Still, it could not hurt. I would try it and see if it gives you any relief. Have you used acupuncture before for any other conditions?

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@debbraw

Hi @calahulabuddy – Welcome to Connect! That must be terribly frustrating to have pain like that for years and years. I've had two knee replacements and thankfully have not had anything like that kind of pain. Here is a link that may be of interest to you:
https://connect.mayoclinic.org/discussion/has-anyone-had-a-tight-band-feeling-after-total-knee-replacement/
Meantime, I'm wondering: did you have a TKR 9 years ago? If so, have any of the doctors talked about doing a revision?

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My injury was covered by workers comp and 5 years after my injury date they canceled my case after seeing a physiatrist for 15 minutes. I had to get a lawyer to reopen my case and since the TKR the dr's that I have seen say they wouldn't touch me with a ten foot pole. They don't make as much money since they only get what WC will pay, but they also have to pay my lawyer 20% of every bill. WC insurance have set me up with an appointment at the Mayo clinic, with a wrist doctor, don't know how that would help, and then again with Salt Lake with a doctor that specializes in elbows. I am seeing a pattern here, WC doesn't want to pay out any more and they don't care if I am any better. The only complaint I have with the knee is the constant pain, otherwise I have great travel, it is one of the sport knees, so I can bend it almost as far as my good knee. I tried my tens unit on it a few nights ago, one pad on each side of the knee in the areas of most pain. Ran it for several hours at a setting that was just tolerable, it numbed the pain enough to where I was able to get 7 hours of sleep. It however did not work as well the next night, but I still was able to get 5 hours. I have sought out doctors who do revisions, they all say they won't see me.

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@grammygolfs

WOW…that's an interesting find-using the volt meter. I've wondered about doing acupuncture or reflexology to relieve the burning. Wondering if anyone has tried that with any success. My left knee is 3 1/2 years post op and my right knee is 2 years 8 months. Both burn …I feel it all the time except when in a recliner or laying down (I always have a small pillow between my knees because they don't like each other at night). Standing still or just moving around the kitchen is the worst. They are better if I walk distances but I feel every step. I also have tightness/a band feeling if I sit any length of time and start walking. I have an appointment with a neurologist in a 3 1/2 weeks.

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Hi @grammygolfs, you are having just the opposite reaction to the burning, I have to keep moving or the burning increases until I can't bare it, once I move it is like a release, but then starts to increase when I stop. It sounds to me like maybe you do have a cyst, which I have been told sometimes happens, mostly behind the knee, which is where the nerves are. So as you apply pressure to the joint, fluid causes more pressure on the cyst and then applies pressure to the nerves. I hope your visit is successful and you find some answers.

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Hi @calahulabuddy – I can't understand. Why do the doctors say they won't see you about a revision? Does it have to do with insurance or is it something they are seeing in your xrays? This must be so difficult. I'm sorry you are going through so much difficulty.

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With acupuncture, how long did you have to wait before going?

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Hi @katclub – I waited 5 weeks after surgery to go to acupuncture, but I asked my acupuncture guy about timing and he said I could actually have started just after surgery. He would have avoided the surgery site of course. Have you done acupuncture before for any other reason?

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