Hi everyone. My beautiful mother is about 3 years into her Parkinson’s diagnosis. She had been doing quite well, with symptoms being not much more than a nuisance. In the last few months things have gotten significantly worse and I’m searching for direction as we haven’t found answers with her doctors. I do have a request into Mayo for an appointment and am waiting to hear back – but in the meantime, am hopeful someone in this group might have some feedback. She is dealing with severe shortness of breath. She describes it as a very heavy feeling. She’ll get extremely weak and almost like her legs are going to give out on her. When she lays down, it seems to get a little better, but it takes quite a bit of time before it does. It’s been happening more and more frequently. I don’t know if something is physically preventing her from getting air or if she is having anxiety/panic attacks – or both, with the former causing the latter and magnifying it. Also – she has lost her appetite and has gotten very thin. She eats like a bird and we can’t seem to get her to eat more. I don’t want to force her as there is obviously something preventing her from wanting to take in food. She says she feels very full – but is just getting to be skin and bones. She has dealt with constipation, so perhaps that is part of the problem? I’m really at a loss and am just so worried about her. Feeling so helpless and am just praying that we get into Mayo. In the meantime, does anyone have experience with these symptoms? (Her other symptoms have been shuffled walking, but she is still very mobile and able to do everything, some memory/confusion issues – but not severe, hallucinations from the medication – but not severe, very tired, very mild tremor – not severe at all.
Thank you in advance – greatly appreciate any feedback you have to offer. Also very happy to have found this group as I’m feeling so alone in this. Love my mom and would move heaven and earth to keep her feeling good.