Body vibrations when falling asleep or waking?

Posted by cricketlips @cricketlips, Jun 2, 2022

After many google searches for the reason I feel vibration in my head, shoulder and arm just before falling asleep and waking, I found nothing that satisfactorily explained it. Of course anxiety seems to be a common explanation but there was nothing specific enough to help me. I am currently reading Incognito by David Eagleman. It discusses the functioning of the brain as an organ. This morning, going through my routine to get ready for work, I thought of a way to understand the vibrations. Similar to the hypnic jerks we experience occasionally just before we fall asleep, I think the vibrations are intended to arouse me to stay vigilant. Which is the fight or flight mechanism in action. So there is the anxiety connection. Originating in the amygdala. I was thinking Parkinson's or MS but my symptoms don't indicate those conditions, thankfully. It seems counterintuitive to be anxious and sleeping at the same time but the brain can do that. The cerebral cortex sleeps but the life support systems of the brain must stay online, obviously. If you thought you were in danger, sleeping would put you at risk but at some point sleep becomes absolutely necessary. I think the vibrations I have been experiencing are caused by my sympathetic nervous system and not a neurologic disease. Thankfully !

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For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.

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I should add that the thing that has been MOST helpful is physical therapy, with someone that understands neuromuscular connections. The vibrations are not just in your brain, they are real, especially in areas with clusters of autonomic nerves, like the chest, neck, etc. These will eventually cause your muscles to spasm. I have PT weekly and we work on the muscle spasms, because lessening that greatly reduces the severity of how the vibrations feel at night. You can also take cyclobenzadrine or other muscle spasm relaxants. I also take a combination of fast-acting propanolol and melatonin to help me fall asleep. Alpha- and beta-blockers in general have been helpful to many people in reducing CNS overactivation. Anti-inflammatory supplements or things like low-dose naltrexone can help with inflammation - but as long as we continue to fight spike proteins and other COVID residues there will likely continue to be inflammation. I follow a keto diet, eliminate sugar and alcohol, get as much physical activity as I can, stretch and do yoga, and all these things help to a degree. I take fish oil supplements, Vitamin B12, circumin/ginger/turmeric all to reduce inflammation. Basically we are likely to be stuck with this for some years, but the difference between a milder version of this and the worse version is substantial and worth trying to keep in check as much as possible.

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@aashiana

I should add that the thing that has been MOST helpful is physical therapy, with someone that understands neuromuscular connections. The vibrations are not just in your brain, they are real, especially in areas with clusters of autonomic nerves, like the chest, neck, etc. These will eventually cause your muscles to spasm. I have PT weekly and we work on the muscle spasms, because lessening that greatly reduces the severity of how the vibrations feel at night. You can also take cyclobenzadrine or other muscle spasm relaxants. I also take a combination of fast-acting propanolol and melatonin to help me fall asleep. Alpha- and beta-blockers in general have been helpful to many people in reducing CNS overactivation. Anti-inflammatory supplements or things like low-dose naltrexone can help with inflammation - but as long as we continue to fight spike proteins and other COVID residues there will likely continue to be inflammation. I follow a keto diet, eliminate sugar and alcohol, get as much physical activity as I can, stretch and do yoga, and all these things help to a degree. I take fish oil supplements, Vitamin B12, circumin/ginger/turmeric all to reduce inflammation. Basically we are likely to be stuck with this for some years, but the difference between a milder version of this and the worse version is substantial and worth trying to keep in check as much as possible.

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I'm hoping your symptoms eventually fade and things return to normal. I have had the vibrations for over 4 months but it seems as if they have been getting better over the last week or so? Not sure if this will continue or I am imaging the less noticeable vibrations but I am optimistic they may come to an end eventually. I truly wish that I wouldn't have rushed out to get my second booster within 2 weeks of getting over Covid. I think that might have been a mistake as I'm wondering if my system simply went into overdrive to fight the virus. BTW, I also took Paxlovid when I first was diagnosed and that did make me feel better within hours it seemed but not sure if that has anything to do with my bodies reaction as well? Guess I'll never know? Best to all!

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@aashiana

For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.

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Really interesting! Thank you for this info! I had been on mirtazipine for several months and that actually seemed to help. I have tried going off the mirtazipine to see if my body can rebalance. The side effects of the drug for me are difficult but compared to no sleep, anxiety, vibrations etc. they may be worth it. I’m going to try CBD during the day to see if that helps. My diet is pretty clean. Not keto, but very low sugar and supplements that support nerve/brain health. Interesting about the possible Covid connection. I never knowingly had Covid but did take 3 vaccines. I’m not anti-vax. However, I’m curious about that connection.
Hoping we can all heal from this!

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@krismar

@rubyinparadise, I had a hysterectomy and both ovaries removed. Also due to breast cancer, I take anastrozole (eliminates estrogen production). I do use estradiol though. I was thinking my internal vibrations may be due to lack of hormones.

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I too am female, 57, vegetarian and vaccinated but my vibrations started long before Covid. Mine happen all night but I am only aware of them when waking. My wife tells me about them when it gets bad. I have sleep apnea but use a cpap. I take an ssri for depression. I also have auto immune disorders causing full body inflammation. Also, have cervical bulging discs and had lumbar discectomy 18 years ago. I am going to look into the pinched nerve theory as my neck is causing me more pain and migraines. My doctor told me the tremors were nothing to worry about but something must be causing them. They are not unpleasant but it is distressing.

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I too have internal vibrations. I have had them since 2019. I turned 64 in October. I first thought it was result of injury to phrenic nerve after swallowing a huge gulp of air with morning meds and had pain for 2 days in upper mid sternum. I also have vertigo and have lay in bed for 5 hours with NO vibrations. They only occur AFTER I go to sleep. I have been keeping journal and rating them on a scale 1-10. They move around in my torso area and at times settle in the pelvic area. I do have major issues with spinal cord and low back and cervical spine pain. My neurologist seems to think it's from over stimulation in my brain and wants me to try Fycompa...pediatric dosage. I'm having the second half of sleep study Jan 18th to wear a nose cpap. The apnea isn't severe, the Dr. said, but now I see where sleep deprivation can contribute to the vibrations. It's just more annoying than anything except when they are level 8 or higher. I have to sit on edge of bed for a bit. If they are strong, I can't go back to sleep and so I get up. I can place my hand on my side and actually feel the vibrations. I have also worn a heart monitor to see if it might pick them up but it didn't. I'm hoping the nose cpap and/medication helps. I'd love to go more than 1 night without having vibrations. I haven't slept past 5:00 in 10 years, some because of job but I have been up as early as 2:00 with vibrations. My symptoms don't fit other conditions and vice versa.

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@kelic

Have you lost a loved one around the time the vibrations started? I have vibrations too (heightened nerve tingle or electrical type energy feeling that's vibrating on the body and becomes more intense heightens within the body also) which started after my husband unexpectedly passed ( it's almost been two years ago now). I don't get them every night or all night when it does happen- appx. every 4-6 weeks time frame. I can be asleep and become aware that's it's happening, or it happens right when I'm drifting off to sleep and it fully awakens me. Sometimes it's so intense it's like a tickling feeling which I can't handle 'cause I'm very ticklish (right at my sides and my husband used to tickle me and laugh watching me laugh and beg him to stop). When I do move into another position the vibrations will stop, but sometimes will come back shortly after I go back to sleep ( also will stop when fully awake, but have felt it lightly and briefly when awake a few times). I feel like my husband visits me the reason I get these vibrations. The first time I felt it I was asleep my husband called out to me loud and clear, I didn't awaken but just became aware, then I felt this tingling vibrations and hugging feeling it all was so strong and intense. I used to be scared too (sometimes I still am), just because I felt that I would "see" or experience something I wasn't ready for... By the way I'm 49 years old with no health problems. I'm a licensed practical nurse, and haven't been vaccinated for COVID ( had COVID once July 18, 2022; feeling like I had a cold/sinus congestion for three days, temp 102.0 F.

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connect.mayoclinic.org/comment/796994/

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@aashiana

I should add that the thing that has been MOST helpful is physical therapy, with someone that understands neuromuscular connections. The vibrations are not just in your brain, they are real, especially in areas with clusters of autonomic nerves, like the chest, neck, etc. These will eventually cause your muscles to spasm. I have PT weekly and we work on the muscle spasms, because lessening that greatly reduces the severity of how the vibrations feel at night. You can also take cyclobenzadrine or other muscle spasm relaxants. I also take a combination of fast-acting propanolol and melatonin to help me fall asleep. Alpha- and beta-blockers in general have been helpful to many people in reducing CNS overactivation. Anti-inflammatory supplements or things like low-dose naltrexone can help with inflammation - but as long as we continue to fight spike proteins and other COVID residues there will likely continue to be inflammation. I follow a keto diet, eliminate sugar and alcohol, get as much physical activity as I can, stretch and do yoga, and all these things help to a degree. I take fish oil supplements, Vitamin B12, circumin/ginger/turmeric all to reduce inflammation. Basically we are likely to be stuck with this for some years, but the difference between a milder version of this and the worse version is substantial and worth trying to keep in check as much as possible.

Jump to this post

I'm getting off the benzodiazpines. They haven't helped my vibrations at all but I was taking them for back issues. I also am on xanax, another they recommended for vibrations, but only 1 mg daily. Had the worse case of withdrawals at Thanksgiving when different doctor didn't call them in for over a week(had to change because of insurance issue, same institution though). I was in hospital 2 times in one day. It was horrible. The nurse manager ended up calling them in and I have an attorney. Thr flexeril I stopped all together, was only taking that at night, and I'm now on 3/4 mg daily of xanax instead of 1 mg. I'll taper down and get off period. I didn't eat for 5 days, didn't sleep for over 48 hours. I physically could NOT go to sleep and after reading up on the withdrawal, it appears to be a lifesaving mechanism. I will ONLY take my pain meds that I've gone from every 6 hrs to 7 hrs. I take vitamin supplements also and metoprolol beta blocker which it says is supposed to help with the vibrations but it doesn't. I've read all I can about the Fycompa and I'll try that. Not happy that it has a half life of 105 hours though. Still researching meds.
Good luck with your situation.

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@aashiana

For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.

Jump to this post

I did not get the covid vaccines nor have I had covid. I have never had the flu shot nor have I ever had the flu. I had the strange smell issues also( men's cheap cologne) but attributed it to severe sinusitis (requiring antibiotics) and the xanax withdrawal. I'm having mild laundry detergent smells now but I've also cut down on the xanax so it could be a sort of mini withdrawal thing but I can live with this.

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@edornton

I am having a very similar condition. About 9 months ago I started having a vibrating sensation in my upper chest around the area of my collar bones. It would only happen when I was just drifting off to sleep, when briefly waking up during the night, or when waking up. It would never happen when I was awake. It scared me at first so much that I was afraid to even go to bed but over time I realized it didn't seem life threatening and just accepted that it would happen. It happens every single night with no exception. Sometimes it is continuous all night long or comes and goes throughout the night. Having some medical background I ruled out a heart problem (EKG, Stress Test and Chest X ray); most medical issues (normal Hemotology, Chem, B-12 , Blood Glucose an Blood Pressure) and any supplements or medications. I have seen my Doctor and he doesn't know what it is. It happens no matter what position I am in. It always it is same rate but intensity varies during the night and night to night. I can reduce the intensity by stretching and changing position but it only goes away completely when I am fully wake up. I am a female 74 years old, still playing soccer so active, retired veterinarian and not under any stress. Got my third Covid vaccination shortly before signs started and have never had Covid that I know of. I would love to find out what this is and be in any study if one was available.

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Hi I developed the exact same symptoms that you describe I am 56 yrs old. 3-4 weeks after 3rd booster It all started. All doctors are perplexed, however I have a strong feeling it was the vaccine that did this to me, rather than Covid. I have had colds and the flu and nothing like this has ever happened to me before. I also have hypothyroidism It looks as though the government forgot to do tests or studies on immuno compromised people.
One of the largest oops moments in medical history. The “ RNA “ vaccine did not agree with my body. every day I read of more and more people coming forward with the same issues. The United Kingdom has had similar issues and has revisited the effectiveness and safety of the vaccine Studies are ongoing.
To be quite honest I would never have taking the vaccine if I knew this was going to happen.
I would welcome COVID-19 in comparison to the inner vibrations and tremors any day. Hopefully vaccine producers will investigate this and compensate victims, They know this is happening but are told to shush about it because vaccine equals money and lawsuits equal loss of money.
I was all for the vaccine as they said it would save lives however it has completely ruined mine. Hopefully we can get some answers and help unlike the screenwriter “Heidi Ferrer” Who took her own life. For many the symptoms are just too unbearable. RIP ❤️❤️❤️ Heidi Many people have told me they thought the vaccine was created too fast.
Thanks but No more Government needles for me, I’ll take my chances with Covid. Two of my doctors agree with me, While others have no comment In fear of backlash.
Sound familiar? These are just a few : many visits to the emergency room, EEG, stress test, Holter monitor, CT scan, sleep study, several EKGs, blood tests normal, MRI next.
help me out Moderna and I’ll Give you my house, my truck, my bank account,,, whatever you want please make this go away I beg of you. I too will be willing to join any study

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