Body itching

Posted by Retired teacher @specialteacher, Jul 31, 2018

I’ve had almost unbearable itching for over 3 months. Was prescribed hydroxyzine, but it doesn’t seem to help. It started when I was in the ER having a very frightening allergic reaction. I was given an epinephrine iv, and a breathing treatment. My legs started to shake uncontrollably. Then I couldn’t breathe, was given an injection of something at that point. I’m taking benadryl and paxil but don’t know how much longer I can deal with this.

@12061948

Yes I had the tests you mentioned that showed all the
Environmental allergies in September 2016 and the results were I was severely allergic to everything in the environment dust mites Sage just everything severely allergic So I did the drops For a little while but I was just having such bad itching still and pain It showed staph allergy candida allergy just everything was very very high
But with the drops I was breaking out all over my stomach. Stopped using the drops in Dec 2016
Just been a very confusing situation since 2013. In 2011
We were doing a lot of remodeling in an old house that had a lot of dust moldy old antique furniture in etc. that have been closed up for years it was my husband’s father’s home so we were trying to restore it Staining floors with polyurethane in I’ll kind of stuff of cleaning cleaning cleaning Then I was also working on Estate Since that was executrix for my aunt will. I was cleaning a commercial building that had been closed up for a while with a lot of mold and exposure to where some rodents
Had been. So anyway in the end of last year 2017 which would be the winter months I went and had an allergy testing by another allergist and he did extensive testing on my back ( The first testing was on my arms ) Hec did a trial run on my back at first test not much reaction and then He had me come back on my Friday and did more extensive testing for environmental allergies and it was just very small reaction to couple of weeds and beef Dr. just said take some anti histamines.
So I followed up with another allergist. Who reviewed his testing said that his test were good and just take zyretc or Claritin. So I tried each of those not together just trying to figure out which one would work the best and each time I would try them I had severe pain in my bladder area and I would have to sleep with a heating pad over my bladder at night So I quit taking these drugs and I guess thet helped I don’t remember but the pain was not worth it When I tell the doctors this They just look at me like I’m nuts I’m beginning to wonder if I am
So my spine Doctor (I have spine issues Cervical disc)Who is also holistic had a urine test done with Great Plains Labs showed. I had the highest levels of mold exposure that they had ever seen plus
Plastics and lead showed up in my body according to this urine test so I guess it was accurate I don’t know anymore what to believe. So I think I found a Doctor Who was a professor at Baylor University here in Houston Texas that does The test you have mentioned the five day test
Is that called that sure test ? I looked it up and it checked for so many different chemicals and metals and stuff
Also in August 2014 I got a mouth guard because I had such chronic pain in my neck my dentist said it was TMD
My hives started in January 2015. Also got dental work done during this period. Of course involves the glue that they use for the crowns and the metal that they Use underneath that white porcelain they put on top. Insurance won’t pay for all Pocelain crowns.
We also bought new furniture from lazy boy and a new truck. So I thought maybe I was allergic to something in those so I thought maybe I was allergic to something in those (It’s Ironic while waiting for a doctor to come in I could hear the conversation from another patient in the other room A woman she was so loud she was saying that all the sudden she’s broke out in hives and she’s changed her detergent and her new sheets and do this and that. just changed everything she’s got all these hives all of a sudden and she was wondering if it was a new furniture she had bought. She was saying that when I To pick it up they said it wasn’t in yet that it was at the docks and Shecthought that they meant the docs at the store and they said no at the port of Houston so what they were telling her is that her furniture was coming from a foreign country which she was not aware of and she was wondering if something in her furniture had made her break out in the hives She was saying that her husband was not effected.!!! Which is the case here my husband doesn’t seem to be effectrd !!! ). The lady was so loud I could hear every word she was saying Of course I don’t know whatever happened to her )
My immune system was already weak maybe from exposure to some anabiotic‘s three different times that I was given from 2014 to 2015. I had reactions to it each time I took it which was Cipro
All the doctors keep saying my thyroid test is fine. my hormones are fine go to the Neurologist tell me
I’m fine as far as EMG testing. One Neurologist the last I just saw told me that I have Tardive dyskinesia.
That’s a reaction to a drug Which could’ve been the anabiotic I was given three different times
And all this the last few years I have not had a cold or flu or anything like that. Just chronic pain from head to toe
Legs burning feet burn body burns doctors tell me I don’t have MS I think they’ve ruled out fibromyalgia
(My ANA is already normal. All my test are normal all the time. Except I have SIBO with his very high this last time it was 81 for the Methane.) Brain mri good
During this time Period i was also using chemicals for something called the Rasberry crazy ants. Which had invaded our rental property that we have and our home. Finally after three summers of trying to control them myself I called exterminating company and they sprayed with some kind a new chemical that Texas A&M had approved for the crazy ant and it worked. The whole area where we live was being effected by these horrible ants.
They don’t bite you they just are attracted to electrical in your home or your business thet get into the switch plates. Computer equipment etc. And when you kill them the live ones just pile up on top of the dead ones and it looks like a pileof rust. They were horrible Plus I’ve used gallons and gallons of Roundup over the years for my home in our rental property grounds. Etc. But that round up chemical Has not shown up in any test that I’ve done.
So anyway since 2014 I’ve had plastic mouth guard in my mouth 24 hours a day
So I wonder if I’m allergic to it or something about the dental work I had done or the chemicals
Or The antibiotics triggered my immune system
It’s just been like a living death the last Going on five years. Everybody keeps tell me I look good but my toes
Swell burn. when I stand up my legs burn I can’t walk far my spine hurts I can’t stand to be in the sun my body tingles. My legs burn all the time.
I just saw another neurologist last week.
She said we could do a small cell biopsy but that’s not always a good test and if I do have some kind of small cell neuropathy they won’t know the source of it but then again they might find the source of it
In the beginning April 2014 Doctors thought I had Sjogren’s syndrome
I reacted very badly to the pilocarpine they gave me.
So after several months I finally went to Baylor here in Houston Texas. They did a lip biopsy and it did show negative for Sjögrens.
I’ve had tremors. Body and facial.
It’s just been so miserable. I’m trying so hard.
I have chronic hoarseness all the time so I’m seeing a specialist downtown at Baylor tomorrow morning because that’s been going on for over two years now
I have to eat very slowly because it affects my swallowing. Last year after 4th endoscopy G.I. doctor told me that he thought I had general Periphial Neurapathy. And into 2014 when I first started having the facial spasms I have these tiny little sores on me and when I went to the dermatologist he told me they were neuropathy. So my doctor told me to go back and ask him again what the sores were and again he said it was neuropathy. I wrote it down on a piece of paper because I want to make sure I didn’t misunderstand the first time.
I’m not diabetic. So I just don’t know what’s going on what is triggered what. I’m trying to swim therapy now
Trying to keep my muscles flexible.
So I don’t know if it’s my spine my digestive track allergies reactions to stuff or what is going on with me
Still get these tiny little scab sores on me. They are the size of a head of a Straight pin
I have tested positive for Epstein-Barr virus CMV and I just did a test that showed my HSV1. Was very high
I used to get very bad Cold sores center of my bottom lip
I still get the little tingle but I’ve not had one erupt in it while. I’m taking a lot of probiotics and I’m taking something called Aller C. which has bromelain and quercetin in it. Along with 900 mg of vitamin C in IT
Plus I take Metagenics Ultra G.I. replenish
Just trying everything to build up my immune system
It was funny because right before I got sick I was thinking I’m going to turn 65 this year to turn 65 and I feel so great my joints I don’t have any pain anywhere everything was great still mowing my yard working outside working like a fool and I enjoyed every minute of it. Keeping up with our business that way I am keeping up with the bookkeeping etc.
And I just got some kind of weird Vertigo in dec 2013 and and by January 2014 had the worst sore throat I’ve ever had in my life. GI told me I had esophagitis
Candida I had that colonoscopy and endoscope that day. And then that night my family doctor called and after a routine urine test he said I had very bad UTI which I had no symptoms of and told me to take Cipro
So I was taking fluconozole and 500 mg cipro
Religiously for 10 days not together I had to take it a few hours apart from each other. Sore throat never went away
So that gave me 20 more days of fluconozole and it still did not work. So GI dr set somethings going on I want to test you for HIV So got that test and it was negative
So from December 2013 to April 2014 I went down from 136 pounds and 99 pounds and they put me in the hospital and put peg tube in. And when they were prepping me for the peg tube they put Cipro in my IV in my arm turned bright red and I broke out in hives so they took it out right away. While I was in the hospital that’s when They thought that I had Sjogren’s syndrome and they started giving me the pilocarpine.
And two weeks after that hospital stay Whicj was only two days. started having the facial spasms my face with draw up that I was having a stroke went to the ER three times they didn’t know what it was send me home with Valium and my face hasn’t been the same since. just this year when I was having physical therapy on my neck and scalp etc. it triggered the facial spasms again. So then I tried Massage Therapy. and when she was working on my neck and on my scalp again it triggered the facial spasms
So I don’t know if it’s maybe my Vegas nerve which leaves all over your body and the nerves in your body causing all this tingling and stuff in my spine and All over my body. And I don’t know what the chronic hives are about although they’ve gotten better they used to be horrible. I have all those little hives that are like little mosquito bites that form in a row I had pressure hives
Anybody with Chronic hivesknows what I’m talking about
One dermatologist gave me a tiny little baby dose of a steroid and it made my hives worse so that didn’t work.
I’m hoping that whatever is going on with someday get better because my life is going by and I’m going to be 70 this year. My golden years are not what I expected.
I thnak God for every day that I’m here and for my family but this is just too hard on my family. My poor husband I feel so bad for him. It’s gotten to the point that I can’t even drive anymore the last couple years and he has to drive me everywhere which is very depressing for me
I can’t even walk to the grocery store and thank God for Amazon so I can order most of the stuff that’s not perishable. Well this ended up being a lot longer than I intended I’m so very sorry about all the rambling but I’m going to look into this 5 day testing but what do you do if you are allergic to all these chemicals and etc. do you live in a bubble. !!!

Jump to this post

I do not live in a bubble only because I now know what to avoid and how to do it. Overseas travel is not an option for me. Yet, we are always on the go, but must consider temperatures and limit hours in the heat. Yes, I must always wear shoes inside my own home because even on safe surfaces others wear shoes with rubber and this will contact my bare feet. I have found clothing I love to wear free of my allergens (dressy clothes are another issue). Shoes are the biggest problem, but if needed to wear athletic shoes or boots which are made with adhesives, which I do almost every day I go through this drill: 100% cotton sock, plastic bag, elastic sock to hole up this layering folder over so an not to touch my skin. A hassle, but it works.No more burning foot pads keeping me awake at night. I do this process almost daily for my gardening. I have replaced most of the furniture in my home. I just got a wonderful all leather recliner set up with a bright reading light in my bedroom away from my husbands blasting football games. Even all the other furniture in my home is replaced with leather now. Leather is safe for me, but not all. I always pack a large plastic bag in my purse to protect from other furniture- friends know and don't care, club ladies don't pay any attention, heck all of us have our own health issues. Has this altered my life, but most people don't even know or notice. I have taken up my inside activities like my bookclub and other ladies clubs.

You have many symptoms and issues I can't offer any help or adive over and it seems like you have multiple autoimmune or health issues happening all at once. Most of us with autoimmune diseases have multiples, like me.
Yet, I can blog about certain of your symptoms.

1. Like you I react severly to Cipro and like you learned the hard way. Cipro contains sulfonamides, and sulfa is a common allergy and be sure to note this on hospital charts as doctors seem to love to prescribe it. Cipro is one of several sulfonamide antibiotics, so make sure your and your doctors research the ingredients in the antibiotic prescribed.
2. Keep all records. I started dealing with health issues since age 50, but after 65 I fell apart. I learned to get a hard copy of all my tests and records. If I can't get a copy after the visit at the office, I ask that I am sent a hard copy either by email or mail. They are required to do this for you. Don't be embarrassed. I have searched using multiple doctors in my quest for answers and each time they ask about my history and want copies sent. Complete neurological workups, allergy testing, cardio issues and so on. No problem I carry in a briefcase like file folder with a handle and present them with my records and always a current list of meds and they can copy anything they want, but they cannot keep my records. I'll wait for them to copy them. This will speed things up by a month waiting for records and getting another appt.
3. My internal skin misery issues were scientifically identified. You still haven't made clear what type of allergy testing you have had. Yes you mentioned the environmentals test like dust mites, but the other test which was on your back, was it for 5 days? Was it with a registered test kit company? Was it the True Test company or another, each kit has variations i allergens tested. You need to contact this doctor if you don't have the records and get copies. They should have given you a hard copy of your test results, even if you were negative on all of the sites, you need to keep a record of this in order to eliminate future question. If you didn't have the 5 Day Extended Patch Test you need to pursue this test as you mentioned. You are Medicare age and Medicare pays for this test. Have you Googled information about this test kit. Mine was the True Test. What is wonderful is that once tested you will be registered with a site that gives current yearly information on what grooming and cleaning products you can use. Products change for the better normally, as many chemicals have been substitutes, but some products change for the worse. You are wondering about your chair. Yes you can be allergic to fibers in your chair. I am severely allergic to memory foam which is in mattresses, pillows, chairs and so on. i am allergic to treated fibers for fire retardant, wrinkle free stain repellent and so on. So yes these can be in any furniture. I have to bring a large plastic bag to theater to spread over the chairs which are normally covered in blended fibers,treated with fire retarded and stain blockers. Do I look absurd? Yes no matter how I try to tell myself just do it and don't feel peculiar, initially I feel self conscience, but this way I am not a prisoner in my own safe household.
3. Like you I understand the strain it puts on a spouse. My husband has been bugging me to go on a first class cruise for our 50th anniversary. For me the fear of exposure to my allergens is a joy killer. Living with 24/7 pain is a misery few can understand. I would have to pack all my own bedding and my wardrobe is very limited now. All my beautiful formal gowns just gather dust in a closet. My shoes are a joke! Car travel is fine as I can pack what I need or air travel is fine when going to homes that are set up for me, as many our and we have a vacation home set up just like my main residence. Even first class hotels use blended sheets and chemicals in cleaning and laundry products, so I must bring my own. My outdoor sports activities have be restricted because of one of my forms of eczema is triggered by heat, sweat and friction. This is depressing for my husband as he wants me with him. Yet when I try to do these things I end up in pain and itching and useless from lack of sleep. Am I selfish? No, I just have a handicap and need to adjust my lifestyle.
.
I so hope you get some answers as now I am back to being useful and my pain and itching issues are reduced at present by 99%. Yet I must be vigilant because eczema is chronic and with each exposure to my allergens the symptoms develop faster. I know within 15 minutes now if I am sitting on the wrong furniture or wearing the wrong clothes as the itching begins inside my skin. Yet if I remove myself from these contact immediately the symptoms abate. Life is very very good again!!! Turning 70 this year and grateful that I can feel joyful again.

REPLY

I've been itching for 3 year's I take the hydroxyzine and I just deal with it

REPLY
@liz7229

I've been itching for 3 year's I take the hydroxyzine and I just deal with it

Jump to this post

@liz7229 Welcome to connect what started you to itch? Have you gone to a allergist to find out if its food allergy or been tested for anything else.

REPLY
@gingerw

@specialteacher I thought some more about your itching issue. Has there been any change in your laundry soap recently? Any change in water [i.e. moving to a different location, or taking a trip that exposed you to something disagreeable]? Sometimes a simply change can play havoc with a sensitive system, even if it is temporary. Even if you take specific meds, if there was a change in the manufacturer of those meds, it might trigger a reaction. Please let us know what happens. We care.

Jump to this post

@gingerw
I just found this group and am hoping to get some ideas. I have a rash on my scalp and now on my back. Been to my PCP and dermatologist 2 times each. Been on more drugs ointments etc. So yesterday my Dr. Said to try the treatment for Scabies….EeeeKkkkk!
I have done the lotion and cleaned my already clean house and I am itching worse than ever. After reading this groups ideas…I am thinking that it is exema. Did not know that is connected to auto immune. I am Stage 4 Cirrhosis. Nothing is showing up in my routine bloodwork. ANYONE have ideas?

REPLY
@gardeningjunkie

I do not live in a bubble only because I now know what to avoid and how to do it. Overseas travel is not an option for me. Yet, we are always on the go, but must consider temperatures and limit hours in the heat. Yes, I must always wear shoes inside my own home because even on safe surfaces others wear shoes with rubber and this will contact my bare feet. I have found clothing I love to wear free of my allergens (dressy clothes are another issue). Shoes are the biggest problem, but if needed to wear athletic shoes or boots which are made with adhesives, which I do almost every day I go through this drill: 100% cotton sock, plastic bag, elastic sock to hole up this layering folder over so an not to touch my skin. A hassle, but it works.No more burning foot pads keeping me awake at night. I do this process almost daily for my gardening. I have replaced most of the furniture in my home. I just got a wonderful all leather recliner set up with a bright reading light in my bedroom away from my husbands blasting football games. Even all the other furniture in my home is replaced with leather now. Leather is safe for me, but not all. I always pack a large plastic bag in my purse to protect from other furniture- friends know and don't care, club ladies don't pay any attention, heck all of us have our own health issues. Has this altered my life, but most people don't even know or notice. I have taken up my inside activities like my bookclub and other ladies clubs.

You have many symptoms and issues I can't offer any help or adive over and it seems like you have multiple autoimmune or health issues happening all at once. Most of us with autoimmune diseases have multiples, like me.
Yet, I can blog about certain of your symptoms.

1. Like you I react severly to Cipro and like you learned the hard way. Cipro contains sulfonamides, and sulfa is a common allergy and be sure to note this on hospital charts as doctors seem to love to prescribe it. Cipro is one of several sulfonamide antibiotics, so make sure your and your doctors research the ingredients in the antibiotic prescribed.
2. Keep all records. I started dealing with health issues since age 50, but after 65 I fell apart. I learned to get a hard copy of all my tests and records. If I can't get a copy after the visit at the office, I ask that I am sent a hard copy either by email or mail. They are required to do this for you. Don't be embarrassed. I have searched using multiple doctors in my quest for answers and each time they ask about my history and want copies sent. Complete neurological workups, allergy testing, cardio issues and so on. No problem I carry in a briefcase like file folder with a handle and present them with my records and always a current list of meds and they can copy anything they want, but they cannot keep my records. I'll wait for them to copy them. This will speed things up by a month waiting for records and getting another appt.
3. My internal skin misery issues were scientifically identified. You still haven't made clear what type of allergy testing you have had. Yes you mentioned the environmentals test like dust mites, but the other test which was on your back, was it for 5 days? Was it with a registered test kit company? Was it the True Test company or another, each kit has variations i allergens tested. You need to contact this doctor if you don't have the records and get copies. They should have given you a hard copy of your test results, even if you were negative on all of the sites, you need to keep a record of this in order to eliminate future question. If you didn't have the 5 Day Extended Patch Test you need to pursue this test as you mentioned. You are Medicare age and Medicare pays for this test. Have you Googled information about this test kit. Mine was the True Test. What is wonderful is that once tested you will be registered with a site that gives current yearly information on what grooming and cleaning products you can use. Products change for the better normally, as many chemicals have been substitutes, but some products change for the worse. You are wondering about your chair. Yes you can be allergic to fibers in your chair. I am severely allergic to memory foam which is in mattresses, pillows, chairs and so on. i am allergic to treated fibers for fire retardant, wrinkle free stain repellent and so on. So yes these can be in any furniture. I have to bring a large plastic bag to theater to spread over the chairs which are normally covered in blended fibers,treated with fire retarded and stain blockers. Do I look absurd? Yes no matter how I try to tell myself just do it and don't feel peculiar, initially I feel self conscience, but this way I am not a prisoner in my own safe household.
3. Like you I understand the strain it puts on a spouse. My husband has been bugging me to go on a first class cruise for our 50th anniversary. For me the fear of exposure to my allergens is a joy killer. Living with 24/7 pain is a misery few can understand. I would have to pack all my own bedding and my wardrobe is very limited now. All my beautiful formal gowns just gather dust in a closet. My shoes are a joke! Car travel is fine as I can pack what I need or air travel is fine when going to homes that are set up for me, as many our and we have a vacation home set up just like my main residence. Even first class hotels use blended sheets and chemicals in cleaning and laundry products, so I must bring my own. My outdoor sports activities have be restricted because of one of my forms of eczema is triggered by heat, sweat and friction. This is depressing for my husband as he wants me with him. Yet when I try to do these things I end up in pain and itching and useless from lack of sleep. Am I selfish? No, I just have a handicap and need to adjust my lifestyle.
.
I so hope you get some answers as now I am back to being useful and my pain and itching issues are reduced at present by 99%. Yet I must be vigilant because eczema is chronic and with each exposure to my allergens the symptoms develop faster. I know within 15 minutes now if I am sitting on the wrong furniture or wearing the wrong clothes as the itching begins inside my skin. Yet if I remove myself from these contact immediately the symptoms abate. Life is very very good again!!! Turning 70 this year and grateful that I can feel joyful again.

Jump to this post

@gardenjunkie You must live in a cool climate Im such a hot person I,d die putting all that on my feet Bravo for you.

REPLY
@jeanne5009

@gingerw
I just found this group and am hoping to get some ideas. I have a rash on my scalp and now on my back. Been to my PCP and dermatologist 2 times each. Been on more drugs ointments etc. So yesterday my Dr. Said to try the treatment for Scabies….EeeeKkkkk!
I have done the lotion and cleaned my already clean house and I am itching worse than ever. After reading this groups ideas…I am thinking that it is exema. Did not know that is connected to auto immune. I am Stage 4 Cirrhosis. Nothing is showing up in my routine bloodwork. ANYONE have ideas?

Jump to this post

@jeanne5009 Itchy skin is horrible does calamine lotion help?

REPLY

You have seen a dermatologist and that is good. Yet, if scabies treatment doesn't give relief go see a different derm to get another opinion. I made a mistake initially not understanding how complicated skin diseases were and how difficult diagnosis is to diagnose. I have seen over a half dozen derms in the 15 years I have had eczema and often learn something new from each one .Always get a second opinion and trust me your pcp is not specialized enough to help you figure this out. Even derms have had a hard time because of all the skin diseases. Initially I didn't know enough to even ask my derm what type of eczema I had and she never offered to explain the differences. The differences are important as each form has many unique triggers and special treatments. Also it is not clear to me what they called your rash initially. Have your docs ever called it eczema? What drugs have they prescribed, steroids? Yet steroids don't work on certain forms of eczema and have long term side effects.

The internet is an indispensable tool. A New Zealand dermatology site, dermnetnz.org is the best I have found to help you diagnosis what form of eczema you have. Simple easy to understand definitions of each type of eczema symptoms and triggers. You may learn your symptoms are not similar to any form of eczema, but they also cover other skin diseases. The photos are most helpful, showing the visible symptoms of the rash. Many eczema rashes are specific in shape and appearance and locations. I have used this to self diagnosis a new and rarer form of eczema I developed and my doctor kept treating like my other 2 forms and treatments weren't helping. Also check out other skin diseases for photos, most rashes for a specific disease have a unique look.

I am sure you have checked about skin diseases caused by your liver meds or treatments.

I now have 3 forms of eczema and yes I also have an auto immune disease which is common for eczema suffers. My most severe form is called Allergic Contact Dermatitis, ACD. Eczema and dermatitis are use interchangeably. I developed this at age 55 just after I developed an auto immune disease. Your rash location makes me think of what you may be contacting. With ACD my worst allergies are to an element in rubber used to make memory foam, MBT. My pillow and mattress of 6 months was made of memory foam. Also my scalp was fiercely itching. I was allergic to the preservatives MI/MCI used in most all my grooming products. I now use Grandma's Bar Soap for face and body as a shampoo and for all hand and body washing. I have been using it exclusively for 2 years because of the simple ingredients. Only 2, lye and lard. The lye is converted into glycerin in the soap making process so only lye and glycerin contact you. Just recently it got approved by Mayo as a SkinSafe product. Works best with soft water as a shampoo, but if you don't have it just wash an additional time. It will lather nicely and leaves hair shinny an skin is not dried out. Amazon.

Because of my research and being proactive I have helped my doctors and the doctors have helped me and all 3 forms of my eczema are in remission.

REPLY
@gardeningjunkie

You have seen a dermatologist and that is good. Yet, if scabies treatment doesn't give relief go see a different derm to get another opinion. I made a mistake initially not understanding how complicated skin diseases were and how difficult diagnosis is to diagnose. I have seen over a half dozen derms in the 15 years I have had eczema and often learn something new from each one .Always get a second opinion and trust me your pcp is not specialized enough to help you figure this out. Even derms have had a hard time because of all the skin diseases. Initially I didn't know enough to even ask my derm what type of eczema I had and she never offered to explain the differences. The differences are important as each form has many unique triggers and special treatments. Also it is not clear to me what they called your rash initially. Have your docs ever called it eczema? What drugs have they prescribed, steroids? Yet steroids don't work on certain forms of eczema and have long term side effects.

The internet is an indispensable tool. A New Zealand dermatology site, dermnetnz.org is the best I have found to help you diagnosis what form of eczema you have. Simple easy to understand definitions of each type of eczema symptoms and triggers. You may learn your symptoms are not similar to any form of eczema, but they also cover other skin diseases. The photos are most helpful, showing the visible symptoms of the rash. Many eczema rashes are specific in shape and appearance and locations. I have used this to self diagnosis a new and rarer form of eczema I developed and my doctor kept treating like my other 2 forms and treatments weren't helping. Also check out other skin diseases for photos, most rashes for a specific disease have a unique look.

I am sure you have checked about skin diseases caused by your liver meds or treatments.

I now have 3 forms of eczema and yes I also have an auto immune disease which is common for eczema suffers. My most severe form is called Allergic Contact Dermatitis, ACD. Eczema and dermatitis are use interchangeably. I developed this at age 55 just after I developed an auto immune disease. Your rash location makes me think of what you may be contacting. With ACD my worst allergies are to an element in rubber used to make memory foam, MBT. My pillow and mattress of 6 months was made of memory foam. Also my scalp was fiercely itching. I was allergic to the preservatives MI/MCI used in most all my grooming products. I now use Grandma's Bar Soap for face and body as a shampoo and for all hand and body washing. I have been using it exclusively for 2 years because of the simple ingredients. Only 2, lye and lard. The lye is converted into glycerin in the soap making process so only lye and glycerin contact you. Just recently it got approved by Mayo as a SkinSafe product. Works best with soft water as a shampoo, but if you don't have it just wash an additional time. It will lather nicely and leaves hair shinny an skin is not dried out. Amazon.

Because of my research and being proactive I have helped my doctors and the doctors have helped me and all 3 forms of my eczema are in remission.

Jump to this post

@gardeningjunkie
Thank you so much for this info. The derm biopsied 2 spots one was eczema the other foliculitis. I think it would have indicated scabies so I'm not too concerned. I was on prednisone before this started and I dont want anymore of that.
I will research some other derms and see what they say.

REPLY
@basslakeview

Have you searched the internet for possible parasite infestation? After months of searching, I finally found what I think is my problem (Margellons Disease), after searching for over a year. I read where the Mayo Clinic has been researching it.

Jump to this post

@basslakereview. I have Morgellons Disease too. I have rashes and lesions (deep holes in skin and very large, deep sores that are painful, but have an underlying itch that is worse than any other type.I have had. It itches even worse when the sores spontaneously spread and I find a huge amount of white, glittery specks and fibers surfacing from the skin. I have very active 'hair' aka fibers that tie themselves in knots and loops. I normally have very fine, straight hair, but not anymore. Horrible looking things come out of the lesions. This bizzare disease defies all logic and is not a delusion and leaves me with a very high anxiety level. I also end up with holes in my clothing that I must throw away; leaves me wondering if I might have a parasite, such as Nematodes or Horsehair Nematode. My doctor does not believe me even though she has seen My videos and pictures. I have no support system and think I would probably be better off dead. I can't deal with this anymore. Would like to connect With anyone else who has this.

Liked by jeanne5009

REPLY

Do you have a rash. My body gets very itchy and I have to scratch BUT there’s no rash it hard finding out what the cause is.

REPLY

@quiteachiver
Yes now I do …looks like bug bites with a raised rash all around it. I have it on my scalp so that part is hard to see.

REPLY
@jeanne5009

@gingerw
I just found this group and am hoping to get some ideas. I have a rash on my scalp and now on my back. Been to my PCP and dermatologist 2 times each. Been on more drugs ointments etc. So yesterday my Dr. Said to try the treatment for Scabies….EeeeKkkkk!
I have done the lotion and cleaned my already clean house and I am itching worse than ever. After reading this groups ideas…I am thinking that it is exema. Did not know that is connected to auto immune. I am Stage 4 Cirrhosis. Nothing is showing up in my routine bloodwork. ANYONE have ideas?

Jump to this post

@jeanne5009 My apologies for not responding to you. I have autoimmune issues, and kidney disease caused by hyperactive immune system. It seems to me since the rash is localized to scalp and back, it may be a contact issue. Bedding, or new shampoo/conditioner, perhaps? New laundry soap? Change in vehicles, now receiving a different type of light? Change in medication [either dosage or type, including over the counter]? Change in anxiety or stress levels, sleep patterns, or diet? Having a compromised system due to your cirrhosis may lead to hypersensitivity from nothing that you can put a finger on. Do oatmeal baths work to calm the skin down? I hope we have given you some ideas here.
Ginger

REPLY
@bailey32

@basslakereview. I have Morgellons Disease too. I have rashes and lesions (deep holes in skin and very large, deep sores that are painful, but have an underlying itch that is worse than any other type.I have had. It itches even worse when the sores spontaneously spread and I find a huge amount of white, glittery specks and fibers surfacing from the skin. I have very active 'hair' aka fibers that tie themselves in knots and loops. I normally have very fine, straight hair, but not anymore. Horrible looking things come out of the lesions. This bizzare disease defies all logic and is not a delusion and leaves me with a very high anxiety level. I also end up with holes in my clothing that I must throw away; leaves me wondering if I might have a parasite, such as Nematodes or Horsehair Nematode. My doctor does not believe me even though she has seen My videos and pictures. I have no support system and think I would probably be better off dead. I can't deal with this anymore. Would like to connect With anyone else who has this.

Jump to this post

@bailey32 Oh, my, keep demanding some positive action from your doctor's. Get a new one if needed. This sounds so uncomfortable, and depressing to suffer with!
Ginger

REPLY
@gingerw

@jeanne5009 My apologies for not responding to you. I have autoimmune issues, and kidney disease caused by hyperactive immune system. It seems to me since the rash is localized to scalp and back, it may be a contact issue. Bedding, or new shampoo/conditioner, perhaps? New laundry soap? Change in vehicles, now receiving a different type of light? Change in medication [either dosage or type, including over the counter]? Change in anxiety or stress levels, sleep patterns, or diet? Having a compromised system due to your cirrhosis may lead to hypersensitivity from nothing that you can put a finger on. Do oatmeal baths work to calm the skin down? I hope we have given you some ideas here.
Ginger

Jump to this post

@gingerw
Thanks…lots of new ideas. I'm going to another derm next week..maybe he has some magic potion. We all seem to have our battles..I hope you conquer yours!

REPLY

Hope you are getting thru the battle…dont stop.

REPLY
Please login or register to post a reply.