Body itching

Posted by Retired teacher @specialteacher, Jul 31, 2018

I’ve had almost unbearable itching for over 3 months. Was prescribed hydroxyzine, but it doesn’t seem to help. It started when I was in the ER having a very frightening allergic reaction. I was given an epinephrine iv, and a breathing treatment. My legs started to shake uncontrollably. Then I couldn’t breathe, was given an injection of something at that point. I’m taking benadryl and paxil but don’t know how much longer I can deal with this.

@dazlin

@gardeningjunkie …I appreciate your insight and your time you take to reply. I assume I'll be hearing from drs any day now…I'll keep in touch. Thanks so much!!

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Mast cell disease is what my dr came up with after years of research. The persistent miserable whole body itch is triggered by who knows, often with face swelling double with the horrid itch. Steroids would calm it down but I’ve been given too much as it is so nothing now. Antihystemines four times daily, to 16 each day just to stay sane. Love working in yard however guarantee that my legs although covered doubly, will break into huge welts along with itch. Is this anything like yours? So very happy your lymphoma disappeared. May your cancer never return.

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@jennybay

Mast cell disease is what my dr came up with after years of research. The persistent miserable whole body itch is triggered by who knows, often with face swelling double with the horrid itch. Steroids would calm it down but I’ve been given too much as it is so nothing now. Antihystemines four times daily, to 16 each day just to stay sane. Love working in yard however guarantee that my legs although covered doubly, will break into huge welts along with itch. Is this anything like yours? So very happy your lymphoma disappeared. May your cancer never return.

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Jennybay- What literally saved my life was the 5 Day Extended Patch Test, for Allergic Contact Dermatitis, ACD. My internal skin tingling, itching, taser like stinging was with me 24/7, but it felt worse at night because; 1. Histamines are higher at night. 2. Nothing to distract myself from the itch. I had neurological testing first, it felt like my nerves were the cause, but nothing showed up. The pain and itch inside the skin is something doctors can't see and therefore our credibility comes into question and yes I was close to losing my mind. Still my appearance was fine with no visible rashes (although on and off for 10 years previously did have hand rash eczema). Test results showed I reacted and was allergic to 5 out of 78 patch sites on the True Test ACD test and 3 were at the highest level. Turns out my 6 month old memory foam mattress, 90% of my clothing,all my shoes, flooring, 99% of cleaning and grooming products, one class of corticosteroid and an endless list more that contained my allergies were either in contact with me or off gassing (yes chemicals and elements can transfer through porous coverings and though your skin and into your bloodstream). I did not have the facial swelling you get, but steroid use either via shots or long term use with topicals can cause swelling and redness. In one form of eczema, Perioral which is a rash around the mouth, steroids which help for a brief period, then feed the eczema. My advice to you is, if not tested already, get in to see an allergist or dermatologist who is licensed to perform the 5 patch day patch test, my medicare paid for it and it is expensive without insurance. Check with office when making appt. to see if this doc is licensed for this test, not all are. Google this test, lots of information online. Also I take 3, 24 hr antihistamines a day, which seem to help with hay fever as I also have environmental allergies. Can't say they do anything with eczema itching issues as you have pointed out.
Your leg breakout after gardening does make me suspicious that it is a contact or allergic contact issue. For me I must only wear 100% cotton or 100% polyester clothing as blended materials contain an element from rubber MBT which I react severly to 1. So what is the fiber of your pants? What is your laundry powder, although you wash all your clothing probably with the same detergent, I am allergic to preservatives and fragrance so I must use special soaps. Even if I have fabrics safe for me, I cannot wash with other family members laundry if they have unsafe materials as the chemicals and allergic elements will transfer into my clothing. They do not wash out, it is called cross contamination. Not all forms of eczema can be prevented with contact control, however with ACD you can prevent future breakouts by controlling your contacts. I knew I was getting my face in trouble a few days ago as I was cutting back some perennials and dividing them and since one is on hands and knees the old flower heads brushed against my face, I did wash face off about 30 minutes later, but now have some itching and slight redness below one eye on lower lid. My fault, I did not control my contacts. Environmental allergies that cause asthma or hay fever have a different test, it's a simple 30 minute office visit prick test which tests for dogs, cats, pollen, dust mites, mold and so on. These issues are unrelated to my ACD allergies.
Your leg symptoms after garden are baffling, I do cover up with long sleeves and long pants and a broad brim hat. Of course I wear 100% cotton, what are the materials of your gardening clothes? I am sure it is the same laundry detergent as you use on other clothing that you don't react to. Are you pants loose, tight clothing will cause me to itch or get red? Is it possible pollen is transferring through your pants? I have immediate contact allergies to cedar and my yard is full of cedar trees. If I just brush against cedar or juniper I will get a rash, yet my denim has blocked that. I must wear a broad brim hat because if even one tiny bit of cedar drops off a tree and down my shirt I know within a few minutes as I can feel the itch.
I have had to learn a lot about eczema to get to where I am today, 95% great at this moment, sure symptoms will return, but I am prepared for it. I so hope you can get a name for what is tormenting you. Even being told you have a chronic disease with a name, at least can give you something visible to attack! Without a name it's an invisible tormentor and you can't direct your battle! Even if you don't test positive to anything on patch test, at least you can eliminate ACD issues and search elsewhere. Also if previously tested, remember our bodies change. 15 years ago I did not have ACD, if tested I would have not reacted. So if tested in the past, get retested.

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@dazlin

Yes…how do I do that? I dont think photos are allowed here.

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@gardeningjunkie. Mayo called to let me know the rash is Grovers Disease. Nothing can be done but treat symptoms with wet wraps and steroid cream. They precribed Doxepin and Hydroxyzine only during flare ups, and stay on antihistamines 2x daily. The other biopsy shows basil cell carcinoma…she said they removed all of it with biopsy …should be ok… I remarked that it looks black and red around the outer borders.
and its tender ..she (dr) said have a local physician look at it..but she doesn't think its infected..all discussed on the phone.
I also reminded her that the biopsies of the rashes had diminished quite a bit by the time she saw me. She said another biopsy of a fresh rash would be helpful, however they cant guarantee an opening for me…so this is my ongoing issue for 5 yrs…by the time they schedule me, it's too late for an accurate diagnosis. All said, even with a fading rash, they picked up Grovers. Nothing said about why I felt I'll and had chills. No mention of any connection with my mgus.

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@dazlin

@gardeningjunkie. Mayo called to let me know the rash is Grovers Disease. Nothing can be done but treat symptoms with wet wraps and steroid cream. They precribed Doxepin and Hydroxyzine only during flare ups, and stay on antihistamines 2x daily. The other biopsy shows basil cell carcinoma…she said they removed all of it with biopsy …should be ok… I remarked that it looks black and red around the outer borders.
and its tender ..she (dr) said have a local physician look at it..but she doesn't think its infected..all discussed on the phone.
I also reminded her that the biopsies of the rashes had diminished quite a bit by the time she saw me. She said another biopsy of a fresh rash would be helpful, however they cant guarantee an opening for me…so this is my ongoing issue for 5 yrs…by the time they schedule me, it's too late for an accurate diagnosis. All said, even with a fading rash, they picked up Grovers. Nothing said about why I felt I'll and had chills. No mention of any connection with my mgus.

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2 things have helped me with Grover's Disease which is eczema a chronic auto-immune disease and in truth haven't found that steroids helped, but I am allergic to several classes of steroids.
1. Try Calcipotriene Ointment, it is basically an expensive form of topical vitamin d3. Check with GoodRx for the best price, as many insurance companies don't cover. It does seem to minimize and stall my Grover's. I use a long handled spoon to cover my back torso. Sure I could ask my husband, but I prefer to be independent and not seem so helpless. This was originally developed for psoriasis sufferers and is safe, not like steroids with proven dangers.
2. Clindamycin Phosphate Topical Solution 1%- This is a topical antibiotic. If your pustules break though and scab this speeds up healing. it doesn't suppress new eruptions, but heals existing issues without the need of internal antibiotics, which because of my yeast issues I avoid unless necessary.
3. You have no choice but to avoid the triggers: heat, sweat and friction. We still need some quality of life and I push my boundaries. If I stay outside longer than I should I absolutely must take a few days off inside. After overheating I can feel the little pustule internal bumps starting. If I keep cool for a few days they will recede if I catch in time.
4. Get your bra off immediately at home, wear loose housecoat or muu muu or as I prefer a 100% cotton shirt with 2 pockets. You must get the pressure off your torso.
5. Read the Karen Fischer Book on eczema. Our bodies make too much T2 which fuels our overactive immune system. Certain foods are fuel to the T2. I am taking baby steps in diet control, just to overwhelming to do all at once. Yet have given up 90% of gluten, many of the wrong fruits, coffee and wine. Next step my black and green tea. Yes even green tea as it fuels our overactive T2, part of our immune system, into making too many histamines. For others green tea is a good thing as it strengthens their immune system.
6. The best non itch topical, just a temporary fix to get me to sleep in Flanax Linimento, which is capsaicin, read about how red pepper can fool the body. It works in less than 10 min, burns at first but the burn feels better than the itch. Just takes a tiny bit and spreads well. The burn subsides and I get at least 30 minutes of relief so I can fall asleep. Use a Q-tip to put on back long handled spoon, never touch with hands as you may get in your eyes. I swear it also heals up the site faster too.

This year never needed the Clindamycin as my pustules, although itchy with a 5 month breakout, never erupted through the skin. The pain and itching with this breakout was significantly less. I never had to drive a car hunched over the steering wheel to keep the pressure off my back. Right now in remission and using no treatment, even the constant feeling of a sunburn is gone. What next will go wrong with our bodies as one auto-immune disease leads gives us predisposition to another. Still I am having a great day.

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@gardeningjunkie …appreciate your tips. I agree soft loose cotton clothes are a help…I'll have to look for better house garments. I dont get pustules…rather I get papules. Sometimes they scab. Dr prescribed so much stuff, I would have to try first before introducing anything else. One is the steroid cream and wet wraps. Then 3 different oral meds as needed . She was ADAMANT about NOT using anything but Vanicream on my skin…the soap, cream, and I got the shampoo and conditioner, since I get the rash on lower scalp also. I've read all your posts on G.D. I'll say I'm very touched by some of things you wrote,and the misery you experienced. I know all too well…been there, and going through it. I'm happy your getting relief, and pray we never get a bad bout ever again.
I'm kinda glad for a diagnosis…and very happy for remedies…however, I feel brushed off, like it's just an ordinary rash, no big deal, no cure. Just live with it. It's a lonely feeling, sad in a way…I just push myself through the sleepless nights, not going to mention the tormenting symptoms, then go about my usual day while feeling miserable..yet no one really knows. I prefer not to walk around revealing my symptoms, and like you, I also love to be independent. Once in awhile I'll ask my husband to apply the meds on my back but I usually do the best I can. I like your spoon idea.
Oh well, is what it is, and hopefully next time I'll get a more careful dr. Stay well!!!

.

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@dazlin

@gardeningjunkie …appreciate your tips. I agree soft loose cotton clothes are a help…I'll have to look for better house garments. I dont get pustules…rather I get papules. Sometimes they scab. Dr prescribed so much stuff, I would have to try first before introducing anything else. One is the steroid cream and wet wraps. Then 3 different oral meds as needed . She was ADAMANT about NOT using anything but Vanicream on my skin…the soap, cream, and I got the shampoo and conditioner, since I get the rash on lower scalp also. I've read all your posts on G.D. I'll say I'm very touched by some of things you wrote,and the misery you experienced. I know all too well…been there, and going through it. I'm happy your getting relief, and pray we never get a bad bout ever again.
I'm kinda glad for a diagnosis…and very happy for remedies…however, I feel brushed off, like it's just an ordinary rash, no big deal, no cure. Just live with it. It's a lonely feeling, sad in a way…I just push myself through the sleepless nights, not going to mention the tormenting symptoms, then go about my usual day while feeling miserable..yet no one really knows. I prefer not to walk around revealing my symptoms, and like you, I also love to be independent. Once in awhile I'll ask my husband to apply the meds on my back but I usually do the best I can. I like your spoon idea.
Oh well, is what it is, and hopefully next time I'll get a more careful dr. Stay well!!!

.

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I wish you the best and must admit I understand how you feel about getting a diagnosis with a name, at least now we have a name for our tormenter and can start thoroughly researching it. Also we understand why we get our symptoms. Yet what will frustrate you is that even with our best attention this chronic disease will return, it's just the way it is. The torso cells have lost the collagen that holds them together. You'll have to seek sympathy here form us. Like you make every effort to not burden others with my health, it truly is boring for others to listen to, nothing they can do and I don't want to drive them away.
Wish Vanicream soap worked for rme, it should, because it doesn't have my allergens in the soap ingredients but still my skin feels itchy when I use it. Bring a bar of Grandma's Lye Soap for face and body, sold on Amazon into your derms office next time. Just 2 safe ingredients, Lye and Lard and as mentioned the Lye is converted into glycerin in the soap making process. Google the Vanicream unscented cleansing bar, over 12 ingredients. Also Vanicream is twice the price. I keep a bar of Grandma's at each house sink and one in my purse. Price still not a big issue, but remember Vanicream sends reps out, provides free samples and solicites dermatologist, buys the entire office lunch and gives them freebies and this is expensive. Not saying it's a bad product, but just learn to read ingredients yourself and make a decision. Expensive isn't always better. I've been using Grandma's for 3 1/2 years now and just recently Mayo added it to their new Skin Safe product line. I was surprised when soap came with this info on the new labels. I love it as shampoo too. Yet not enough money in this for those good looking, well dressed reps who come wheeling in their product samples to take up our doctors time to send out reps for Grandma's.
If you are getting rashes on other parts of your body, forgive me for asking again, but have you had the 5 Day Extended Patch Test? I have 3 forms of eczema and each is unique with different triggers and treatments or avoidances. Your scalp itch may be Allergic Contact Dermatitis, ACD, this was my greatest tormentor I spent my sleepless nights planning the best way to kill myself while laying in bed suffering, but no more because of test results in which I learned what contact I must avoid for the rest of my life. Those of us with eczema often have multiple forms of eczema.

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@gardeningjunkie

I wish you the best and must admit I understand how you feel about getting a diagnosis with a name, at least now we have a name for our tormenter and can start thoroughly researching it. Also we understand why we get our symptoms. Yet what will frustrate you is that even with our best attention this chronic disease will return, it's just the way it is. The torso cells have lost the collagen that holds them together. You'll have to seek sympathy here form us. Like you make every effort to not burden others with my health, it truly is boring for others to listen to, nothing they can do and I don't want to drive them away.
Wish Vanicream soap worked for rme, it should, because it doesn't have my allergens in the soap ingredients but still my skin feels itchy when I use it. Bring a bar of Grandma's Lye Soap for face and body, sold on Amazon into your derms office next time. Just 2 safe ingredients, Lye and Lard and as mentioned the Lye is converted into glycerin in the soap making process. Google the Vanicream unscented cleansing bar, over 12 ingredients. Also Vanicream is twice the price. I keep a bar of Grandma's at each house sink and one in my purse. Price still not a big issue, but remember Vanicream sends reps out, provides free samples and solicites dermatologist, buys the entire office lunch and gives them freebies and this is expensive. Not saying it's a bad product, but just learn to read ingredients yourself and make a decision. Expensive isn't always better. I've been using Grandma's for 3 1/2 years now and just recently Mayo added it to their new Skin Safe product line. I was surprised when soap came with this info on the new labels. I love it as shampoo too. Yet not enough money in this for those good looking, well dressed reps who come wheeling in their product samples to take up our doctors time to send out reps for Grandma's.
If you are getting rashes on other parts of your body, forgive me for asking again, but have you had the 5 Day Extended Patch Test? I have 3 forms of eczema and each is unique with different triggers and treatments or avoidances. Your scalp itch may be Allergic Contact Dermatitis, ACD, this was my greatest tormentor I spent my sleepless nights planning the best way to kill myself while laying in bed suffering, but no more because of test results in which I learned what contact I must avoid for the rest of my life. Those of us with eczema often have multiple forms of eczema.

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I just noticed new packaging on Grandma's Soap has also change the name. Instead of Grandma's Pure Soap, Lye Soap for Face and Body, the new package has dropped the Lye in the title. Now reads Grandma's Pure Soap for Face and Body. Exact same ingredients. Perhaps Mayo told them having the name of Lye in the title scared folks.

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A note of appreciation, thanks. I just looked papules versus pustules. You mentioned you got papules whereas I said I got pustules. Because of you I now know I have been mistakenly using the term pustules to describe my rash. I do not get the white head associated with pustules and do get the papules instead. Always more to learn.

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@gardeningjunkie

I just noticed new packaging on Grandma's Soap has also change the name. Instead of Grandma's Pure Soap, Lye Soap for Face and Body, the new package has dropped the Lye in the title. Now reads Grandma's Pure Soap for Face and Body. Exact same ingredients. Perhaps Mayo told them having the name of Lye in the title scared folks.

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@gardeningjunkie ..I dont what mayo thinks about the grandma soap you mention. My dr was insistent on using only Vanicream. I'm very picky about my personal care, and I LOVE aromatherapy in my products, but cant touch it anymore. I'll say, the Vanicream cleansing bar leaves my skin very silky and clean…or I would've tossed it. Not bad at all.
Glad you looked up papules…

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@gardeningjunkie

I wish you the best and must admit I understand how you feel about getting a diagnosis with a name, at least now we have a name for our tormenter and can start thoroughly researching it. Also we understand why we get our symptoms. Yet what will frustrate you is that even with our best attention this chronic disease will return, it's just the way it is. The torso cells have lost the collagen that holds them together. You'll have to seek sympathy here form us. Like you make every effort to not burden others with my health, it truly is boring for others to listen to, nothing they can do and I don't want to drive them away.
Wish Vanicream soap worked for rme, it should, because it doesn't have my allergens in the soap ingredients but still my skin feels itchy when I use it. Bring a bar of Grandma's Lye Soap for face and body, sold on Amazon into your derms office next time. Just 2 safe ingredients, Lye and Lard and as mentioned the Lye is converted into glycerin in the soap making process. Google the Vanicream unscented cleansing bar, over 12 ingredients. Also Vanicream is twice the price. I keep a bar of Grandma's at each house sink and one in my purse. Price still not a big issue, but remember Vanicream sends reps out, provides free samples and solicites dermatologist, buys the entire office lunch and gives them freebies and this is expensive. Not saying it's a bad product, but just learn to read ingredients yourself and make a decision. Expensive isn't always better. I've been using Grandma's for 3 1/2 years now and just recently Mayo added it to their new Skin Safe product line. I was surprised when soap came with this info on the new labels. I love it as shampoo too. Yet not enough money in this for those good looking, well dressed reps who come wheeling in their product samples to take up our doctors time to send out reps for Grandma's.
If you are getting rashes on other parts of your body, forgive me for asking again, but have you had the 5 Day Extended Patch Test? I have 3 forms of eczema and each is unique with different triggers and treatments or avoidances. Your scalp itch may be Allergic Contact Dermatitis, ACD, this was my greatest tormentor I spent my sleepless nights planning the best way to kill myself while laying in bed suffering, but no more because of test results in which I learned what contact I must avoid for the rest of my life. Those of us with eczema often have multiple forms of eczema.

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@gardeningjunkie …I have not had the 5 day patch test. My previous derm at mayo, now retired , discussed it with me…but he always felt something more, or other was going on. So we never did it. He also told me a little story about seeing something from a distance and not quite able to make it out until we get closer. I believe that's my story. For now, I'll jump on the remedies, and all we can do is watch my blood tests.
I looked up Grandma's soap…I may try it. Just ordered 6 bars of Vanicream. Nothing seems to make a difference as far as topicals ..I dont feel irritated, but I understand I need to apply a more gentle approach to protect my diseased skin…so I'm doing what doc said.
Honestly, I could have taken my razor and gladly shave off this rash if I could…pain and blood would have been the lesser of the evils. But let's not look back, and try our best to think positive thoughts and keep searching and trying new products and lifestyles to offer relief to this misery. If you ever have those bad thoughts during your uncomfortable nights, talk to anyone that'll listen, and come here. Sorry to hear you had those thoughts.
Remember the symptoms go away at some point in time, so try to stay focused on the things you love. You sound active, like me…I love my garden. I have lots of Rose's, love being outside and at the beach here in Florida. I own 2 horses as well. I do have to limit what I do, as you have mentioned…not happy about that. But I always look forward to when I'm well knowing I'm going jump right back in. Keep us posted on what you research…and your personal tips I'm finding you most helpful!
Thank you, Linda

Liked by gardeningjunkie

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@gardeningjunkie

You have many health issues that overlap and in my case one autoimmune disease may begin that is unrelated. Keep an open mind and never assume anything based solely on your history. Think outside the box.

Have you been tested for Allergic Contact Dermatitis, ACD, a form of eczema? My itching was unbearable and what was confusing to doctors was the internal itching, burning and stinging inside my skin without rashes. I was unable to sleep as ones histamines are elevated during the evening, like you and others whose itching increases in the evening. Sleep deprivation is a form of torture and I would lay in bed at night planning the cleanest and least painful way to commit suicide. A new day just meant more misery. It's difficult to get others to understand a pain that they can't see.. After 5 Day Extended Patch test, (Goggle this test which gave me my life back) I learned I was severely allergic to 5 natural and chemical elements now in middle age but which my body tolerated for decades. I can never come in contact with these everyday contacts as the reaction is worse with each contact. True I also have had Chronic Lymphocytic Leukemia, CLL, for 15 years when my severe ACD began, but my eczema appears to be unrelated to my CLL. Yet if one has one autoimmune disease we are likely to get another. In spite of my contact eliminations which are thorough, I still need to get a Kenalog 40, a corticosteroid, shot annually because after about 10 months from being given the shot the internal random taser like stings and itching which radiates inside my skin slowly will start up again, even with all my contact elimination.

Dazlin like you are searching. my obsessive searching led to my discovery of the ACD 5 Day Extended Patch. Surprisingly no dermatologist had recommended it to me. Medicare paid for it. It is not the 30 minute office visit prick test for environmentals. If seeing a dermatologist or allergist check first that they are licensed to perform this test, test kit companies require additional education and licensing which not all doctors have completed. Since testing I have developed 2 new forms of eczema to add to my growing list of eczema types, each having different triggers and requiring different treatments and with symptoms that may be similar but with differences. All include itching and pain. Surprisingly I am in great shape today. Leading a productive and 98% pain or itch free life today. I know I will have issues in the future due to the chronic nature of eczema/dermatitis, yet now am prepared and am so glad I was as persistent as I was leading my doctors to help identify the names of my types of eczema and work toward a control program for me. It has taken me hours of my own time searching and multiple dermatologists and an allergist to give me all the answers I have been given. Proudly I can say I have learned much over the internet and I have helped them change treatments and figure out the correct name for my new types, since most doctors don't look further with eczema assuming it is the original form diagnosed.

When all hope dies, our spirit dies along with it. I would have sold my soul to the devil to get 15 minutes free of a pain; I know first hand the misery of 24/7 pain and was near the breaking point! I write this in hope that you can stay resolved to figure out your issues and no longer suffer.

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Maybe this is source of my chronic pain. Been to Neuroligist EMG tests. All good.
Feels like nerves tingling burning all over my body. I do get burnig hives. Etc I’m making this short.
Right now. I’m going to look for this testing. Had other allergy testing. Twice. One said I was highly allergic to everything. Another dr trsts showef only small reaction. These were the standard tests. Neither time was I using any Meds like antihistamine
I think mine is environmental issues. Like metal toxins etc.
so that’s what this tests looks for ??? Rubber etc. plastics. Lead. ???

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@12061948

Maybe this is source of my chronic pain. Been to Neuroligist EMG tests. All good.
Feels like nerves tingling burning all over my body. I do get burnig hives. Etc I’m making this short.
Right now. I’m going to look for this testing. Had other allergy testing. Twice. One said I was highly allergic to everything. Another dr trsts showef only small reaction. These were the standard tests. Neither time was I using any Meds like antihistamine
I think mine is environmental issues. Like metal toxins etc.
so that’s what this tests looks for ??? Rubber etc. plastics. Lead. ???

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Another thing to watch for "body Itching" is taking the medication Xarelto for blood thinning I am changing from this medication today. Peach

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@12061948

Maybe this is source of my chronic pain. Been to Neuroligist EMG tests. All good.
Feels like nerves tingling burning all over my body. I do get burnig hives. Etc I’m making this short.
Right now. I’m going to look for this testing. Had other allergy testing. Twice. One said I was highly allergic to everything. Another dr trsts showef only small reaction. These were the standard tests. Neither time was I using any Meds like antihistamine
I think mine is environmental issues. Like metal toxins etc.
so that’s what this tests looks for ??? Rubber etc. plastics. Lead. ???

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I was on Gabapentin and this did it to me Woke me up at night I was tingling all over weird feeling like I was shaky

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@12061948

Maybe this is source of my chronic pain. Been to Neuroligist EMG tests. All good.
Feels like nerves tingling burning all over my body. I do get burnig hives. Etc I’m making this short.
Right now. I’m going to look for this testing. Had other allergy testing. Twice. One said I was highly allergic to everything. Another dr trsts showef only small reaction. These were the standard tests. Neither time was I using any Meds like antihistamine
I think mine is environmental issues. Like metal toxins etc.
so that’s what this tests looks for ??? Rubber etc. plastics. Lead. ???

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Be sure you research the difference between the environmental skin prick test and the 5 Day Extended Patch Test for elements and chemicals. The environmental test is a 30 minute skin prick in the doctor's office with immediate results and it tests for environmental allergens like dust, pollen, cats, dogs, mold, grasses and so on. I have suffered with environmental symptoms, hay fever, since childhood and just cope with it like most and take antihistamines. The 5 Day test checks for things you mentioned like metals, rubber, and a host of other elements in common daily contacts. Antihistamines don't help me much for my Allergic Contact Dermatitis ACD. (Research about this chronic form of eczema). My test kit contained patches for 78 different chemicals and elements. This test gave me th names and were the reason for my internal skin issues. You mentioned that you were tested. Was it the 5 day patch test. You won't forget this uncomfortable, but not painful, test. If so you should have a specific list of results. Before you see a dermatologist or allergist do you homework about this test. Like you I had much to learn when this internal pain started 4 years ago and necessity forced me to keep searching.

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Yes I had the tests you mentioned that showed all the
Environmental allergies in September 2016 and the results were I was severely allergic to everything in the environment dust mites Sage just everything severely allergic So I did the drops For a little while but I was just having such bad itching still and pain It showed staph allergy candida allergy just everything was very very high
But with the drops I was breaking out all over my stomach. Stopped using the drops in Dec 2016
Just been a very confusing situation since 2013. In 2011
We were doing a lot of remodeling in an old house that had a lot of dust moldy old antique furniture in etc. that have been closed up for years it was my husband’s father’s home so we were trying to restore it Staining floors with polyurethane in I’ll kind of stuff of cleaning cleaning cleaning Then I was also working on Estate Since that was executrix for my aunt will. I was cleaning a commercial building that had been closed up for a while with a lot of mold and exposure to where some rodents
Had been. So anyway in the end of last year 2017 which would be the winter months I went and had an allergy testing by another allergist and he did extensive testing on my back ( The first testing was on my arms ) Hec did a trial run on my back at first test not much reaction and then He had me come back on my Friday and did more extensive testing for environmental allergies and it was just very small reaction to couple of weeds and beef Dr. just said take some anti histamines.
So I followed up with another allergist. Who reviewed his testing said that his test were good and just take zyretc or Claritin. So I tried each of those not together just trying to figure out which one would work the best and each time I would try them I had severe pain in my bladder area and I would have to sleep with a heating pad over my bladder at night So I quit taking these drugs and I guess thet helped I don’t remember but the pain was not worth it When I tell the doctors this They just look at me like I’m nuts I’m beginning to wonder if I am
So my spine Doctor (I have spine issues Cervical disc)Who is also holistic had a urine test done with Great Plains Labs showed. I had the highest levels of mold exposure that they had ever seen plus
Plastics and lead showed up in my body according to this urine test so I guess it was accurate I don’t know anymore what to believe. So I think I found a Doctor Who was a professor at Baylor University here in Houston Texas that does The test you have mentioned the five day test
Is that called that sure test ? I looked it up and it checked for so many different chemicals and metals and stuff
Also in August 2014 I got a mouth guard because I had such chronic pain in my neck my dentist said it was TMD
My hives started in January 2015. Also got dental work done during this period. Of course involves the glue that they use for the crowns and the metal that they Use underneath that white porcelain they put on top. Insurance won’t pay for all Pocelain crowns.
We also bought new furniture from lazy boy and a new truck. So I thought maybe I was allergic to something in those so I thought maybe I was allergic to something in those (It’s Ironic while waiting for a doctor to come in I could hear the conversation from another patient in the other room A woman she was so loud she was saying that all the sudden she’s broke out in hives and she’s changed her detergent and her new sheets and do this and that. just changed everything she’s got all these hives all of a sudden and she was wondering if it was a new furniture she had bought. She was saying that when I To pick it up they said it wasn’t in yet that it was at the docks and Shecthought that they meant the docs at the store and they said no at the port of Houston so what they were telling her is that her furniture was coming from a foreign country which she was not aware of and she was wondering if something in her furniture had made her break out in the hives She was saying that her husband was not effected.!!! Which is the case here my husband doesn’t seem to be effectrd !!! ). The lady was so loud I could hear every word she was saying Of course I don’t know whatever happened to her )
My immune system was already weak maybe from exposure to some anabiotic‘s three different times that I was given from 2014 to 2015. I had reactions to it each time I took it which was Cipro
All the doctors keep saying my thyroid test is fine. my hormones are fine go to the Neurologist tell me
I’m fine as far as EMG testing. One Neurologist the last I just saw told me that I have Tardive dyskinesia.
That’s a reaction to a drug Which could’ve been the anabiotic I was given three different times
And all this the last few years I have not had a cold or flu or anything like that. Just chronic pain from head to toe
Legs burning feet burn body burns doctors tell me I don’t have MS I think they’ve ruled out fibromyalgia
(My ANA is already normal. All my test are normal all the time. Except I have SIBO with his very high this last time it was 81 for the Methane.) Brain mri good
During this time Period i was also using chemicals for something called the Rasberry crazy ants. Which had invaded our rental property that we have and our home. Finally after three summers of trying to control them myself I called exterminating company and they sprayed with some kind a new chemical that Texas A&M had approved for the crazy ant and it worked. The whole area where we live was being effected by these horrible ants.
They don’t bite you they just are attracted to electrical in your home or your business thet get into the switch plates. Computer equipment etc. And when you kill them the live ones just pile up on top of the dead ones and it looks like a pileof rust. They were horrible Plus I’ve used gallons and gallons of Roundup over the years for my home in our rental property grounds. Etc. But that round up chemical Has not shown up in any test that I’ve done.
So anyway since 2014 I’ve had plastic mouth guard in my mouth 24 hours a day
So I wonder if I’m allergic to it or something about the dental work I had done or the chemicals
Or The antibiotics triggered my immune system
It’s just been like a living death the last Going on five years. Everybody keeps tell me I look good but my toes
Swell burn. when I stand up my legs burn I can’t walk far my spine hurts I can’t stand to be in the sun my body tingles. My legs burn all the time.
I just saw another neurologist last week.
She said we could do a small cell biopsy but that’s not always a good test and if I do have some kind of small cell neuropathy they won’t know the source of it but then again they might find the source of it
In the beginning April 2014 Doctors thought I had Sjogren’s syndrome
I reacted very badly to the pilocarpine they gave me.
So after several months I finally went to Baylor here in Houston Texas. They did a lip biopsy and it did show negative for Sjögrens.
I’ve had tremors. Body and facial.
It’s just been so miserable. I’m trying so hard.
I have chronic hoarseness all the time so I’m seeing a specialist downtown at Baylor tomorrow morning because that’s been going on for over two years now
I have to eat very slowly because it affects my swallowing. Last year after 4th endoscopy G.I. doctor told me that he thought I had general Periphial Neurapathy. And into 2014 when I first started having the facial spasms I have these tiny little sores on me and when I went to the dermatologist he told me they were neuropathy. So my doctor told me to go back and ask him again what the sores were and again he said it was neuropathy. I wrote it down on a piece of paper because I want to make sure I didn’t misunderstand the first time.
I’m not diabetic. So I just don’t know what’s going on what is triggered what. I’m trying to swim therapy now
Trying to keep my muscles flexible.
So I don’t know if it’s my spine my digestive track allergies reactions to stuff or what is going on with me
Still get these tiny little scab sores on me. They are the size of a head of a Straight pin
I have tested positive for Epstein-Barr virus CMV and I just did a test that showed my HSV1. Was very high
I used to get very bad Cold sores center of my bottom lip
I still get the little tingle but I’ve not had one erupt in it while. I’m taking a lot of probiotics and I’m taking something called Aller C. which has bromelain and quercetin in it. Along with 900 mg of vitamin C in IT
Plus I take Metagenics Ultra G.I. replenish
Just trying everything to build up my immune system
It was funny because right before I got sick I was thinking I’m going to turn 65 this year to turn 65 and I feel so great my joints I don’t have any pain anywhere everything was great still mowing my yard working outside working like a fool and I enjoyed every minute of it. Keeping up with our business that way I am keeping up with the bookkeeping etc.
And I just got some kind of weird Vertigo in dec 2013 and and by January 2014 had the worst sore throat I’ve ever had in my life. GI told me I had esophagitis
Candida I had that colonoscopy and endoscope that day. And then that night my family doctor called and after a routine urine test he said I had very bad UTI which I had no symptoms of and told me to take Cipro
So I was taking fluconozole and 500 mg cipro
Religiously for 10 days not together I had to take it a few hours apart from each other. Sore throat never went away
So that gave me 20 more days of fluconozole and it still did not work. So GI dr set somethings going on I want to test you for HIV So got that test and it was negative
So from December 2013 to April 2014 I went down from 136 pounds and 99 pounds and they put me in the hospital and put peg tube in. And when they were prepping me for the peg tube they put Cipro in my IV in my arm turned bright red and I broke out in hives so they took it out right away. While I was in the hospital that’s when They thought that I had Sjogren’s syndrome and they started giving me the pilocarpine.
And two weeks after that hospital stay Whicj was only two days. started having the facial spasms my face with draw up that I was having a stroke went to the ER three times they didn’t know what it was send me home with Valium and my face hasn’t been the same since. just this year when I was having physical therapy on my neck and scalp etc. it triggered the facial spasms again. So then I tried Massage Therapy. and when she was working on my neck and on my scalp again it triggered the facial spasms
So I don’t know if it’s maybe my Vegas nerve which leaves all over your body and the nerves in your body causing all this tingling and stuff in my spine and All over my body. And I don’t know what the chronic hives are about although they’ve gotten better they used to be horrible. I have all those little hives that are like little mosquito bites that form in a row I had pressure hives
Anybody with Chronic hivesknows what I’m talking about
One dermatologist gave me a tiny little baby dose of a steroid and it made my hives worse so that didn’t work.
I’m hoping that whatever is going on with someday get better because my life is going by and I’m going to be 70 this year. My golden years are not what I expected.
I thnak God for every day that I’m here and for my family but this is just too hard on my family. My poor husband I feel so bad for him. It’s gotten to the point that I can’t even drive anymore the last couple years and he has to drive me everywhere which is very depressing for me
I can’t even walk to the grocery store and thank God for Amazon so I can order most of the stuff that’s not perishable. Well this ended up being a lot longer than I intended I’m so very sorry about all the rambling but I’m going to look into this 5 day testing but what do you do if you are allergic to all these chemicals and etc. do you live in a bubble. !!!

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