Body itching

Posted by Retired teacher @specialteacher, Jul 31, 2018

I’ve had almost unbearable itching for over 3 months. Was prescribed hydroxyzine, but it doesn’t seem to help. It started when I was in the ER having a very frightening allergic reaction. I was given an epinephrine iv, and a breathing treatment. My legs started to shake uncontrollably. Then I couldn’t breathe, was given an injection of something at that point. I’m taking benadryl and paxil but don’t know how much longer I can deal with this.

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@jpenner68

I know how you feel. I have asthma allergies and eczema/atopic dermatitis (often unbearable itching). The only advice i can give you is to NOT TAKE PREDNISONE for your breathing….it has horrible side effects (being that it is a steroid), it might help your bresthing for a while but gettong off of it makes your skin go nuts!!

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Cutting back on the prednisone gradually could help the withdrawal reactions. I have found that dermatologists don't really know much about their field (it has so many variables.) Have you checked the side effects of all of the meds and supplements that you take? Often one of those is the culprit.

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@gingerw

@specialteacher I thought some more about your itching issue. Has there been any change in your laundry soap recently? Any change in water [i.e. moving to a different location, or taking a trip that exposed you to something disagreeable]? Sometimes a simply change can play havoc with a sensitive system, even if it is temporary. Even if you take specific meds, if there was a change in the manufacturer of those meds, it might trigger a reaction. Please let us know what happens. We care.

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I found years ago that Ivory detergents made me itch and washing clothes in that soap simply spread the itching. As for medications, generic meds are supposed to be the same but often have different additives depending on the manufacturer; a change in color is a tip-off for that and your pharmacist is knowledgeable about this problem.

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I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies done since 2014. I usually see my dermatologist once a year, or longer if I can. So this time it's mainly on my back. Large red itchy patch over both kidney areas, red bumps on entire back stomach, and chest. Looks like measles?? Few on my arms and legs. Strangely, the arches, and ankles of my feet go wildly itchy during the night too. I called mayo, but they said my dr retired, and pushed me off until November , with a new dr who recently came on board . I went to my local physician, and only was able to see a nurse (they said dr booked up).
After looking at me, dr came in for a quick peek. They dont know what's causing it. They put on Hydroxyzine 3x day, said continue all my home care, cortisone prescription cream, baths etc. Nothing helps. The medicine does knock me out, but I wake up needing to push up my next dose. I'm miserably itchy and exhausted. The bumps burn a bit, and I have chills. No fever. Getting depressed. Been severe for over 2 weeks. Going on 3 weeks now. I need to see a dr at mayo clinic ASAP…they have all my records and I am an MGUS patient in oncology. I called them too…they said it's not related, to see the dermatologist. I cannot wait till November. I'm wondering if mayo in Florida has an E.R…maybe go there??

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Hi, @dazlin – I have merged your post with this discussion so that you could connect with others who are talking about rashes and/or itching, like @specialteacher @jpenner68 @mollyquilter @gingerw @johnbishop and others. Hoping they will have some insights for you from their experiences.

I'm sorry to hear that the treatments your local physician prescribed have not helped and you are feeling miserably itchy. I would encourage you to call Dermatology at Mayo Clinic back, and see if you can get an appointment sooner.

Is there any time of day or any conditions you've noted that make your itching worse, @dazlin?

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@dazlin

I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies done since 2014. I usually see my dermatologist once a year, or longer if I can. So this time it's mainly on my back. Large red itchy patch over both kidney areas, red bumps on entire back stomach, and chest. Looks like measles?? Few on my arms and legs. Strangely, the arches, and ankles of my feet go wildly itchy during the night too. I called mayo, but they said my dr retired, and pushed me off until November , with a new dr who recently came on board . I went to my local physician, and only was able to see a nurse (they said dr booked up).
After looking at me, dr came in for a quick peek. They dont know what's causing it. They put on Hydroxyzine 3x day, said continue all my home care, cortisone prescription cream, baths etc. Nothing helps. The medicine does knock me out, but I wake up needing to push up my next dose. I'm miserably itchy and exhausted. The bumps burn a bit, and I have chills. No fever. Getting depressed. Been severe for over 2 weeks. Going on 3 weeks now. I need to see a dr at mayo clinic ASAP…they have all my records and I am an MGUS patient in oncology. I called them too…they said it's not related, to see the dermatologist. I cannot wait till November. I'm wondering if mayo in Florida has an E.R…maybe go there??

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Hello @dazlin, I'm sorry to hear you are still battling with the severe itching. I'm sure it's really frustrating not being able to get to the bottom of what is causing it. I would try calling Mayo Clinic again to see if you can make an appointment. Here is the contact information for the Jacksonville Campus:

https://www.mayoclinic.org/patient-visitor-guide/florida/appointments

Are you able to ask your local doctor to give you a referral to Mayo Clinic Jacksonville?

John

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@dazlin

I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies done since 2014. I usually see my dermatologist once a year, or longer if I can. So this time it's mainly on my back. Large red itchy patch over both kidney areas, red bumps on entire back stomach, and chest. Looks like measles?? Few on my arms and legs. Strangely, the arches, and ankles of my feet go wildly itchy during the night too. I called mayo, but they said my dr retired, and pushed me off until November , with a new dr who recently came on board . I went to my local physician, and only was able to see a nurse (they said dr booked up).
After looking at me, dr came in for a quick peek. They dont know what's causing it. They put on Hydroxyzine 3x day, said continue all my home care, cortisone prescription cream, baths etc. Nothing helps. The medicine does knock me out, but I wake up needing to push up my next dose. I'm miserably itchy and exhausted. The bumps burn a bit, and I have chills. No fever. Getting depressed. Been severe for over 2 weeks. Going on 3 weeks now. I need to see a dr at mayo clinic ASAP…they have all my records and I am an MGUS patient in oncology. I called them too…they said it's not related, to see the dermatologist. I cannot wait till November. I'm wondering if mayo in Florida has an E.R…maybe go there??

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@johnbishop …I'm already a patient at mayo. I'll probably call again, and also call my local dr again. He gave me hydroxyzine, but it doesn't help unless I double dose. Knocks me out, but I don't care at this point. Thanks for info…I already have it all, since I'm patient there since 2013.

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@lisalucier

Hi, @dazlin – I have merged your post with this discussion so that you could connect with others who are talking about rashes and/or itching, like @specialteacher @jpenner68 @mollyquilter @gingerw @johnbishop and others. Hoping they will have some insights for you from their experiences.

I'm sorry to hear that the treatments your local physician prescribed have not helped and you are feeling miserably itchy. I would encourage you to call Dermatology at Mayo Clinic back, and see if you can get an appointment sooner.

Is there any time of day or any conditions you've noted that make your itching worse, @dazlin?

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@lisalucier …itching always there, but most definitely peaks late afternoon into the night and morning.

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You have many health issues that overlap and in my case one autoimmune disease may begin that is unrelated. Keep an open mind and never assume anything based solely on your history. Think outside the box.

Have you been tested for Allergic Contact Dermatitis, ACD, a form of eczema? My itching was unbearable and what was confusing to doctors was the internal itching, burning and stinging inside my skin without rashes. I was unable to sleep as ones histamines are elevated during the evening, like you and others whose itching increases in the evening. Sleep deprivation is a form of torture and I would lay in bed at night planning the cleanest and least painful way to commit suicide. A new day just meant more misery. It's difficult to get others to understand a pain that they can't see.. After 5 Day Extended Patch test, (Goggle this test which gave me my life back) I learned I was severely allergic to 5 natural and chemical elements now in middle age but which my body tolerated for decades. I can never come in contact with these everyday contacts as the reaction is worse with each contact. True I also have had Chronic Lymphocytic Leukemia, CLL, for 15 years when my severe ACD began, but my eczema appears to be unrelated to my CLL. Yet if one has one autoimmune disease we are likely to get another. In spite of my contact eliminations which are thorough, I still need to get a Kenalog 40, a corticosteroid, shot annually because after about 10 months from being given the shot the internal random taser like stings and itching which radiates inside my skin slowly will start up again, even with all my contact elimination.

Dazlin like you are searching. my obsessive searching led to my discovery of the ACD 5 Day Extended Patch. Surprisingly no dermatologist had recommended it to me. Medicare paid for it. It is not the 30 minute office visit prick test for environmentals. If seeing a dermatologist or allergist check first that they are licensed to perform this test, test kit companies require additional education and licensing which not all doctors have completed. Since testing I have developed 2 new forms of eczema to add to my growing list of eczema types, each having different triggers and requiring different treatments and with symptoms that may be similar but with differences. All include itching and pain. Surprisingly I am in great shape today. Leading a productive and 98% pain or itch free life today. I know I will have issues in the future due to the chronic nature of eczema/dermatitis, yet now am prepared and am so glad I was as persistent as I was leading my doctors to help identify the names of my types of eczema and work toward a control program for me. It has taken me hours of my own time searching and multiple dermatologists and an allergist to give me all the answers I have been given. Proudly I can say I have learned much over the internet and I have helped them change treatments and figure out the correct name for my new types, since most doctors don't look further with eczema assuming it is the original form diagnosed.

When all hope dies, our spirit dies along with it. I would have sold my soul to the devil to get 15 minutes free of a pain; I know first hand the misery of 24/7 pain and was near the breaking point! I write this in hope that you can stay resolved to figure out your issues and no longer suffer.

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@gardeningjunkie …thank you so much for your reply. I put another call into mayo, both my dermatologist and scheduling. They again said, nothing open until November. But said they'll call me back. I then called my local physician who saw me last and asked to increase meds or do something else for me.
Neither place has yet to return my call as of 2pm now. I'm beyond frustrated and yes, no one can relate to my misery. Top off things, no one seems to care. I just came home errands, and I honestly can say, I'm wiped out and feel exhausted.
I dont know who else to contact at mayo, but this seems so un-like them. I explained I'm an existing patient, yet they put me off until November with new guy who just came on board. My own dr here isn't making any exceptions for me either, yet he peeked quickly last week and saw the severity of my mass of red itchy rashes, that look to me like measles. I guess I have to wait and see if my local drs office calls back….what else is left?
A bridge??

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I am so sorry you have had so many issues. A while back I told everyone about HEMP lotions and oil I use. Believe me my Drs at University refuse to write scrips and leave this to my primary. She is very sensitive to my issues and will increase my meds but prefers not to. I found the Hemp store in my sports medicine building where I get my shots. First class shop. Not cheap but it works. The lotion takes my pain away. I just got shots in my neck this morning. 3 on each side. Lidocaine I believe. It takes everything out of me. I go home and sleep for hours. Next week my lower back again. Hang in there. If you live in a state where Marijuana is legal. Please please try the oil.

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@dazlin

@gardeningjunkie …thank you so much for your reply. I put another call into mayo, both my dermatologist and scheduling. They again said, nothing open until November. But said they'll call me back. I then called my local physician who saw me last and asked to increase meds or do something else for me.
Neither place has yet to return my call as of 2pm now. I'm beyond frustrated and yes, no one can relate to my misery. Top off things, no one seems to care. I just came home errands, and I honestly can say, I'm wiped out and feel exhausted.
I dont know who else to contact at mayo, but this seems so un-like them. I explained I'm an existing patient, yet they put me off until November with new guy who just came on board. My own dr here isn't making any exceptions for me either, yet he peeked quickly last week and saw the severity of my mass of red itchy rashes, that look to me like measles. I guess I have to wait and see if my local drs office calls back….what else is left?
A bridge??

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@dazlin I hope there is a way for you to cope, besides a bridge. Have you tried acupuncture to address the energy system, that might help block some reaction.
@gardeningjunkie thanks for your post. Finding out things like you did gave you power to deal with the issues. And kudos to you for educating your Drs so they might be more open-minded and help other patients.
Ginger

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@oregongirl

I am so sorry you have had so many issues. A while back I told everyone about HEMP lotions and oil I use. Believe me my Drs at University refuse to write scrips and leave this to my primary. She is very sensitive to my issues and will increase my meds but prefers not to. I found the Hemp store in my sports medicine building where I get my shots. First class shop. Not cheap but it works. The lotion takes my pain away. I just got shots in my neck this morning. 3 on each side. Lidocaine I believe. It takes everything out of me. I go home and sleep for hours. Next week my lower back again. Hang in there. If you live in a state where Marijuana is legal. Please please try the oil.

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I've been experimenting with CBD oil (which comes from the hemp plant) which is legal and reported to help reduce inflammatio, and both arthritis and eczema are inflammatory conditions. I don't want the THC, psychoactive ingredient in MJ. I can't say I saw any benefit from a break out eczema rash of Perioral Dermatitis last month, the antibiotic and Elidel helped and now gone, but the CBD definitely moderates the ache of mild arthritis pain, the deep issues related to pressure on knees or wrists when pressure is applied are the same. Biggest surprise is the mellow factor. I take the recommended method of placing drops under the tongue and then not swallowing for a minute, because saliva breaks it down for absorption. Stomach acids are inefficient, putting in food or using topically utilizes significantly less of the the CBD. I do sleep deeper and my stress level is lower. In fact I can't take more than 4 drops a day of the 1000 strength of CBD isolate pure oil without feeling too mellow and a bit lazy. After experimenting now for 4 months find I am better off dosing my 4 drops all before bed, not 2 in the morning and 2 at night. Everyone must find their own dosage strength. It is said to also take about 3 weeks to notice benefits. I now take more time out to smell the roses than worry about all my never ending and truly excessive projects I am dealing with or the future of my health. CBD oil is expensive, yet our federal congress just passed a law legalizing the growing of hemp for medical and commercial purposes. By this time next year with the crops coming in the cost should drop dramatically.

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