Body itching

Posted by Retired teacher @specialteacher, Jul 31, 2018

I’ve had almost unbearable itching for over 3 months. Was prescribed hydroxyzine, but it doesn’t seem to help. It started when I was in the ER having a very frightening allergic reaction. I was given an epinephrine iv, and a breathing treatment. My legs started to shake uncontrollably. Then I couldn’t breathe, was given an injection of something at that point. I’m taking benadryl and paxil but don’t know how much longer I can deal with this.

I got this one…I have better ones…cant seem to post them…I'll keep trying

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@dazlin

@gardeningjunkie …thank you so much for your reply. I put another call into mayo, both my dermatologist and scheduling. They again said, nothing open until November. But said they'll call me back. I then called my local physician who saw me last and asked to increase meds or do something else for me.
Neither place has yet to return my call as of 2pm now. I'm beyond frustrated and yes, no one can relate to my misery. Top off things, no one seems to care. I just came home errands, and I honestly can say, I'm wiped out and feel exhausted.
I dont know who else to contact at mayo, but this seems so un-like them. I explained I'm an existing patient, yet they put me off until November with new guy who just came on board. My own dr here isn't making any exceptions for me either, yet he peeked quickly last week and saw the severity of my mass of red itchy rashes, that look to me like measles. I guess I have to wait and see if my local drs office calls back….what else is left?
A bridge??

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If you send photo to this blog on Mayo we can take a look and perhaps someone following may have some ideas or have had a similar rash with more specific idea. Also if you join Inspire on the interent and start a discussion about your rash, add your photo to your discussion. You are searching for a cause to your itching and also rash, so I would recommend site about skin, there are many. Inspire cause just about every common disease. I am on the eczema site, but you don't even know if you have eczema. Still explain your situation and some may have suggestions like checking on lupus, celiac disease, psoriasis and so on. Many diseases have specific rash characteristics so the more eyes that see it the better. You have an array of reason for this rash because of multiple confusing issues but Inspire is a vast network of others with rashes either known or unknown seeking knowledge and they got me started even knowing what questions to ask my doctors, tests recommended or treatments to try.

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@gardeningjunkie …I posted pics on page 3…do you see them? This forum does not post from recent and so on…I hate that. So you have search all the pages. But, yes…I posted pics of only 2 of many areas. Hopefully someone knowledgeable will surface. Thank you for suggesting this.

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@dazlin

For those who have shared personal results on hemp and other remedies…honestly, and respectedly, at this point, 4 years on after trying many, many remedies , I'm not about to take on anything else. I'd like to mention ..I went to the extreme of growing peppermint plants. One of many remedies
I boiled the leaves, cooled the water…and rinsed myself, especially my itchy scalp(biopsies done of scalp too). NOTHING HAS HELPED. I tried natural topicals from health food stores…I could go on.
Again I appreciate the suggestions…let's pray I get to the source and get some relief .
Hopefully you all, that experience any discomfort with skin issues, the LARGEST organ of our body..
can resolve any discomforting issues. Thanks to all that responded to me!!

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@dazlin – A story that might surprise you. I have a neighbor that had a rash and no one could figure out what was causing it.
She had a hip replacement a few years before the rash showed up. It turned out that she had cobalt poisoning from the cobalt in the joint of the hip replacement. Maybe they need to be checking you for metal poisoning or at least going down a different road.

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@dazlin

Yes…how do I do that? I dont think photos are allowed here.

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Thanks for your explanation. Darling mug shot!

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@dazlin

@gardeningjunkie …I posted pics on page 3…do you see them? This forum does not post from recent and so on…I hate that. So you have search all the pages. But, yes…I posted pics of only 2 of many areas. Hopefully someone knowledgeable will surface. Thank you for suggesting this.

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It looks similar to an eczema rash I get, so check out al eczema sites online that have photos that look your your style rash. Search for eczema rash photos. Eczema has a dozen different forms.
My torso rash, a form of eczema less common and has specific commonalities and is called Grover's Disease or Transient Acantholytic. Dermatosis, TAD. It is specific to the torso area front which includes the abdomen and back torso and normally doesn't leave the trunk area, but for some can progress down arms or up neck. Most with it have a form of leukemia, lymphoma or other autoimmune disease, another form of eczema, have had a recent hospital stay of about a week which required bed rest afterwards, have abused their skin spending too much time in the sun, are mature adults and I had all these criteria. The only one I didn't meet was that more men have it than women. My first outbreak lasted 1 year which is normal, but have had 2 subsequent recurrences which lasted 6 months each and each time the outbreak is less severe. It is not triggered by contact allergies, but by heat, sweat and friction.
Something is causing your rash, my 4 forms of eczema have overlapping symptoms (rash) and all manifest if unique ways also. I sure would explore the eczema possibility.

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Just about the time when I think it is under control. It breaks out again. I hate it. They say NOT to take hot showers and use Dove soap. I have yet to give into the cold showers. Sorry. I guess I will die with this. The doctor keeps filling my script.

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Have you searched the internet for possible parasite infestation? After months of searching, I finally found what I think is my problem (Margellons Disease), after searching for over a year. I read where the Mayo Clinic has been researching it.

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Thank you all. I'll search the eczema sites.
@gardeningjunkie , your info is great…I'll look into everything. Never heard back from mayo. Guess my appointment stays at November.

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@dazlin

I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies done since 2014. I usually see my dermatologist once a year, or longer if I can. So this time it's mainly on my back. Large red itchy patch over both kidney areas, red bumps on entire back stomach, and chest. Looks like measles?? Few on my arms and legs. Strangely, the arches, and ankles of my feet go wildly itchy during the night too. I called mayo, but they said my dr retired, and pushed me off until November , with a new dr who recently came on board . I went to my local physician, and only was able to see a nurse (they said dr booked up).
After looking at me, dr came in for a quick peek. They dont know what's causing it. They put on Hydroxyzine 3x day, said continue all my home care, cortisone prescription cream, baths etc. Nothing helps. The medicine does knock me out, but I wake up needing to push up my next dose. I'm miserably itchy and exhausted. The bumps burn a bit, and I have chills. No fever. Getting depressed. Been severe for over 2 weeks. Going on 3 weeks now. I need to see a dr at mayo clinic ASAP…they have all my records and I am an MGUS patient in oncology. I called them too…they said it's not related, to see the dermatologist. I cannot wait till November. I'm wondering if mayo in Florida has an E.R…maybe go there??

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Have you had time to research Grover's Disease or Transient Acantholytic Dermatosis, a torso specific rash (rare cases migrating to arms and legs). Few derms can recognize as it is less common and incorrectly treat it as Contact or Allergic Contact Dermatitis. My first outbreak lasted 1 year, this is normal, subsequent ones not as long lasting. I also had a biopsy done for it, but success of biopsy is based on a short window, must be in the active break out stage, mine had been broken out for 5 months already and was negative. Derm and I still have no doubt it is GD/TAD as I have all the other criteria in my history, exception being that more males get this than women.

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