Bladder Cancer: High grade

Posted by barneythe2nd @barneythe2nd, Apr 21, 2018

I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.

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ella76 | @ella76 | Jul 5 1:18pm

In reply to @amu45sin "I had high grade papillary tumor that was removed. In March. The urologist did not suggest..." + (show)

Why not? Was anything done?

chrisrcolbert1066 | @chrisrcolbert1066 | Jul 6 11:26am

No, BCG First
What Hospital told you this?

mmwade62 | @mmwade62 | Jul 6 3:22pm

Always get a second opinion. I was diagnosed a year ago with high grade. I lost a kidney but still have my bladder. Unless it’s in the wall of the kidney I would definitely hold off. Every three months I get a cystoscopy and every three months they remove cancer. I don’t know how much time I have, but I make every day count and I am now here a year older still and feel fine. I go through immunotherapy I just stay on top of it.

edge41 | @edge41 | Jul 8 8:05am

Thanks, I really appreciate it. I was reading that kidney issues have the same symptoms, the doctors were saying that my kidneys are about 50%. The doctor's diagnosis better be right with my bladder.

edge41 | @edge41 | Jul 8 8:08am

If or when the cancer gets through the muscle wall and to the lymph nodes, it will spread to other parts of the body.

Colleen Young, Connect Director | @colleenyoung | Jul 22 3:47pm

In reply to @jmhope "Hello , I am new to the group . My husband just diagnosed with aggressive high..." + (show)

@jmhope, just checking in. I hope your appointment went well. How are you and your husband doing? Are you feeling confident in the treatment plan?

jmhope | @jmhope | Jul 23 12:38pm

In reply to @colleenyoung "@jmhope, just checking in. I hope your appointment went well. How are you and your husband..." + (show)

Hello ! ☺️

Our experience at Mayo was absolutely the best ! We had all of our questions answered . The urologist and oncologist were very informative , honest and we couldn’t be more thankful . We are very happy with the treatment plan so far .

djr5 | @djr5 | 2 days ago

In reply to @deb2024 "Did you have side effects from the Adstiladrin?" + (show)

@deb2024

Yes, I had a few days of low fever, and substantial fatigue for a longer period of time. Provided that Adstiladrin works on your particular cancer, it is my poinion that the side effects are a small price to pay for the results. Unfortunately, I had a cystoscopy in mid September 2025 and the doctor again found tumors in my bladder and an unusal thickening of one of my ureters and an alteration in its shape, at the point where it enters the kidney. I had a CT scan a few days later, with and without contrast, an additional Adstiladrin treatment on September 19th, and will go in for biopsies of all the suspected sites on October 24th. I have skilled physicians, excellent medical facilities and insurance that enables me to avail myself of both, so I have no complaints. I wish you the best.