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barneythe2nd
@barneythe2nd

Posts: 3
Joined: Jan 09, 2017

Bladder Cancer: High grade

Posted by @barneythe2nd, Sat, Apr 21 7:31am

I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.

REPLY

I had my bladder and prostate removed 22 years ago. I progressed well after surgery and was even released from the hospital 3 days early. After chemo the pouch simply became second nature. Just be sure to follow up on your exams for ever! I hope you have an easy experience if that’s what you elect to do. Treatments now are so much easier, with immunotherapy also becoming more prevalent. Best of luck to you.

Hi, my father received this surgery back in 2009. He has lived a wonderful normal active life.

Curious to know if he has had with this surgery any diarrhea, Vitamin B 12 deficiency, or liver and kidney function issues? Also can your father participate in all outside activities that he wants to do? Thanks

@palevsky

Curious to know if he has had with this surgery any diarrhea, Vitamin B 12 deficiency, or liver and kidney function issues? Also can your father participate in all outside activities that he wants to do? Thanks

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His kidney function did decline but not until recently. And he also had a benign tumor on his kidney which needed to be removed prior to the neo bladder surgery. So his full kidney function was not working back then. He also just recently has went thru 9 rounds of chemo therapy which back when he received his new bladder they didn't do chemo with it. Now they most of the time so. And yes he could participate in everything no restrictions.

@barneythe2nd. Hope this helps: our friend has a "rebuilt" bladder as a result of bladder cancer. He used to say that he'd never live to see his daughter graduate from high school. I'm happy to report that he did see her graduate from high school. And college. And law school. And married. And have three children. He frequently drives 13 hours to visit his grandchildren. His only concession: he now takes two days to drive instead of one, but then again, he's 70 and has a heart condition.

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