1. < Bladder Cancer

Bladder Cancer: High grade

Posted by barneythe2nd @barneythe2nd, Apr 21, 2018

I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.

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skybolt | @skybolt | 5 days ago
In reply to @chucklesg "I am happy to share my personal experiences. Also, I belong to an Ostomy Support Group..." + (show)
@chucklesg

I am happy to share my personal experiences. Also, I belong to an Ostomy Support Group here and there may well be one close to you. Others at these groups also are very helpful.

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Hi Chuck, my husband is almost done with neoadjunct chemotherapy and is now facing surgery for MIBC T2. We are really leaning towards the ileal conduit because it seems less complications and less kidney problems. Can you link me to the ostomy groups? How did you do the early days after surgery? Thank you in advance.

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skybolt | @skybolt | 5 days ago
In reply to @jowilliams1 "Every location is different on turn around time. Im in the Cincinnati area and did not..." + (show)
@jowilliams1

Every location is different on turn around time. Im in the Cincinnati area and did not receive care at Mayo. Two weeks after my turbt I had a port put in and the following week started chemo. My turn around was very quick thankfully. I hope things go well tomorrow!!

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Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

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2 replies
jowilliams1 | @jowilliams1 | 5 days ago
In reply to @skybolt "Hi, can you tell me how long after chemo did you have your surgery? Our oncologist..." + (show)
@skybolt

Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

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I had a little over a month between my last chemo treatment and then surgery. The doctors wanted to give me a little time between the two to gain some strength and give my body some time to recover from chemo. That made perfect sense.

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vax20071 | @vax20071 | 5 days ago
In reply to @vax20071 "How did it go, just been diagnosed with T2 highly invasive muscle cancer and have been..." + (show)
@vax20071

How did it go, just been diagnosed with T2 highly invasive muscle cancer and have been recommended bladder removal, which I’d like to avoid

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Adstiladrin is for non invasive

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1 reply
vax20071 | @vax20071 | 5 days ago
In reply to @vax20071 "Adstiladrin is for non invasive" + (show)
@vax20071

Adstiladrin is for non invasive

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c, is a gene therapy used to treat high-risk, Bacillus Calmette-Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC) with carcinoma in situ (CIS) with or without papillary tumors

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ronzee50 | @ronzee50 | 3 days ago
In reply to @jmhope "Thank you so much for the response. It’s all quite over whelming and not sure what..." + (show)
@jmhope

Thank you so much for the response. It’s all quite over whelming and not sure what to expect . I’ll have a journal I write everything down in. Was it long before a treatment plan was made? He’s already had a TURBT. Had an mri Thursday and tomorrow has a PET Scan . So I’m hoping with those being done prior, this we’ll help them .

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My doctors pretty much went for bladder removal from the beginning due to the invasive, high grade nature of my cancer. I only had to wait until I was strong enough after my chemo for the surgery.

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ronzee50 | @ronzee50 | 2 days ago
In reply to @skybolt "Hi, can you tell me how long after chemo did you have your surgery? Our oncologist..." + (show)
@skybolt

Hi, can you tell me how long after chemo did you have your surgery? Our oncologist told us 12-14 weeks recovery and the surgeon told us 4 weeks. Thanks

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My oncologist and my surgeon were agreed that 6 weeks would be enough time between the two.

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jaxfl | @jaxfl | 2 days ago

I started adjuvant ddmvac four weeks after RC.

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adohracapella | @adohracapella | 2 days ago

I understand the dilemma . After 10 years of treating low grade transitional cell bladder cancer now the bladder is not functioning anymore and the cancer has become high grade and can be aggressive
If I don’t have bladder removed at my age 79 years it would probably wouldn’t be done ar an older age.
The cancer can become low grade with medication instilled immunotherapy so as to speak.
If the oncologist feels you would benefit from chemotherapy and radiation to preserve the bladder then why not try that ?
Get all the options before you make the decision
It is not necessarily risky to have bladder removal
Depends on your age medical conditions etc
I wish you good luck !!!!

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jaxfl | @jaxfl | 1 day ago

TMT is complicated with many treatments and often results in salvage RC anyway.

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