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Bladder Cancer: High grade
I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.
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I hope for some feedback as well
Discuss trials and the adstiladrin just mentioned. Also ask on BCAN (Inspire), Reddit and Facebook.
How did it go, just been diagnosed with T2 highly invasive muscle cancer and have been recommended bladder removal, which I’d like to avoid
My low grade NMIBC was found December 2023. I had the a TURBT in January 2024, one intravesical treatment of Mitomycin and then six BCG treatments through the spring, I was in remission by June 2024, then the doctor discovered high-grade NMIBC with CIS in January 2025, for which I did not have surgery, but received Adstiladrin in March and then again this month. There is no evidence of cancer as of June 4, 2025.
In 2023 I was diagnosed with high grade non invasive papillary bladder cancer. Had 3 BCG treatments but started to have complications with this so went on the Gem/doc treatments for a year. Had 1 tumor to recur. Now on maintenance & will have another cystoscope in 2 months. Adstiladrin is a new drug that sounds very promising…has your doctor recommended this?
I just saw your update…
Did you have side effects from the Adstiladrin?
I was diagnosed with high grade bladder cancer that is in the muscle wall and close to the prostate. Both have to be removed along with two lymph nodes.
The cancer is aggressive so I will not chance it.
Yes, I had fever for several days following each treatment, muscle ache and now become fatigued more easily.