Well, waking up this morning, I find that I’m bleeding again. Not as bad as before but still fresh red blood. Taking it easy today and have taken another Vitamin K 5mg.
@debbiejp Since it's the weekend, do you please to talk with the oncologist on call?
Thank you for note from yesterday. I felt somewhat detached during the diagnostic period before and after my hysterectomy in 2019. I was shocked on the day I received the diagnosis but then within 12 hours I became very practical and figured I needed to make sure all of my financial records were discoverable by my husband and my estate was in order. I had a much more difficult time with the recurrence two years later in 2021 as my cancer was considered highly treatable with a 95% 5-year-survival rate. My gyn-oncologist told me, though, that if I experienced a recurrence it would likely be detected during physical exam at the vaginal cuff. And that's exactly what happened in 2021. So, with that recurrence I am constantly looking over my shoulder for what's next. Over time I am worrying less but it's still there in the back of my mind.
Yes, let's stay in touch here. I feel blessed to be in contact with you too. Please let me know how you are feeling and what you decide to do about the bleeding.
@debbiejp Since it's the weekend, do you please to talk with the oncologist on call?
Thank you for note from yesterday. I felt somewhat detached during the diagnostic period before and after my hysterectomy in 2019. I was shocked on the day I received the diagnosis but then within 12 hours I became very practical and figured I needed to make sure all of my financial records were discoverable by my husband and my estate was in order. I had a much more difficult time with the recurrence two years later in 2021 as my cancer was considered highly treatable with a 95% 5-year-survival rate. My gyn-oncologist told me, though, that if I experienced a recurrence it would likely be detected during physical exam at the vaginal cuff. And that's exactly what happened in 2021. So, with that recurrence I am constantly looking over my shoulder for what's next. Over time I am worrying less but it's still there in the back of my mind.
Yes, let's stay in touch here. I feel blessed to be in contact with you too. Please let me know how you are feeling and what you decide to do about the bleeding.
Thanks for the reply!! I called the service for my Ob-GYN and they said no one is available for medical questions. I was instructed to call the ER and did, got transferred to Ob nurse who told me “this line is for pregnant ladies”. The bleeding isn’t as heavy as the other day, I took another Vitamin K 5mg and am just waiting. If bleeding doesn’t get bad, I’m going to wait until Monday. At that time, I’ll get some answers. The Onocologist I worked with has retired but another really well respected MD took his patients. Everyone in the office remembers me so I’m sure I’ll be in good hands. I look forward to keeping in touch with you.
Hi there new to the group I had biopsy of mole removal on my arm before Christmas and found out it was saqmous cell carcinoma I had biopsied cause of pinching feeling sensation and still feeling pinching sensation even after biopsied. Does anyone know more about this and why I have this sensation? I am going down to an dermatologist on 19th of February 2025 They are not sure if the biopsy got it all out
@rebajay
Squamous and basal cell carcinomas are very common. Most are caused by the sun's radiation, but some can have other causes.
Most are slow growing and very treatable with great outcomes. I have had about a dozen basal cells and one squamous cell skin cancer. As a teenager and young man how, sun burn you got was how much fun you were getting in south Florida.
Now paying for that foolishness but back then it was tan, tan, tan,
Just know that skin cancers are quite common. The bad one is melanoma. The others are very treatable with many options for treatments.
I am a veteran of basal cells. All on my scalp. Over 30 years, I have been operated on 5 times, irradiated 1 time, and treated with an immune therapy of Hoffman-Roche 1 time. The cancer is still there. The oncologist is proposing another immunotherapy. Collateral effects are of all types, and the specs say that the product is not guaranteed. Dangerous reactions are possible in 40% of patients and may last a long time once treatment is finished! But it seems to me that I have become more of a guinea pig than a patient!
I am a veteran of basal cells. All on my scalp. Over 30 years, I have been operated on 5 times, irradiated 1 time, and treated with an immune therapy of Hoffman-Roche 1 time. The cancer is still there. The oncologist is proposing another immunotherapy. Collateral effects are of all types, and the specs say that the product is not guaranteed. Dangerous reactions are possible in 40% of patients and may last a long time once treatment is finished! But it seems to me that I have become more of a guinea pig than a patient!
Hello @edl189901.
You seem to have way too much experience with Basal cell cancer. Is the same tumor location recurring or are there new ones all on your scalp? Once you have skin changes from the sun exposure than you are predisposed to more developing into tumors. I was on Libtayo, an immunotherapy for skin origin metastatic squamous cell carcinoma, for a bit over 2 years. I was terrified to start it. Side effects for me were tiredness and a change in the taste of food so that appetite diminished. The list of serious side effects for these immunotherapies is long and scary. But in my experience they were looking for problems with each infusion with bloodwork and exam, prepared to treat issues or stop treatment. Perhaps a second opinion at a larger cancer center would be warranted prior to starting this new treatment? My husband and I have been driving 10 hours to Mayo Clinic in MN for 13 years for my cancer treatment. I do believe their expert care is why I am alive today. Good luck with this decision.
Hello!
Thanks for your comments!
My cancer is constantly erupting in one single location: the left temporal forehead.
If you drove to the Mayo Clinic for 13 years, I suspect your treatments have not been much more successful than mine.
As regards immunotherapy, I went through rather unpleasant side effects with the Hofman Roche treatment. Yes, my stomach suffered a lot!
Even if that treatment almost killed the basal cells, that ordeal left me now doubting that it is worth trying the Libtayo immunotherapy treatment.
Even if my cancer is a real nuisance, sometimes almost an embarrassment!
I enjoy spending time in my garden during my country’s too-short summers, and I always must wear a big leather hat!
I am also fond of meeting people because I am a writer, and human contacts are essential for me! They enrich and nourish me. But even during meetings, I still have to wear my cowboy hat, which is quite odd!
But at the end of the day, this is occasional, far less disturbing than continuously suffering unpleasant side effects for months.
Add to this that, as you are well explaining, the riskier effects can be ignored if the infusion is made in a large cancer center where the expertise of the personnel is a guarantee that they can intervene promptly to help the patient.
That is not the case here; the infusion happens in a private clinic with one nurse supposedly equipped with the required training.
A last observation: when I asked for details on statistics of fatal occurrences percentage, and on the training of personnel, etc., I was instructed to go to the company website.
It was very instructive!
I got detailed information on the company's financial success and progress over the year in the market!
There are no statistics or information on where the nurses are trained!
It could be - I don't imply it is - that the nurse is an independent operator contracted by the manufacturers.
Who proves her training is comparable to the professionalism of a large cancer center such as the Mayo Clinic and its nurses?
Well, I may be too cranky!
To be less pessimistic, it is better to wait a few more months to free myself of the February blues that winter nourishes in Canada.
They make me too skeptical about many things!
But I am grateful for your comments! Now, my skepticism is much better founded than before
Thanks again, and all the best to you!
@debbiejp Since it's the weekend, do you please to talk with the oncologist on call?
Thank you for note from yesterday. I felt somewhat detached during the diagnostic period before and after my hysterectomy in 2019. I was shocked on the day I received the diagnosis but then within 12 hours I became very practical and figured I needed to make sure all of my financial records were discoverable by my husband and my estate was in order. I had a much more difficult time with the recurrence two years later in 2021 as my cancer was considered highly treatable with a 95% 5-year-survival rate. My gyn-oncologist told me, though, that if I experienced a recurrence it would likely be detected during physical exam at the vaginal cuff. And that's exactly what happened in 2021. So, with that recurrence I am constantly looking over my shoulder for what's next. Over time I am worrying less but it's still there in the back of my mind.
Yes, let's stay in touch here. I feel blessed to be in contact with you too. Please let me know how you are feeling and what you decide to do about the bleeding.
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@debbiejp Since it's the weekend, do you please to talk with the oncologist on call?
Thank you for note from yesterday. I felt somewhat detached during the diagnostic period before and after my hysterectomy in 2019. I was shocked on the day I received the diagnosis but then within 12 hours I became very practical and figured I needed to make sure all of my financial records were discoverable by my husband and my estate was in order. I had a much more difficult time with the recurrence two years later in 2021 as my cancer was considered highly treatable with a 95% 5-year-survival rate. My gyn-oncologist told me, though, that if I experienced a recurrence it would likely be detected during physical exam at the vaginal cuff. And that's exactly what happened in 2021. So, with that recurrence I am constantly looking over my shoulder for what's next. Over time I am worrying less but it's still there in the back of my mind.
Yes, let's stay in touch here. I feel blessed to be in contact with you too. Please let me know how you are feeling and what you decide to do about the bleeding.
Thanks for the reply!! I called the service for my Ob-GYN and they said no one is available for medical questions. I was instructed to call the ER and did, got transferred to Ob nurse who told me “this line is for pregnant ladies”. The bleeding isn’t as heavy as the other day, I took another Vitamin K 5mg and am just waiting. If bleeding doesn’t get bad, I’m going to wait until Monday. At that time, I’ll get some answers. The Onocologist I worked with has retired but another really well respected MD took his patients. Everyone in the office remembers me so I’m sure I’ll be in good hands. I look forward to keeping in touch with you.
@dar2loves, how did the appointment with the dermatologist go yesterday? Any update?
I am a veteran of basal cells. All on my scalp. Over 30 years, I have been operated on 5 times, irradiated 1 time, and treated with an immune therapy of Hoffman-Roche 1 time. The cancer is still there. The oncologist is proposing another immunotherapy. Collateral effects are of all types, and the specs say that the product is not guaranteed. Dangerous reactions are possible in 40% of patients and may last a long time once treatment is finished! But it seems to me that I have become more of a guinea pig than a patient!
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Helpful -
Hug
1 ReactionHello @edl189901.
You seem to have way too much experience with Basal cell cancer. Is the same tumor location recurring or are there new ones all on your scalp? Once you have skin changes from the sun exposure than you are predisposed to more developing into tumors. I was on Libtayo, an immunotherapy for skin origin metastatic squamous cell carcinoma, for a bit over 2 years. I was terrified to start it. Side effects for me were tiredness and a change in the taste of food so that appetite diminished. The list of serious side effects for these immunotherapies is long and scary. But in my experience they were looking for problems with each infusion with bloodwork and exam, prepared to treat issues or stop treatment. Perhaps a second opinion at a larger cancer center would be warranted prior to starting this new treatment? My husband and I have been driving 10 hours to Mayo Clinic in MN for 13 years for my cancer treatment. I do believe their expert care is why I am alive today. Good luck with this decision.
-
Like -
Helpful -
Hug
3 ReactionsHello!
Thanks for your comments!
My cancer is constantly erupting in one single location: the left temporal forehead.
If you drove to the Mayo Clinic for 13 years, I suspect your treatments have not been much more successful than mine.
As regards immunotherapy, I went through rather unpleasant side effects with the Hofman Roche treatment. Yes, my stomach suffered a lot!
Even if that treatment almost killed the basal cells, that ordeal left me now doubting that it is worth trying the Libtayo immunotherapy treatment.
Even if my cancer is a real nuisance, sometimes almost an embarrassment!
I enjoy spending time in my garden during my country’s too-short summers, and I always must wear a big leather hat!
I am also fond of meeting people because I am a writer, and human contacts are essential for me! They enrich and nourish me. But even during meetings, I still have to wear my cowboy hat, which is quite odd!
But at the end of the day, this is occasional, far less disturbing than continuously suffering unpleasant side effects for months.
Add to this that, as you are well explaining, the riskier effects can be ignored if the infusion is made in a large cancer center where the expertise of the personnel is a guarantee that they can intervene promptly to help the patient.
That is not the case here; the infusion happens in a private clinic with one nurse supposedly equipped with the required training.
A last observation: when I asked for details on statistics of fatal occurrences percentage, and on the training of personnel, etc., I was instructed to go to the company website.
It was very instructive!
I got detailed information on the company's financial success and progress over the year in the market!
There are no statistics or information on where the nurses are trained!
It could be - I don't imply it is - that the nurse is an independent operator contracted by the manufacturers.
Who proves her training is comparable to the professionalism of a large cancer center such as the Mayo Clinic and its nurses?
Well, I may be too cranky!
To be less pessimistic, it is better to wait a few more months to free myself of the February blues that winter nourishes in Canada.
They make me too skeptical about many things!
But I am grateful for your comments! Now, my skepticism is much better founded than before
Thanks again, and all the best to you!
I am sorry you went through such an ordeal. I have no bleeding. My squamous basal cell is usually dry. Regards