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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 If they start growing they would have to do something. I'm not sure I would go back to the same doctor.
@nannybb oh I thought they done a biopsy already on them they told me mine was chick pea size
On me, they only biopsied one. I have no idea how or when they even found the other 3. I have yet to understand any of that. I did ask to see where they were located in my lungs. He did do that. He gives me very limited explanations. I only seem to get partial answers, and only when I ask questions on my own.
Jess, see if you can look up "Carcinoid Cancer Foundation ". I don't remember how I found it directly and I can't find a proper link to post. If you can locate it, there is excellent information, including 6 questions your doctor. Let me know...💕
@nannybb I've found it
👍 Find anything that is helpful? Your case seems to be pretty complicated, as you have had so many commodities. Hopefully you will get answers and real help soon. 💕
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1 Reaction@nannybb yes loads...thank you so much 🥰 @tomrennie @californiazebra how are ye doing
I was wondering the same thing. Where did everybody go? Hope all is well. And I'm glad if you got some help!
@nannybb thank you so much ❤️ ya me also
Haven't been on in a few days how's everyone doing