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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 When was the last time they checked your oxygen saturation level? My doctor did ask me to get a pulse oximeter so I could take readings when I get tired or winded on my walks. I told him it's been fine at my doctor visits, but he wants to know what happens when I exert myself.
@nannybb there's still half of tumor left in my lobe they only removed half of it I've also told my pulmonary specialist about the pain in Sept he said the callapse is in a very narrow part of my lung at the end he said pain could be my chest wall been inflamed I've asked my GP last week will I need antibiotics that I might have infection she said no it's over every thing that's going on it will all ease wants its removed I don't no really what's going on I'm getting no answers
@nannybb oxygen levels are 98 99 my gp listened to my chest last week she said there's good air getting in and out of my lung I've had a pulmonary function test also came back excellent
@jessie1990 That really is excellent!!
@nannybb just this pain now is driving me bananas
I know what you mean.
When the doctor asked me whrre it hurt yesterday, it was like where doesn't it hurt? I have trouble explaining how it feels. Sharp, and still kinda numb. You too? Or just sharp? Can you take anything for the pain? It's annoying for sure.
@nannybb mine is sharp when I take deep breaths but my lung is achey constantly ive had alot done to my lung i no like i said before ive had pneumonia a callapse and abcess along wit tumor in that lung but i didnt think it be sore this long i take salpadol I don't no do ye have them where you live it doesn't work really
@jessie1990 I looked it up, and it says it's for moderate pain relief. Have you ever taken hydrocodone? It was suggested as s better pain med. for muscle/skeletal pain. What you are on is a scheduled drug, yes?
@jessie1990 That's what kinda happened to me too. I was seeing several doctors, and none of them seem to agree. So dang frustrating. I'm wondering what test they use to rule out inflammation. You don't have a fever...right?
@nannybb nope no fever just pain