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Been to an Epilepsy Monitoring Unit? What’s it like?
The Patient Experience Nursing Team at Mayo Clinic would like your help in making the experience in the Epilepsy Monitoring Unit at Mayo Clinic the best it can be. If you chose to take part in the survey, thank you! The survey is now closed.
In addition to the survey information, let’s talk about your experiences in an open discussion here on Connect.
What it is like to be in the monitoring unit, to be attached to electrodes while waiting to have a seizure? If you were preparing a friend to have a stay in an Epilepsy Monitoring Unit, what advice would you give them?
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Hi @lauragal
Thank you so much for your kind words!💜
I'm glad you've found the Epilepsy & Seizures Group at Mayo Clinic Connect. Thankfully, today we have technology that lets us connect with people who truly understand us, no matter where we are in the world.
Actually, my husband and I dream about moving to a smaller, quieter city one day. With today's technology, it feels more possible than ever!
Just out of curiosity, since Covid, most of my sessions with my neuropsychologist have been virtual, and honestly, it works beautifully. It's been such a relief, especially since I can no longer drive and the traffic in my city is crazy. She has helped me enormously with accepting my epilepsy and all the life changes it brought.
Have you considered virtual support from a psychologist or neuropsychologist as an option?
Chris
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