Bariactric surgery complications

Posted by lauries2023 @lauries2023, Sep 13, 2023

My daughter had the surgery three years ago and has been on a decline ever since, she can’t walk or use her hands or even talk anymore. She is severely malnourished, she has a TPN that just makes her more sick and she can’t even eat food anymore since she’s gotten the port. We have been to doctors and the hospital for help and they just say her blood works fine there’s nothing we can do. We need help as soon as possible, I don’t think her regular doctor can help
If some could please help me save my daughter ❤️

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Profile picture for ziggypepper @ziggypepper

@dlc1953
I am going through that for the past two years.
I was chronically low for over 15 years then all of a sudden results are coming back greater than 2000!
No one will address it. I also have major balance issues. I am a long term Mayo patient. Mayo ignores it like it is nothing.
I did a workshop with Bariatric Advantage on vitamin deficiencies and at the end a case of a patient was discussed with high B12 et al. It was diagnosed as SIBO. I’ve talked to a bariatric center they think I’m crazy. I took the presentation to them. They dismissed it.
Cleveland Clinic had an article on SIBO stating the bacteria produces a toxin that is picked up by the B12 testing. There’s an antibiotic to treat. My PCP says it’s expensive and not covered by Medicare.
So frustrating.
There is no help for us in the medical community. We are now enigmas.

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Hi, @ziggypepper, and welcome to Mayo Clinic Connect. It does sound frustrating experiencing unstable B-12 balance and deficiencies, then not finding answers.

Here are a couple of articles you may find useful about bariatric surgery and Vitamin B-12. One is from Mayo Clinic's Health System and one is from Surgery for Obesity and Related Diseases:

- Should I take vitamins and supplements after weight-loss surgery? https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/should-i-take-vitamins-and-supplements-after-weight-loss-surgery

- Vitamin B12 deficiency in patients undergoing bariatric surgery: preventive strategies and key recommendations https://www.sciencedirect.com/science/article/pii/S1550728913001664

What type of bariatric surgery did you have, ziggypepper? How are you managing your vitamin intake currently?

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