Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Don't mind my sense of humor; it is extremely warped now. Another test next Sunday.

Oh Barbara--I am absolutely sure you are never a burden on your friends!! They help you because they WANT to. Real friends stick with you more than family, this I found out the hard way. True friendship is a gift from God. Sorry I took so long to respond, and hang in there. Regards, Peggy

OMG, water under the canoe, just thinking about that incident scares me to death! And I never did cross the lake, ugh.

Dear Peggy, How are you doing? We haven't heard from you for 3 wks. Are you doing the guinia pig thing for them again? I had my usual 2 bags yesterday, and found out what was meant by not being able to handle it when I was given only one bag. I was retaining fluids and too much would be dangerous.After my driver friend left at 8:30 i must have just thrown myself on my bed;only to awake 14 hrs later. I found doors open and lights on all over the house.After setting things right,I slept another 12 hrs. Years ago I did the same thing when I was exhausted moving into this house only to wake up to find the neighbors cat sitting by my bed watching me sleep.

Hi Barbara - I think I would have been very scared to find all the doors open and lights on! I'm glad you are ok again. Those infusions seem to be very hard on your circulation.

I've reduced my venetoclax dose due to it is killing too many of my B-cells and now I'm being monitored every other week and told I have neutropenia. I'm now scared of all germs because there's less white blood cells to fight it off. I do feel much better though than when I was on imbruvica in terms of energy.

LOVE YA!!!<Barbara

Oh Barbara, I am so sorry not to have answered sooner--had a terrible time with my computer. I had the same kind of experience when I came home from the hospital, I didn't even remember getting home, taking off my winter gear and apparently going to bed. I've had total exhaustion periods many times over the years, being so dreadfully sick, getting all those toxic drugs, stress, etc. It all takes a toll. Hope you are hanging in there, trying not to freak out and putting faith in God. Having faith in God is why I am still alive. Hope you have a decent weekend without unforeseen problems. Do you have a pet, by the way? The love of an animal is quite healing!

My hgb was 5.7,but no-one pushed for me to go to ER.I went at noon Monday,and received 2 bags.My BP was too high;so they were reluctant to release me. Protocol was to send me to the BP Clinic,but they were already closed. I promised I would come in on Tues and renew my prescription,and take better of myself. Once I made the promise; I would definitely keep it.I have had 4 cats in the last few years only to lose them in unhappy ways. The Burmese was only 5 years old and our boat cat ,but he had an enlarged heart.Sydney was the vet's own declawed greeter cat ,but when they moved;they didn't have room for him.He was already 14 and when he had a need for vet service they would ask what I wanted done.I would answer It's your cat;he just lives with me.I can't tell about Inkspot and his sister-just too painful.I loved them all so much.

Oh Barbara, I am so sorry you have lost your beloved Kitties! I know exactly how you feel, it is like losing children! I have lost so many beloved pets over the many years of my life, and understand how difficult it is to talk about them. Perhaps someday a little creature will attract your attention, in a most unlikely spot. What kind of vet has no room for a cat he had 14 years? Did this vet replace Sydney for a younger pet? To me he's cold and unfeeling. Please don't give up on a furry little friend just yet, Barbara. But your health DOES come first. Hope you had a better week this far, and hang on there. Peggy

Sydney the greeter cat lived at the vet office and had his own room at night.When they hired a groomer she insisted on her own room which took precidence over Sydney even though he had the honor of being named after the vet himself.We felt very special to have Sydney come and live in our home.He became a groomer cat and took care of my husband's crew cut.