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@bflattenor

Dear Peggy, How are you doing? We haven't heard from you for 3 wks. Are you doing the guinia pig thing for them again? I had my usual 2 bags yesterday, and found out what was meant by not being able to handle it when I was given only one bag. I was retaining fluids and too much would be dangerous.After my driver friend left at 8:30 i must have just thrown myself on my bed;only to awake 14 hrs later. I found doors open and lights on all over the house.After setting things right,I slept another 12 hrs. Years ago I did the same thing when I was exhausted moving into this house only to wake up to find the neighbors cat sitting by my bed watching me sleep.

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Replies to "Dear Peggy, How are you doing? We haven't heard from you for 3 wks. Are you..."

Hi Barbara - I think I would have been very scared to find all the doors open and lights on! I'm glad you are ok again. Those infusions seem to be very hard on your circulation.

I've reduced my venetoclax dose due to it is killing too many of my B-cells and now I'm being monitored every other week and told I have neutropenia. I'm now scared of all germs because there's less white blood cells to fight it off. I do feel much better though than when I was on imbruvica in terms of energy.

Oh Barbara, I am so sorry not to have answered sooner--had a terrible time with my computer. I had the same kind of experience when I came home from the hospital, I didn't even remember getting home, taking off my winter gear and apparently going to bed. I've had total exhaustion periods many times over the years, being so dreadfully sick, getting all those toxic drugs, stress, etc. It all takes a toll. Hope you are hanging in there, trying not to freak out and putting faith in God. Having faith in God is why I am still alive. Hope you have a decent weekend without unforeseen problems. Do you have a pet, by the way? The love of an animal is quite healing!