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B-6 vitamin danger!
With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don't need him anymore! And I don't. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.
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Nice! I wish I could do the same but have not found any relief from neurapathy both hands up through elbows and feet up to knees. I now have muscle contractions in every part of my body some of which lock into odd and painful positions. We've tried many types of meds and therapies to no avail and some meds actually made it worse. Having long covid now causes more contractions and locks than before..now I just deal with each attack.
No I haven't had a QRST test/swat test yet. Thx for the information!
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1 ReactionCannabis works differently on everyone and it takes time to find your right combo and dose. Also, check with your endocrinologist regarding drug interaction between DM meds and cannabis. I do not know if it is a concern but always good to check first.
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1 ReactionCould you please share the brand and doseage of your cbd oil?
Hi @snagydude, Welcome to Connect. Unfortunately I don't think @lynsorensen who started this discussion is still following Connect. The member's last post was in 2020. Hopefully other members who use CBD oil capsules can share the brand they use. I do take 3 Tbs of cold pressed hemp oil daily as part of my neuropathy supplements which is made by Manitoba Harvest (https://manitobaharvest.com/collections/hemp-oil/products/organic-hemp-seed-oil).
I posted my neuropathy story in another discussion here -https://connect.mayoclinic.org/comment/310341/
You can find a list of other supplements found helpful for neuropathy on the Foundation for Peripheral Neuropathy's website here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
Have you been diagnosed with neuropathy?
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6 ReactionsI hope this is the right place to ask my questions. My daughter's B6 is has been going up and is now 234 and she never took supplements, drank energy drinks or vitamin water. I don't know if this is related but her Folate is higher then the machine can read and her B12 is 1832.
She has spasms, fatigue, the ends of her fingers and toes have no feeling, hands and feet feel like pins are poking her, her hands shake a lot. Her depression and anxiety have gotten worse. Her vision gets blurry and fuzzy, zones out, looses time and feels dizzy and foggy brain.
She has seen two Neurologists, both who have said there is nothing they can do but have not given an explanation of how her B6 is so high and what it affects in her body.
Is this B6 toxicity? Any recommendations if it is? Thanks for reading! Janet
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4 ReactionsWelcome Janet @bradljaa, I know it's difficult to watch your daughter suffering and not being able to get the help and answers to provide some relief. Here are a couple of references that might be helpful for understanding what may be going on:
--- Linus Pauling Institute - Micronutrient Information Center: https://lpi.oregonstate.edu/mic/vitamins/vitamin-B6. From what I've read, her symptoms seem similar to B6 toxicity.
--- Vitamin B6: https://www.hsph.harvard.edu/nutritionsource/vitamin-b6/.
From what I've read it's pretty difficult to get too much B6 through eating. You mentioned that your daughter has seen two neurologist and neither can explain why her B6 is so high and if it's related to her symptoms. Have you thought about seeking help or a second opinion at a teaching hospital or major health facility like Mayo Clinic?
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4 ReactionsThere are MTHFR genes that will cause your B6 level to be high but the cell level to be low. They are CT(677C>T) and AA(1298A>) I have one and I am in the midst of trying to figure out whether supplementation or the gene is causing my own neuropathy suffering. The problem is that too low B6 or too high B6 levels will cause the same symptoms. It is a puzzle. There is a blood test for the gene and a saliva test. You'll have to research where, near you. Read about this at easy-immune-health.com. I hope this helps.
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1 ReactionThere are MTHFR genes that will cause B6 levels to be high in blood but low in the cells, They are CT(677C>T) and AA(1298A>). I have one and I am in the midst of trying to figure whether supplementation or the gene is causing my neuropathy(like your daughter's) suffering. The problem is that too low B6 or too high B6 levels will cause the same symptoms. There is a blood test and saliva test for the gene. Read more at easy-immune-health.com. I hope this helps.(the .com has no . after it. That was just a period)
This was very interesting for me. My Vitamin B-6 is off the charts and the highest ever see by a neurologist who has been practicing for 15 years plus. Why is it so high? The question of the day is no one knows. A Google search indicated some meds that might bring it down, so will see next month with another reading. Medicare will not pay for the test!