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@sammiray0921

Good morning everyone I certainly hope that you’re doing well today. From the above, the only thing I can really gather is that it appears to be an auto immune “side effect” but from what, no one knows. In addition, it does not sound that there’s really any type of treatment to stop the madness. You don’t know how very disappointing that is for me personally. So many issues that I have appear to be that way – without answers. I am so hopeful that my upcoming trip to Mayo will enlighten me in someway. Certainly hope the cost financialky and the cist emotionally will be worth it.

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Replies to "Good morning everyone I certainly hope that you’re doing well today. From the above, the only..."

@sammiray0921, I hope you get some answers and a treatment plan that helps. One of the things that may help you is to keep a log of your symptoms, pain levels, and any questions you want to ask the doctors. This will help you communicate a little easier with the doctors. There is a discussion that may provide some suggestions for your Mayo appointment.

Groups >Visiting Mayo Clinic > Your Tips on How to Get Off to the Best Start with a New Specialist
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

Which Mayo Clinic Campus will you be going to? Other members may be able to offer some additional suggestions.

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