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At home with my new liver transplant

Posted by @rosemarya, Aug 27, 2016

Coming home after an organ transplant is one of my fondest memories! However, sometimes being at home might seem a bit overwhelming. I remember the fear of being away from the secure environment and immediate care that my transplant team provided. Even though, I was a phone call away from my team, I would have welcomed the opportunity of talking to someone who was a recipient. So, I begin this discussion. Congratulations on your life saving transplant! You are not alone. Welcome.

REPLY

Good morning, @swordfish. Once again, Congratulations on your new liver transplant! I got your message this morning. I hope that you have had a reply from your doctor and that all is going well for you. Sometimes little bumps occur as we continue the healing process, and as our body adjusts to our new medications. Rosemary

What a great topic to start @rosemarya – coming home after an organ transplant.
@coastalgirl @dglass4040 @bsox1901 @muskiemama @magrand48 @sandras @wmoser2613 please join me in welcoming @swordfish, our newest Connect member who just got a liver transplant earlier this month.

THANKYOU ALL,WOW UNBELIEVABLE . I’VE BEEN TRYING TO REACH OTHERS I’M NOT REAL HIP ON THIS PH.YETHa .YES SO THIS HAS BEEN A BEAR OF A JOURNEY FOR ME,7MNTHS OF PARACENTESIS 1X@WK! I ALSO HAVE AN UMBILLICAL HERNIA,N AN INGUINAL HERNIA TO B FIXED LATER.BEEN A ROUGH FEW DAYS,TONITE I WENT TO BLOW MY NOSE N FLUIDS JUST POURED OUT OF MY STAPLES!OH MAN . I’LL CALL THE DR.AGAIN TMRRW,HAV SOME REDNESS TOO.

@swordfish

THANKYOU ALL,WOW UNBELIEVABLE . I’VE BEEN TRYING TO REACH OTHERS I’M NOT REAL HIP ON THIS PH.YETHa .YES SO THIS HAS BEEN A BEAR OF A JOURNEY FOR ME,7MNTHS OF PARACENTESIS 1X@WK! I ALSO HAVE AN UMBILLICAL HERNIA,N AN INGUINAL HERNIA TO B FIXED LATER.BEEN A ROUGH FEW DAYS,TONITE I WENT TO BLOW MY NOSE N FLUIDS JUST POURED OUT OF MY STAPLES!OH MAN . I’LL CALL THE DR.AGAIN TMRRW,HAV SOME REDNESS TOO.

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@swordfish I am happy that you have found this discussion. It sounds like you are experiencing some bumps on your path to healing. This has all got to be unpleasant now when the thing you most desire is to heal and move forward. Be patient, and try to rest and not over do activities. Is your doctor nearby? I hope you will begin to feel better soon. Later on, when you feel up to it, would you be comfortable to share some of your story? Now that you are one of us (recipients) you are in the position to help others!…But right now, you have to focus on you. Rosemary

@swordfish

THANKYOU ALL,WOW UNBELIEVABLE . I’VE BEEN TRYING TO REACH OTHERS I’M NOT REAL HIP ON THIS PH.YETHa .YES SO THIS HAS BEEN A BEAR OF A JOURNEY FOR ME,7MNTHS OF PARACENTESIS 1X@WK! I ALSO HAVE AN UMBILLICAL HERNIA,N AN INGUINAL HERNIA TO B FIXED LATER.BEEN A ROUGH FEW DAYS,TONITE I WENT TO BLOW MY NOSE N FLUIDS JUST POURED OUT OF MY STAPLES!OH MAN . I’LL CALL THE DR.AGAIN TMRRW,HAV SOME REDNESS TOO.

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Hi ROSEMARY,I TRIED TO RESPOND TO U YESTRDAY,UNFORTUNATELY I HAD TO COME TO
ER! I WAS SEEING SIGNS,FEELING it, HAV 101 FEVER BAD ABDOMINAL PAIN N WAS
LEAKING FLUIDS FROM STAPLES.I FEEL SAFER IN HERE, MAY BE HERE ANOTHER
NITE,WAITING ON DR. & CATSCAN,ULTRA SOUND RESULTS, THANKS FOR CHECKING ON ME

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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I’M TRYING NOT TO SCREAM OUT,THIS SO PAINFUL,WILL BE IN TOUCH,THNKS

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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O my goodness. Is someone there with you? Is anyone aware of the pain? This should not be happening!
I am sending my prayers, if that’s ok. And I an reaching out my hand for you to squeeze if that helps.

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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I am just checking in to see if you are getting your needs addressed. Do not hesitate to reach out for help. Hopefully you have been able to get this addressed by now but wanted you to know you are not alone.

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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THANKU FOR YOUR CONCERNS,THE DR.CAME TO C ME”TORTURE”ME,HAD TO PULL A FEW STAPLES N INSERT,DIG IN THE SITE OF INFCTN,OMG!HA.BUT HE SAIS KIDNYS R FUNCTIONG okay,NO ABSESS VISIBLE WILL HAV THE INCISION CULTURES DIAGNOSED.NOW I HAVNT BEEN ABLE TO EAT FOR 2-3 DAYS! JUST ENSURE,YOGURT.SO I’M INPATIENT TONIGHT, C WHAT TMRRW BRINGS, THANKS AGAIN N I WILL BE SPEAKING WTH SOME OF MY SURGEONS TRX TO BE,WHEN I FEEL BETTER

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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Hi COASTAL GIRL, YES THEY GAVE ME A DOUBLE DOSE OF DELODID BEFORE N AFTER HE DUG AROUND IN INFCTION SITE, I WISH I DIDN’T LOOK WHEN HE WAS DOIN THAT PROCEDURE,LOL WOW! THANKU FOR CHECKING ME OUT

@rosemarya

@swordfish, I am happy that you are being cared for at the ER. I know that it is not fun for you. You are exactly where you need to be right now for your complications. Try to stay calm and relax. Hopefully, soon the doctor will visit and announce a treatment for you. I want to hear from you about how you are doing. Hope you begin to feel better soon. Rosemary

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I hope you are getting some relief and infection clears up soon! There are definitely some things better left unseen! Lol. I totally get it!!

THANKS COASTAL

@swordfish

THANKS COASTAL

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Thanks for the update. Your doctors are on top of it! Now you can try to get some rest. You are where you need to be right now.

I’M HANGIN ON ROSEMARY GOODMORNIN, HOWEVER I’M NOT LOOKING FORWARD TO THE DR.s VISIT THIS TIME.IM WORRIED ALL NITE HE’S GOING TO SWAB IN THÈRE AGAIN, BEEN UP ALL NITE AGAIN.WELL C WHAT HAPPENS,THANKS

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