At home with my new liver transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Aug 27, 2016

Coming home after an organ transplant is one of my fondest memories! However, sometimes being at home might seem a bit overwhelming. I remember the fear of being away from the secure environment and immediate care that my transplant team provided. Even though, I was a phone call away from my team, I would have welcomed the opportunity of talking to someone who was a recipient. So, I begin this discussion. Congratulations on your life saving transplant! You are not alone. Welcome.

@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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@swordfish I just want you to know that I’m thinking about you. And hoping that maybe you are home, now. You have been thru a lot and sometimes these things really turn everything upside down.. Rosemary

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@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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HEY THERE MY FRIEND ROSEMARY, SOUNDS LIKE YOUR DOING WELL . I’VE BEEN HOME SINCE LAST THUR.AFT.I HAD A TAKE HOME PICC LINE IV INSTALLED N BEEN ON HOME ANTIBIO,”VANCOMIASIN”2X DAY,ONE DAY LEFT.STILL A LIL SIGN OF INFECTION ON SURFACE BUT A CLEAN BILL FROM DR. TODAY! SO THEY’RE SLOWLY TAKIN ME OFF PREDNISONE TOO.I FEEL OK BAR THE ANXIETY IN WHICH I’VE MADE APPT. TO C MENTAL HEALTH INTERN.I ASKED DR. IF I COULD SPEAK TO NEW OR POST LIVER TRX RECIPNTS IF I COULD HELP,HE WANTS TO WAIT A BIT SO I’M NOT EXPOSED TO HOSP.GERMS YET.OK,THANKS AS ALWAYS FOR THINKING OF ME ROSEMARY,BLESS YOU,emmett

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@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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emmet, This is absolutely awesome news!!!! Sounds like you, and doctors are on top of it! And if it hasn’t been stressed enough: avoid germs! And keep taking care of you. Now is the time to put YOU first!! Rosemary

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@colleenyoung

Hi all,
I thought you might be interested in this short video: Stella’s Story about after a transplant at Mayo and the Help in Healing Home https://www.youtube.com/watch?v=N5EYA3rqM7g.

Here’s additional information about the Help in Healing Home http://www.helpinhealinghome.org/contact-information/.

Did either of you use the Help in Healing Home?

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HI COLLEENYOUNG,THAT WAS A GOOD VIDEO,THANKS FOR SHARING IT.

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@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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So glad you are home and headed in the direction of healing. Reach out as often as you need to help keep you encouraged and strong. There is definitely domething reassuring just hearing from someone that understands.
Think of us here as your cheerleaders. It can boost your spirit as nothing else can.
Blessings!!

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@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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KEEP ON CHEERIN!WE’RE OUT HERE US NEW TRX’s, GLAD YOUR LISTENING COASTALGIRL,I’M USING MY LAST ANTIBIO FLUID IV NOW,I’LL C WHO TAKES THE PICC LINE OUT,HOSP. IM GUESSING.THANKS AGAIN FEELING BTTR AGAIN.

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@swordfish

THANKS AGAIN ALL OF YOU, I’LL BE STAYING THE NITE AGAIN,I HAD A PARACENTESIS THIS A.M.5 LITRES TO GET SOME TESTS& TO ALLEVIATE SOME OF THE PRESSURE, THE RADIOLIGIST SAYS THERE’S PROBABLY 10 IN THERE!I FEEL RELIEF FROM THAT LIL BIT .SUPPOSEDLY I CAN GO HOME TMRRW.AFTRNOON.ILL BE IN TOUCH WHEN I’VE LEARNED MORE, I THINK THEY’RE SAYING IT’S MURSA!

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Wonderful news!!

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