Ascending Aortic Aneurysm & Stage 1 Diastolic Dysfunction

Posted by anniejam @anniejam, Jun 19, 2019

I just had an echo done and the aneurysm seems stable. Why can't a stent be put into it instead of open heart surgery? Also what is this stage one about?Thanks! ann

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Did you have to travel far for your surgery? I am 1,800 miles from Mayo and that concerns me. We are thinking of moving to Rochester as my husband also has heart issues of a different kind. In June we visited and thought it a very nice city. Dr. Pochettino is my choice too. I hope to meet him next spring.
Thank you for your kind reply Carol.
Deby

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@ginko

Did you have to travel far for your surgery? I am 1,800 miles from Mayo and that concerns me. We are thinking of moving to Rochester as my husband also has heart issues of a different kind. In June we visited and thought it a very nice city. Dr. Pochettino is my choice too. I hope to meet him next spring.
Thank you for your kind reply Carol.
Deby

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We travel about 400 miles to Mayo from Illinois. It has not been a problem to be away from there as after the first year which involved 2 post op checkups, I now go once a year. Because I take methotrexate for giant cell arthritis, I have my blood checked every 3 months but this can be done at home. I am much closer than you so I understand your dilemma of whether or not to move.
BTW, Dr Pochettino is the best, I think.
Carol

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@kanaazpereira

Hi @tj1778 and @anniejam,

Ascending aortic aneurysms (or dilated ascending aorta) are a type of thoracic aortic aneurysms or aneurysms that occur in the chest area above the diaphragm. They are the second most common type of aortic aneurysms.
Doctors usually treat small aneurysms with beta-blockers, but if the aneurysm is large or growing rapidly, it will require surgery. https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/diagnosis-treatment/drc-20350193

Diastolic dysfunction means that your heart may not be relaxing enough between beats, which limits the amount of blood the ventricles can collect, and the heart has to work harder. The mildest form is called an "abnormal relaxation pattern", or grade I diastolic dysfunction. https://www.mayoclinic.org/medical-professionals/cardiovascular-diseases/news/heart-failure-with-preserved-ejection-fraction-hfpef-more-than-diastolic-dysfunction/mac-20430055

I’d like to bring in other members who may have experiences to share. Please meet @degarden_girl @laverne @crhp194 @rory @morninglory @jend @thegoodwife @thankful @ch246cf10 @debbydiane @janet26 @Drew944 @twocents @prward

It may also be helpful to check out this information from the American Academy of Cardiology: https://www.cardiosmart.org/Heart-Conditions/Aortic-Aneurysm/Questions-to-Ask-Your-Doctor

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Thank you @kanaazpereira. These urls have terrific explanations of everything we "victims" are concerned about.

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@crhp194

We travel about 400 miles to Mayo from Illinois. It has not been a problem to be away from there as after the first year which involved 2 post op checkups, I now go once a year. Because I take methotrexate for giant cell arthritis, I have my blood checked every 3 months but this can be done at home. I am much closer than you so I understand your dilemma of whether or not to move.
BTW, Dr Pochettino is the best, I think.
Carol

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I live in Bloomington il.

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I am in stage 1 of diastolic dysfunction. Is that what you mean? I think the surgery type depends on the location of the aneurysm.

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@crhp194

If you have questions, I would be happy to try to answer them. I had an aneurysm bigger than 5cm. At that size, surgery is indicated. At the age of 72, I had open heart surgery to repair the aneurysm at Mayo. I really got along fine after the surgery and was back to feeling very good within 2 weeks. Then I did rehab starting after 4 weeks and have had no problems. At the time of the surgery I also had giant cell arthritis which was treated with prednisone and an anti- inflammatory. All has gone well. Best to you, Carol

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Very encouraging. I am 75 with 5.0 ascending thoracic aneurysm. Found 3 years ago at 4.9. I am having a good bit of tingling in torso. My next echo and scan is in June.Did you have tingling/,burning?

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I don’t have tingling or burning. Think you should probably call or write your doctor. My aneurysm is now over 5. I was checked at Mayo in August, 2024. Doctors are now waiting until around 6 to do anything. I have to trust someone so I’m sticking with Mayo’s judgment. Still if you have those symptoms, I believe you should talk to your doctor.
Good luck to you!

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I just want to say Good luck to all who have the ascending aortic aneurysm. Best of luck with your surgeries and going forward. Love to all.

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@crhp194

I don’t have tingling or burning. Think you should probably call or write your doctor. My aneurysm is now over 5. I was checked at Mayo in August, 2024. Doctors are now waiting until around 6 to do anything. I have to trust someone so I’m sticking with Mayo’s judgment. Still if you have those symptoms, I believe you should talk to your doctor.
Good luck to you!

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Thank you for your response. Although my scan is scheduled for June 4th I will contact my doctor before that. May I ask if you have any symptoms at all?

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No, I don’t have any symptoms now. I had to have my first aneurysm fixed with open heart surgery. The one I still have doesn’t bother me at all. No symptoms still but my heart has gone into A-fib. I haven’t felt the A-fib either. But I am short of breath on steps and fatigued. I am 81 years old so I guess one has something wrong.
As for your tingling, it might not be related to your aneurism. It’s often said about aneurysms that they are silent until there’s trouble.
I sincerely hope that all goes well for you. If you get a chance I would love to hear how everything works for you.

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