Aortic stenosis and regurgitation/leaky valve

Posted by nanadoris @nanadoris, Nov 16, 2017

My cardiologist has been monitoring me for about 2 years and at my last echo it was a 1.1. I have days when I’m so tired for no apparent reason to the point that I just sit in my recliner most days. Has anyone else had this problem?

@nanasova You mean the recliner or the echo….Sorry. I am in my recliner about half of all the time I am awake.

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Is Aortic stenosis the same as a calcified aorta? I have had stenosis in my neck for several years and have been told recently that I have a calcified aorta.

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@kibwezi

Is Aortic stenosis the same as a calcified aorta? I have had stenosis in my neck for several years and have been told recently that I have a calcified aorta.

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I should have said aortic valve stenosis and regurgitation.

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@oldkarl

@nanasova You mean the recliner or the echo….Sorry. I am in my recliner about half of all the time I am awake.

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feeling tired w/o doing anything.

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Hello @nanadoris,

Welcome to Connect. I’d like to introduce you to @divmercy @ch246cf10 @carlyne @beagen06 @mimi68 @lynnkay1956 @ronbee @eugeneo @shakuni11, Mentor @hopeful, and invite them to join this discussion as they might have some insights to share.

Also, I encourage you to view this information from Mayo Clinic about aortic valve stenosis: https://www.mayoclinic.org/diseases-conditions/aortic-stenosis/symptoms-causes/syc-20353139

@nanadoris, have you told your cardiologist about the fatigue? Unfortunately, fatigue seems to be a symptom of aortic valve stenosis; may I ask if you are taking any medication that could possibly cause you to be tired, as a side effect?

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have been dealing with aortic stenosis and regurgitation for years… Lately fatigue and shortness of breath are getting worse… going to see cardiac surgeon on wednesday…

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Yes; I have days like that. I have severe aortic regurgitation and my cardiologists wants me to do open heart surgery. Will find out may 7 Why have you waited for 2 years?

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I was just told I needed open heart surgery for aortic regurgitation. Going to see surgeon on May 7. Little or no symtoms other than fatigue and palpitations from time to time. Was told that things will get worse and to do it soon. I Would like comments. Thanks

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Just got new heart valve at Mayo 10 days ago. At home now. Still pretty weak

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@sapphira

My internist informed me years ago that I have leaky heart valves and since I had Takasubo episode 3 yrs. ago, I have an ekg every 8 months or so. I’ve asked him if the leaky valve condition could go back to having had Scarlet Fever as a small child as I recall hearing the Doctor at bedside telling my parents that if I recover (almost died), I might have a heart murmur. My doctor confirmed that I’ve always had the leaky valve condition all the many yrs. I’ve seen him (was my parent’ internist/cardiologist) and I’m just turning 88yrs in Oct. Like to have more info. on this condition and what it means for my heart health at this time.

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My doctor has also told me I have a leaky valve but he said it wasn't bad enough to do anything about it. He also said I have Afib and am on Eliquis (a blood thinner) to control the Afib. He did give me some other medicine for the Afib but it affected my kidneys (I only had 40% kidney function) and reduced the function to 23% in about a week so I stopped taking that. Wonder if I should get another opinion.

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@nene22

My doctor has also told me I have a leaky valve but he said it wasn't bad enough to do anything about it. He also said I have Afib and am on Eliquis (a blood thinner) to control the Afib. He did give me some other medicine for the Afib but it affected my kidneys (I only had 40% kidney function) and reduced the function to 23% in about a week so I stopped taking that. Wonder if I should get another opinion.

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Eliquis does not control afib. It prevents strokes by thinning blood

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@sapphira

My internist informed me years ago that I have leaky heart valves and since I had Takasubo episode 3 yrs. ago, I have an ekg every 8 months or so. I’ve asked him if the leaky valve condition could go back to having had Scarlet Fever as a small child as I recall hearing the Doctor at bedside telling my parents that if I recover (almost died), I might have a heart murmur. My doctor confirmed that I’ve always had the leaky valve condition all the many yrs. I’ve seen him (was my parent’ internist/cardiologist) and I’m just turning 88yrs in Oct. Like to have more info. on this condition and what it means for my heart health at this time.

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It's always good and appropriate to get another opinion – especially if there are complications involved. I have a feeling this leaky valve condition is not uncommon- I'm seeing my internist/cardiologist in a couple of weeks and will discuss this leaky valve business again – as usual- and try to learn more.

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My internist informed me years ago that I have leaky heart valves and since I had Takasubo episode 3 yrs. ago, I have an ekg every 8 months or so. I’ve asked him if the leaky valve condition could go back to having had Scarlet Fever as a small child as I recall hearing the Doctor at bedside telling my parents that if I recover (almost died), I might have a heart murmur. My doctor confirmed that I’ve always had the leaky valve condition all the many yrs. I’ve seen him (was my parent’ internist/cardiologist) and I’m just turning 88yrs in Oct. Like to have more info. on this condition and what it means for my heart health at this time.

IMG_0227-1

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@dfelix

Just got new heart valve at Mayo 10 days ago. At home now. Still pretty weak

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Hello @dfelix,

I wanted to follow up and ask after you – how are you feeling now? I can imagine you must have been feeling weak…heart surgery can
make you feel like you’ve been through a battle! Did you do the cardiac rehab program?

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