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Aortic Aneurysms – Introduce yourself & meet others
Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.
An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.
Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/
There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?
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I’m so sorry to hear about your daughter’s condition—it sounds incredibly difficult, and I can understand why you’re feeling concerned. Get a second opinion. Seeking a second opinion from specialists, especially at a major medical center or academic hospital, could provide new insights. Some places, like the Mayo Clinic or Cleveland Clinic, have teams that focus on complex cases like hers. Even if surgery isn’t an option right now, it’s important to make sure her doctors are exploring every possible way to manage her condition without surgery. Keeping her blood pressure controlled and monitoring her closely are key. I get annual CT scans for my dissected aorta repaired with a graft in 2015. It gives me a lot of reassurance that things are stable. I know this is overwhelming, but don’t be afraid to ask her care team tough questions or even look into clinical trials. Sometimes those can offer options that aren’t widely available. In addition, she is likely to qualify for permanent SS disability insurance so find a good SSDI lawyer in a major city near you and apply today. That would help from a financial perspective AND a health perspective if she's currently under a workload stress. Finally, don’t underestimate the importance of emotional support—both for her and for you. Talking with a counselor or connecting with support groups can make a big difference in getting through something this challenging. Peace.
This is a repeat post since I accidently put it in the wrong spot. I’m so sorry to hear about your daughter’s condition—it sounds incredibly difficult, and I can understand why you’re feeling concerned. Get a second opinion. Seeking another opinion from specialists, especially at a major medical center or academic hospital, could provide new insights. Some places, like the Mayo Clinic or Cleveland Clinic, have teams that focus on complex cases like hers. Even if surgery isn’t an option right now, it’s important to make sure her doctors are exploring every possible way to manage her condition without surgery. Keeping your daughter's blood pressure controlled and monitoring her closely are key. I get annual CT scans for my dissected aorta repaired with a graft in 2015. It gives me a lot of reassurance that things are stable. I know this is overwhelming, but do not be afraid to ask her care team tough questions or even look into clinical trials. Sometimes those can offer options that are not widely available. In addition, she is likely to qualify for permanent SS disability insurance so find a good SSDI lawyer in a major city near you and apply today. That would help from a financial perspective AND a health perspective if she's currently under a workload stress. Finally, don’t underestimate the importance of emotional support—both for her and for you. Talking with a counselor or connecting with support groups can make a big difference in getting through something this challenging. Peace.
Thank you