Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms group.

@rory

Hi everyone. I was diagnosed in 2012 with ascending aorta dialation. Echo showed 4.1cm. Now in 2018 echo showed 4.3 but ct scan showed 4.5 cm. which reading do you go by? Dr scheduled another scan in 6 months. Dr said keep up with my daily routines but no heavy lifting. Any feedback would help. Thanks.

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Measurements of aortic aneurysms differ when measured on an echo or on a CT scan — one is measured on a bias — the CT scan I believe. And measuring on the bias results in a higher number.

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@lynnw

Hi I am Lynn. I was diagnosed with a 48 ascending and 39 root aneurysm when trying to find the cause of my heart arrythmias. I am on the wait and watch method right now. I was told it was probably caused by high blood pressure which I have never had but have since found out my son has a 42 ascending so I am now a hereditary one. Am trying to get my other 2 kids screened. Am one year since diagnosis with no change in size, which is good. How long does it take to not have this in my head at all times. My father in law died from this so I know what can happen. I thought with distance I would stop thinking about it but it is always there. Doctor says it may never grow any more. Does that happen very often or are they just trying to keep me from worrying? Research is difficult as you all know since it is tailored to doctors. Feel very alone with this.

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An aneurysm is usually defined as an outer aortic diameter over 3 cm (normal diameter of the aorta is around 2 cm), or more than 50% of normal diameter. If the outer diameter exceeds 5.5 cm, the aneurysm is considered to be large.

There is usually a determined size when something needs to be done. Abdominal over 6cm. The most important thing for you is to have a dr that you trust and try to know that you are being watched by someone in that specialty.

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Welcome to Connect, @lynnw,

I'm so glad you've joined this group. It is natural to feel afraid, but as you can read throughout the discussion, it is a condition that many people have and live well with. I hope members @grandmajan @ch246cf10 @michellr @HeartPatches @jimmorris900 @jend @dixitworld @shakuni11 @smithjss will also join us here and share their insights.

Here's some detailed information from Mayo Clinic, as well:
https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188
@lynnw, what is your main fear or concern at the moment?

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@amiscott32

I am a 32 year old female. Previous smoker but no other predispositions. I have a AAA and was hoping someone could give me some advice. My symptoms are getting worse but not sure that everything is related. Along with the strong throbbing in my stomach I’m also having back pain. I have a purple spot on the back of my right calf. A huge vein sticking out on my right thigh. Tightness on the left side of my neck. And constantly low blood pressure. Are all or some of these related? Please help!! Thanks in advance.

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Hello @amiscott32,

I'd like to connect you with @ssams @playsdixie @worry @crhp194 @kdh1 @mlan68 @janetpomponio @mamamae @elsinann, all of whom have discussed their experiences with abdominal aortic aneurysm (AAA)

According to this article from Mayo Clinic, https://www.mayoclinic.org/diseases-conditions/abdominal-aortic-aneurysm/symptoms-causes/syc-20350688 the best ways to prevent a rupture is
– Quit smoking or chewing tobacco.
– Keep your blood pressure under control.
– Get regular exercise.
– Reduce cholesterol and fat in your diet.

You may also wish to read these discussions on AAA:
– Abdominal Aortic Aneurysm https://connect.mayoclinic.org/discussion/abdominal-aortic-aneurysm-2b62d0/
– Abdominal aortic aneurysm: 4.4cm is that serious? https://connect.mayoclinic.org/discussion/abdominal-aortic-aneurysm/

@amiscott32, may I ask if the AAA is being monitored by your doctor? What changes, if any, have you made to help prevent a rupture?

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My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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Where in Minnesota would you have it? Winter is not a good time to get around in Mn.

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@amybeth7367

My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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Please let me know when you do this. So many people die without knowing they have it. I have an ascending thoracic 4.8 and my son a 4.2. I feel blessed to have found out about mine instead of being one of the latter ones. Knowledge is power. Mayo Clinic is trying to keep mine from growing so hopefully I never have to have the surgery.

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@amybeth7367

My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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February 9th at the Pantages theater. Details will be posted on the Rock from the Heart website. I've reached out to Mayo, hoping they will get involved in some way 🙂

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@kdh1

Where in Minnesota would you have it? Winter is not a good time to get around in Mn.

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At the Pantages Theater – downtown Minneapolis –with a VIP reception at SEVEN. We also have a guest rate at the Loews hotel… all 3 venues are on the same block.
Are you in MN? We get around ok here in the winter 🙂
love your last name…. my maiden name is Perreira–Portuguese 🙂

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@amybeth7367

My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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Hi. I am 66 and I was told six years ago that I had an ascending aorta dilation. At that time it was 4.1. My last chest CAT scan was 4.5 but my echo was 4.3. I go back in a few more months for another check to see how it's doing. But as long as you keep an eye on it and watch it and listen to your doctor then you shouldn't be worried. It's those that don't know they have it is concerning. My doctor says I could go on the treadmill but just be careful not lifting anything over 20 to 25 pounds. How old are you and how long have you had yours?

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@amybeth7367

My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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Hi Amy Beth. So good to see your post this morning. I also have an ascending aortic aneurysm at 4.6 and that is getting up there as I am a small person. I currently live out of state, but have chosen Mayo for the surgery and we are considering a move also to be close to follow up care and care as we age. It is so nice to know that your husband is doing well. Please give him our very best wishes. Would it be possible to email a bit to get to know each other and learn from our shared experiences? My husband’s sister-in-law is from MN and talks very highly about her home state. Thank you so very much and take care
Sincerely,
Deby

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@amybeth7367

My husband has his aortic aneurysm repaired and aortic valve replaced last summer after 2 years of watch and wait. When he was diagnosed, neither of us had ever heard or, or knew anything about aortic aneurysms.
We've since started Rock From The Heart to raise awareness of aortic disease and are planning an event in Minnesota – Feb 9 2019!
Our goal is to connect with others around the country, sharing experiences and hopefully saving lives along the way.

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My husband's aneurysm was 5.0cm. He also needed his aortic valve replaced. We are very thankful in was found in time! His surgery was last July.

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