Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms. You can get started right away by clicking the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you join, you’ll also likely be welcomed by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

We’ve got some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

@hopeful33250

Hello @hollywoodal, I would also like to welcome you to Mayo Connect. You have mentioned taking 12.5 mg twice a day, but I'm not sure what medication you are referring to. Can you explain more? It sounds like it is helpful to you in that you notice a feeling better after a couple of hours of taking the med. I would be interested in knowing more about this drug.

I can understand your problems with Metoprolol. My response to that was tough, to say the least. My cardiologist switched me to Atenolol, much better!

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Atenolol. It was not feeling better it was worse. Brain fog, balance problems, vision problems, dizziness. I have a new doctor and I am now off of the atenolol. I'm taking Elipulse the last 10 days. It's a product sold in Canada. It does not have all the side effects.

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@degarden_girl

I think your first questions should center around how to find an outstanding cardiologist. An ascending aortic aneurysm should be evaluated and monitored by a specialist. A specialist will perhaps refer you to a vascular surgeon for evaluation. You want to do this now so you know and are feeling confident in your medical team, well in advance of your need to have surgery. I wish you good luck and good health.

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We will look into the specialist, however I have ataxia that is progressing, possible EDS therefor don’t heal well. Many other complications make me hesitant to even think about another surgery.

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@wittmack

We will look into the specialist, however I have ataxia that is progressing, possible EDS therefor don’t heal well. Many other complications make me hesitant to even think about another surgery.

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I understand your hesitation about additional surgery. I wish you well.

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@amiscott32

I am a 32 year old female. Previous smoker but no other predispositions. I have a AAA and was hoping someone could give me some advice. My symptoms are getting worse but not sure that everything is related. Along with the strong throbbing in my stomach I’m also having back pain. I have a purple spot on the back of my right calf. A huge vein sticking out on my right thigh. Tightness on the left side of my neck. And constantly low blood pressure. Are all or some of these related? Please help!! Thanks in advance.

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I believe they are all related and you need to see a cardiologist

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@ccubed

An aneurysm is usually defined as an outer aortic diameter over 3 cm (normal diameter of the aorta is around 2 cm), or more than 50% of normal diameter. If the outer diameter exceeds 5.5 cm, the aneurysm is considered to be large.

There is usually a determined size when something needs to be done. Abdominal over 6cm. The most important thing for you is to have a dr that you trust and try to know that you are being watched by someone in that specialty.

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That is the information I have as well. Thanks for sharing

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