Having aorta valve replacement: I’m scared

Posted by renee11 @renee11, Jan 14, 2022

im having ohs soon im scared to death help me

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@renee11

On my heart caths, echos, and other test my dr revealed that my aorta only had 2 cusps and not three...i also have a heart murmur that was not revealed until a year ago .........i am wondering do you still have a murmur after aorta replacement

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This is exactly what I was just diagnosed with.

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What type of replacement are you having TOVA OR SURGICAL. I am 92 and had a TOVA approximately 2 years ago. It was a "piece of cake". One day in the hospital and then home. They put a catheter in my wrist to do the initial investigation to determine whether I was a good candidate, and then the main catheter went up my leg. No external "chest cracking", no pain (minimal anesthetic). If you do not have the TOVA available where you liive check with Mayo or whatever major hospital is in your area. I was fortunate we have a surgeon who is exceptionally qualified to do these surgeries. His name is Dr. Nandish, Enloe Hospital, Chico, California 95926.
Gina5009

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@weezie12

This is exactly what I was just diagnosed with.

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@weezie12
Me too. Going through testing now.

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I’ve had the heart catheter and T.E.E. and today I’m having a CT scan and we’ll go from there for a surgery date.
I’m terrified!

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@weezie12
Don’t be scared! Have you spoken with the cardiologist performing the procedure?
I’m obviously anxious but it seems to be a safe procedure. That’s why you have all the testing done now so they get all the technical information.
I was also told that there will be 2 cardiologists and a cardio thoracic surgeon.
Also, I know I need it. I can’t live like this.

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Had an aorta valve replacement using TAVR a couple of years ago at Mayo. Went very well but they determined afterward that I needed a Pacemaker. Everything works well now and the procedures and recovery were not a problem. If being done at Mayo you are in excellent hands and do not worry.

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@astaingegerdm

@weezie12
Me too. Going through testing now.

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Fantastic, I will keep you in my prayers
Gina5009

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@gina5009

Fantastic, I will keep you in my prayers
Gina5009

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I had TAVR done at Cedars-Sinai on May 10. It went very well, released the next day. Took about 2 weeks for the incision to feel better. Started having increased energy right away. So far everything is going well and have a follow-up appointment with my IM Cardiologist on June 12.

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@raydiesposti

I had TAVR done at Cedars-Sinai on May 10. It went very well, released the next day. Took about 2 weeks for the incision to feel better. Started having increased energy right away. So far everything is going well and have a follow-up appointment with my IM Cardiologist on June 12.

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Hello @raydiesposti and welcome to Mayo Connect. I'm so glad that you posted about your successful TAVR procedure in this discussion thread. Your results of increased energy are enviable to all of us with valves that don't work well.

After I read your profile, where you discussed your heart problems were a result of a cancer treatment, I'm thinking that you might find the following discussion group interesting,
--Radiation Induced Heart Disease
https://connect.mayoclinic.org/discussion/radiation-induced-heart-disease/?commentsorder=newest#chv4-comment-stream-header

Was the valvular problem the only cardiac problem you have as a result of the cancer treatment or are there other cardiac follow ups needed at this point?

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@raydiesposti

I had TAVR done at Cedars-Sinai on May 10. It went very well, released the next day. Took about 2 weeks for the incision to feel better. Started having increased energy right away. So far everything is going well and have a follow-up appointment with my IM Cardiologist on June 12.

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Congratulations. I am almost 3 years past surgery and 92 years old. Long life and much happiness to you.
Gina5009

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