I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.
John thanks for your reply. The cause is unknown in my case. But I have constant tingling on legs and arms. Of course it is worse at night when trying to sleep. Sometimes I get a strong pain in my right leg near the knee and one in my thigh. I use a tens machine for the pain but the tingling and numbness doesn’t stop. I also have restless legs and take requip for that along with tramadol. It helps with the rls but no the tingling and numbness.
I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.
Thanks again John I will ask about the patch. Do you also have heavy legs and clumsiness.
My doc tells me to walk but I feel so weak I don’t walk straight. Clumsy like I was drunk. So I do t walk do you get any form of exercise?
I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I’m seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.
Hi,
The essential oil rub is:1 cup coconut oil the solid type10 drops Valor, 10 drop panaway, 10 drops peppermintMix it all together and store it in a glass jar apply it to areas of pain twice a day, you don’t need much at all because it spreads very well and it’ll last a while. You can also use it more than twice a day if you’d like the brand that I have is Young Living but I think any brand would work as long as its 100% pure therapeutic grade essential oils
I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I’m seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.
Please be careful with the patches. I was on them for a year when I needed
to refill them. The pharmacy’s that are around us were all out. In two days
I went through DT. No a good experience! If you see you have a few let
please make sure you refill. I didn’t take it anymore because of what I
went through. What I’m on now don’t work as well, but good enough. I hope
you get the relief you need.
Hi – I’ve had peripheral neuropathy in my feet and now legs for a little over 10 years. I’m probably more fortunate than most since mine is mostly numbness and tingling and no sharp pains. My doctors had me on gabapentin for awhile but it did nothing for me and when I discussed it with a new doctor team I was told gabapentin is only for pain and not numbness. I had to have an ECS and MRI before I could meet with a neurologist. The tests confirmed I have nerve damage but we still don’t know the root cause. I have an appointment for May 2nd with the neurologist and I’m hoping to find out what type of neuropathy I have which may help when talking with other people with the same type of neuropathy who have found what works for them. Two excellent sources of information are the MN Neuropathy Association (http://www.neuropathy-mn.org/) and the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/).
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I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.
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3 ReactionsJohn thanks for your reply. The cause is unknown in my case. But I have constant tingling on legs and arms. Of course it is worse at night when trying to sleep. Sometimes I get a strong pain in my right leg near the knee and one in my thigh. I use a tens machine for the pain but the tingling and numbness doesn’t stop. I also have restless legs and take requip for that along with tramadol. It helps with the rls but no the tingling and numbness.
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1 ReactionThanks pain warrior that is interesting solution. I’ll mention it to my doc.!
Thanks again John I will ask about the patch. Do you also have heavy legs and clumsiness.
My doc tells me to walk but I feel so weak I don’t walk straight. Clumsy like I was drunk. So I do t walk do you get any form of exercise?
Thanks for your reply grandma41 would mind sharing your essential oil formula? I would like to try it.
Hi,
The essential oil rub is:1 cup coconut oil the solid type10 drops Valor, 10 drop panaway, 10 drops peppermintMix it all together and store it in a glass jar apply it to areas of pain twice a day, you don’t need much at all because it spreads very well and it’ll last a while. You can also use it more than twice a day if you’d like the brand that I have is Young Living but I think any brand would work as long as its 100% pure therapeutic grade essential oils
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9 ReactionsHi it is actually Valor II
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1 ReactionPlease be careful with the patches. I was on them for a year when I needed
to refill them. The pharmacy’s that are around us were all out. In two days
I went through DT. No a good experience! If you see you have a few let
please make sure you refill. I didn’t take it anymore because of what I
went through. What I’m on now don’t work as well, but good enough. I hope
you get the relief you need.
salena
Hi – I’ve had peripheral neuropathy in my feet and now legs for a little over 10 years. I’m probably more fortunate than most since mine is mostly numbness and tingling and no sharp pains. My doctors had me on gabapentin for awhile but it did nothing for me and when I discussed it with a new doctor team I was told gabapentin is only for pain and not numbness. I had to have an ECS and MRI before I could meet with a neurologist. The tests confirmed I have nerve damage but we still don’t know the root cause. I have an appointment for May 2nd with the neurologist and I’m hoping to find out what type of neuropathy I have which may help when talking with other people with the same type of neuropathy who have found what works for them. Two excellent sources of information are the MN Neuropathy Association (http://www.neuropathy-mn.org/) and the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/).
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3 ReactionsGabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.
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