Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Hi,
The essential oil rub is:1 cup coconut oil the solid type10 drops Valor, 10 drop panaway, 10 drops peppermintMix it all together and store it in a glass jar apply it to areas of pain twice a day, you don’t need much at all because it spreads very well and it’ll last a while. You can also use it more than twice a day if you’d like the brand that I have is Young Living but I think any brand would work as long as its 100% pure therapeutic grade essential oils

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Hi it is actually Valor II

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Liked by tobysmom

@bobsconnect

I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I’m seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.

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Please be careful with the patches. I was on them for a year when I needed
to refill them. The pharmacy’s that are around us were all out. In two days
I went through DT. No a good experience! If you see you have a few let
please make sure you refill. I didn’t take it anymore because of what I
went through. What I’m on now don’t work as well, but good enough. I hope
you get the relief you need.

salena

Hi – I’ve had peripheral neuropathy in my feet and now legs for a little over 10 years. I’m probably more fortunate than most since mine is mostly numbness and tingling and no sharp pains. My doctors had me on gabapentin for awhile but it did nothing for me and when I discussed it with a new doctor team I was told gabapentin is only for pain and not numbness. I had to have an ECS and MRI before I could meet with a neurologist. The tests confirmed I have nerve damage but we still don’t know the root cause. I have an appointment for May 2nd with the neurologist and I’m hoping to find out what type of neuropathy I have which may help when talking with other people with the same type of neuropathy who have found what works for them. Two excellent sources of information are the MN Neuropathy Association (http://www.neuropathy-mn.org/) and the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/).

Liked by martid, inspect28

Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

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@painwarrior

I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.

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Im glad it helps relieves your pain, I hate to know when someone goes through so much pain. An for the rest of you that is suffering. Ive live with pain most of my life, but not from the same illness, and I dont believe in the degree you suffer.I hope you want be afended if I tell you I will pray for you and the others who are suffering.I admire your stregth. Hang in there!

@grandma41

Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

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I would like to know more about your situation. You must go through a lot.
I had a severe head trauma when I was young, now I have migraine headaches
that causes me to loose conciseness, and I have symptoms of MS. My Dr.
wants me to have an MRI done to rule out that I have MS. There are days I
can walk. So when I have a good day I do as much as I can. Will keep you
posted as to see how you feel, an in my prayers.

salena

@grandma41

Hi it is actually Valor II

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I don’t know what that is, is it a brand and where do I get it? Thanks for your response.

I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

Liked by jbyrd

@martid

There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.

What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.

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after  having  kemo I  started  have bad flashes My Dr  tried everything. Then by accident  my pain management  Dr  gave me cymbalta for fibromyalgia   It didn’t  help my fibromyalgia but I noticed it took away my flashes. Maybe  it would  work for you 

Thank you for the suggestion. I’ll Ask my doctor about it. Have a good night

@dbentley

I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

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Dbentley I am so sorry for all you have been through and still no relief. I hope this procedure will help you.

@grandma41

Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

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Salena54 thank for your reply. I have both peripheral neuropathy And restless leg syndrome along sigh arthritis in my hip and spine. Night is the worst for rls I take requip and tramadol and. Natural sleeping Aid. Otherwise I would never sleep. I have a TENS machine for the neuropathy which I find to be quite affective though I still have pins and needles all the time in legs and hands and sometimes numbness. I used tha e migraines too so I feel for you they can be quite debilitating. Mine stopped zagged
Menopause. Thank you for your concern and I hope you can get relief soon.

Liked by salena54

@painwarrior

I’ve been on a Fentanyl patch for years for my peripheral neuropathy. It’s the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can’t survive without it.

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ThAnk you you have a lot of strength too. Let us know how hour ms test turns out I will be praying for you too and all the others who are in pain

Liked by salena54

@grandma41

Gabapenti. Totally helps me sleep, but I don’t like the dizziness it has caused.

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I’m glad you can get some sleep and have to use whatever works for you. Take care of yourself.

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