Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@rabbit10

Thanks worth a try

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About 10 years ago, I began feeling “funny” sensations in my feet. I
notified my dr. who used a small instrument to poke at toes/feet asking
“can you feel that?” Yup, I could feel it so he said it was probably okay.
It continued. Five years later, I developed cancer and underwent chemo for
6 months and some radiation. Now, I have a full-blown case of neuropathy
that extends from feet up to ankles but it is a different than the *lack of
feeling* type – I feel everything. I can’t stand on my bathmat because it
hurts – how odd is that? Feet and ankles feel as though they are tightly
bound much as if you’d wrapped duct tape tightly around feet and ankles
many times. If my feet become too warm, they itch and there are frequent
jabs of severe pain. Ankles swell by bedtime. So, before I go to bed at
night, I stand on the cold garage floor for a few minutes to be sure the
feet are cold enough to allow me to get some sleep. I take no pain meds
(other than acetomenaphin) but take warfarin for a blood clot. I’m 80
years old and have heard horror stories about the testing that is done to
determine extent of nerve damage and am not in a mood to experience further
discomfort unless something really can be accomplished. So far, the best
therapy I’ve found is to keep your feet cool and apply a good foot cream
both AM and PM. Just a note

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@salena54 and others – I just started reading a book The Wahls Protocol: A radical new way to treat all chronic autoimmune conditions using Paleo principles by Terry Wahls, M.D. with Eve Adamson which looks like it might be of interest to a lot of us looking into alternative treatments. More info here: http://terrywahls.com/about-the-wahls-protocol/ – I know I need to eat better just hoping to get some extra incentive.

Liked by salena54

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Thanks, I will look it up.

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@dbentley

I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

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@salena54,
Pain pumps are implantable devices that can help when severe chronic nerve pain doesn’t respond to medication, surgery or physical therapy. You can read more about them on Mayo Clinic Network News http://newsnetwork.mayoclinic.org/discussion/devices-help-reduce-severe-chronic-nerve-pain/?_ga=1.31171199.174308196.1449753290

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@dbentley

I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

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Sale a thanks for that information. I’m not there yet but nice to know just in case it gets really bad

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@johnbishop

@salena54 and others – I just started reading a book The Wahls Protocol: A radical new way to treat all chronic autoimmune conditions using Paleo principles by Terry Wahls, M.D. with Eve Adamson which looks like it might be of interest to a lot of us looking into alternative treatments. More info here: http://terrywahls.com/about-the-wahls-protocol/ – I know I need to eat better just hoping to get some extra incentive.

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Thanks

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@rabbit10

Thanks worth a try

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Mary so sorry that happened to you hope you I’ll find something in these posts that will help you. I have already received some suggestions to try. Good luck

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@rabbit10

Thanks worth a try

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Yes I am sure it is getting hard to walk since the neuropathy also makes legs unsteady and with fibromyalgia just adds to the problem. I wish you to find something in these posts to help you.

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I have been thinking of the essential oils since I heard of them on these
post. I have tried about everything known to man but not this. Could
you give me the ingredients and the amounts to use for the cream?

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@selena54
I pray every night thanking the Lord for his intervention in my medical care. I am on Medicare which pays for a lot of my care and meds. Another supplemental plan that helps pick up some of the remainder. He has seen me through so much these past few years and I am doing much better but I will never be my full self again. The damage is done but He gives me light and my life is spared. He is keeping me around, I figure, to complete his plan for me. I submit to Him all my troubles and He rewards me everyday. Medical advances are miracles but can’t compare to His compassion and love for us. I wish you the best and thank you for opening up. I will pray for you Selena and ask Him to bring upon you all his marvelous Grace and set you free of what troubles you.

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@dbently here is the link I found for essential oils for peripheral neuropathy that I am going to try. I am going to an informational group meeting tonight with a person who is just getting into the Young Living Essential Oils business. http://theherbalistjournal.com/essential-oils-and-peripheral-neuropathy/ .

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@bobsconnect

@selena54
I pray every night thanking the Lord for his intervention in my medical care. I am on Medicare which pays for a lot of my care and meds. Another supplemental plan that helps pick up some of the remainder. He has seen me through so much these past few years and I am doing much better but I will never be my full self again. The damage is done but He gives me light and my life is spared. He is keeping me around, I figure, to complete his plan for me. I submit to Him all my troubles and He rewards me everyday. Medical advances are miracles but can’t compare to His compassion and love for us. I wish you the best and thank you for opening up. I will pray for you Selena and ask Him to bring upon you all his marvelous Grace and set you free of what troubles you.

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@bobsconnect, I agree with you. What faith you have, you are truly a strong
and kind person! I to am kept my the Lord’s mercy. There’s peace through
the pain. My mom is on Medicare, and I know what a blessing it is. She has
RA, that has taken her independence from her. She was diagnosed with fist
stages of Alzheimer’s disease six months ago. So when you pray please pray
for her. Thanks for your post. Salena

salena

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Is anyone here on mycophenolate for severe neuropathy or anything else? The neurologists recommended that I try it yesterday and I will, but I’m concerned about possible serious side effects, like lymphoma.

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My daughter in law sells oils from young living. She makes a rub with
coconut oil and uses olive oil so the oils I roll on for pain. I’ve been
using the oils for about five months now. They work OK, when I have a bad
day I have to take something stronger. I use the oils for all kinds of
things. I even use them in a diffuser I purchased from the same company.

salena

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@salena54

My daughter in law sells oils from young living. She makes a rub with
coconut oil and uses olive oil so the oils I roll on for pain. I’ve been
using the oils for about five months now. They work OK, when I have a bad
day I have to take something stronger. I use the oils for all kinds of
things. I even use them in a diffuser I purchased from the same company.

salena

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Thanks. I’m going to look up their website.

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